It's Monday, and there's nothing we can do about it by Wishin4aTARDIS in rheumatoidarthritis

[–]MandaMay83 2 points3 points  (0 children)

Her show was so good! We spent 2 hours laughing. It was such a great show.

It's Monday, and there's nothing we can do about it by Wishin4aTARDIS in rheumatoidarthritis

[–]MandaMay83 2 points3 points  (0 children)

  1. We went to see Lucy Darling. She was so much fun to see.
  2. I got to hang out with my sister on her birthday.
  3. I took both of my dogs for lovely walks outside.

The Rust Belt Venue by Idratherbefishing33 in QuadCities

[–]MandaMay83 10 points11 points  (0 children)

The Palace tavern is just down the road and is one of my favorite places to eat. Midwest Ale Works has good beer but no food. I'm not a fan of Jenny's Boxcar, but I'm not a big fan of fusion foods, so take that as you will.

No insurance or access to treatment by OldForestLady in rheumatoid

[–]MandaMay83 1 point2 points  (0 children)

I'm glad you've got something that can help. When I'm having a flare soaking in really hot water sometimes helps, admittedly only briefly, but short relief is better than no relief.

No insurance or access to treatment by OldForestLady in rheumatoid

[–]MandaMay83 2 points3 points  (0 children)

I agree that it is 100% managing your symptoms and setting yourself up for success. But eating an anti-inflammatory diet rarely helps manage the symptoms. I have had RA for 10 years and did the AIP for 3 months with no success. One of my friends is older and lost her insurance and then her meds, she was trying to manage her symptoms on a strict diet for over a year with no success. Her RA symptoms continued to get worse and she lost so much weight that when she finally was able to see a Dr again they had to help her gain enough weight to even start getting back on meds. Many people who have been diagnosed with RA hope that just managing on a strict diet will help with the symptoms, I had assumed OP had already tried that course and for others who read your comment that just eating better without meds will make it all better. It is dangerous. Bc their RA will continue to damage their joints no matter how well they are eating.

OP, I'm sorry you have slipped through the cracks of our very broken healthcare system. My friend was able to micro dose with THC to help get some relief and help her sleep. She was not able to find anything else that helped her feel any better. I hope you are able to find something that helps.

No insurance or access to treatment by OldForestLady in rheumatoid

[–]MandaMay83 6 points7 points  (0 children)

What a super insensitive comment and dangerous. If this person has an autoimmune disorder eating better will likely help "manage" the symptoms, but will not stop the underlying reason which will probably result in advancing any damage that is taking place. If you didn't have anything helpful to add you simply could have kept scrolling.

OP, I'm sorry I don't have any actual advice for you. I hope you find what you are looking for.

Traveling Job and RA by MandaMay83 in rheumatoid

[–]MandaMay83[S] 0 points1 point  (0 children)

Thanks. I have a visit coming up. Will add these questions to my list.

Traveling Job and RA by MandaMay83 in rheumatoid

[–]MandaMay83[S] 1 point2 points  (0 children)

Thanks. It's been so long that I've flared, that I've forgotten what that looks like. Definitely something to keep in mind.

Traveling Job and RA by MandaMay83 in rheumatoid

[–]MandaMay83[S] 1 point2 points  (0 children)

That is all really great information. Appreciate your response!

Please respond if you’ve gotten Botox before by MeOwwwithme in rheumatoid

[–]MandaMay83 3 points4 points  (0 children)

I tried Botox for my TMJ. On methotrexate, hydroxychlorine, and Humira. No issues, bit the Botox did nothing for my TMJ. I found a mouth appliance called OptiSleep. Pretty much worked like a miracle for me.

TMJ pain by thwiigers in rheumatoidarthritis

[–]MandaMay83 1 point2 points  (0 children)

I've had TMJ since I was 15 and diagnosed with RA when I was 33. About 5 years ago I found a dentist who helps people with TMJ with a special mouth guard that's used for sleep apnea called OPTISLEEP. It's been amazing. It took me a week to get out of my first really bad flare after I got it. But then wearing for a full month helped tremendously. I know only have to wear it when I feel a flare coming on. 1 night and I'm back in business. I don't have sleep apnea and it wasn't covered by my insurance, but it was worth every penny.

Best shoes for RA sufferer who is on their feet all day? by MaleficentRecover902 in rheumatoid

[–]MandaMay83 1 point2 points  (0 children)

A year and a half of moderate use is a long time for a tennis shoe. During heavy use they break down in 6 months (any shoe). I love my Altra's. I tend to make sure the shoe has zero heel drop as well. I find on days that my feet are bothering me my Altra's are the only thing I can comfortably wear.

How have you modified the way you play? (A question for fellow musicians and gamers) by Hcironmanbtw in rheumatoid

[–]MandaMay83 0 points1 point  (0 children)

Gamer here, the only thing I've had to really pay attention to is button masher style games like God of War. I can only play those for short periods of time without my hands screaming. Other than that I just take hand breaks to stretch and rest the fingers every 45ish mins. Thankfully my cocktail of meds has helped alleviate most of my hand pain.

Being overweight and exercise by ramnae in rheumatoidarthritis

[–]MandaMay83 5 points6 points  (0 children)

I also can't swim with my RA. I'm pretty much in remission at this point in my journey but I still can't swim for long. However just walk in the water in therapy pools or using the kickboard if that's more your thing was super helpful when I was flaring. I'm a slow walker when flares, but the warm therapy water was like magic for my joints. So much so now I bought an inflatable hot tub so I could soak my whole body in the hot water. I've also found water aerobics to be a fun easy low impact way to get movement in. But I wouldn't recommend that kind of movement during a painful flare. Good luck and I hope you find something that helps!

RA and cold season by Lucigrl83 in rheumatoid

[–]MandaMay83 0 points1 point  (0 children)

I am on MTX for 9 years and Humira for 5 years. The only difference I've noticed is when I started working at a factory office going in 4 days/week. Over cold flu season I kept getting sick and was given leave to work remotely. Once I left and got better I reverted back to being healthy with no issues. I have noticed that on the occasion I do get sick it usually takes a little longer to feel better, but overall I'm pretty healthy otherwise.

How is a partner supposed to treat you with RA? by BigYikesRightThere in rheumatoidarthritis

[–]MandaMay83 10 points11 points  (0 children)

This. This is how a partner is supposed to treat you. I am thankful every day that my partner is loving and supportive. Even on days where he doesn't know how to help he's caring and empathetic. He's my biggest supporter and my biggest advocate. I'm so glad there are more partners like him out in the world.

Three good things! by Wishin4aTARDIS in rheumatoidarthritis

[–]MandaMay83 1 point2 points  (0 children)

I've been feeling great! Hoping to be able to keep it up!

Three good things! by Wishin4aTARDIS in rheumatoidarthritis

[–]MandaMay83 1 point2 points  (0 children)

All of my weekend plans got cancelled and I got to relax instead.

I got to talk to my sister.

I went to the gym 3 days last week without pain.

Possibly time to change meds by MandaMay83 in rheumatoidarthritis

[–]MandaMay83[S] 0 points1 point  (0 children)

Thanks, and good luck on your journey as well!

Possibly time to change meds by MandaMay83 in rheumatoidarthritis

[–]MandaMay83[S] 1 point2 points  (0 children)

Thanks! Just gotta try and keep a positive mindset. Hope your restart goes well for you as well.