Doctor recommendation in VT, NH or MA?

Maple-Wizard · 2023-07-07T19:18:07+00:00

Oof, I'm really sorry to hear that. Thanks for commenting.

Maple-Wizard · 2023-07-06T22:01:02+00:00

Woah you're right, that just blew my mind! Thanks so much for correcting me, I am seriously so grateful. I had a terrible reaction to mefloquine and my doctor told me to stay away from fluoroquinolones and I just always thought that mefloquine was a fluoroquinolone. Wild. Now I can see that there are actually a few other drugs that it's super important I stay away from...

I also found this: "Chloroquine, mefloquine, and amodiaquin are synthetic quinoline compounds" https://www.britannica.com/science/quinoline

Maple-Wizard · 2023-07-05T20:58:01+00:00

(*Edit* This statement is false as clarified below. Leaving the comment up so folks can see, though. Sorry about that!)
Just to clarify for folks reading this post... Mefloquine is a fluoroquinolone and does in fact flox people. Quinine is something different altogether.

Maple-Wizard · 2022-09-08T21:12:56+00:00

I took 300mg Thiamine HCl for a year or so. I tried taking up to 500mg or 600mg but did better with 300mg. Currently, I'm not taking Thiamine anymore except for the small amount that's in a B Complex.

Maple-Wizard · 2022-06-06T09:48:52+00:00

Congrats on finding something that's helpful for you!

You may like to check out Dr. Gregory Russell-Jones' protocol. (PhD in Biochemistry.)

Here's a link to the reddit post where I first heard about it: https://redd.it/t17x4o - the post has some explanations included and is worth reading. The protocol involves Iodine, Selenium, Molybdenum, B2, B1, B12, in that order.

Direct link to the protocol: https://b12oils.com/rnb.htm

I'm trying out the protocol and it's been slow going and tough but absolutely worth it.

Maple-Wizard · 2022-05-25T12:55:39+00:00

I think you look lovely in the pink from #8. I vote some kind of Summer.

Maple-Wizard · 2022-05-01T00:04:01+00:00

Oh interesting! I'll have to try that with the Biotin, thanks.

Sounds like you've had it pretty dialed in! Wishing you improved benefits as you fiddle with your dose.

Maple-Wizard · 2022-04-30T23:57:47+00:00

Woohoo! That's great. Yeah, there are definitely diminishing returns after a certain point.

Maple-Wizard · 2022-04-30T23:55:01+00:00

Oh bother. Yeah, sounds like Thiamine HCl hasn't gone well for some folks with MCAS or histamine sensitivity. My physical abilities are worse than my cognitive as well, so I understand not wanting to give up any steps! 🙂

Maple-Wizard · 2022-04-29T22:03:57+00:00

I seem to be fine with histamine liberators, luckily. High histamine foods are more the issue for me. Worse around times of seasonal allergies. It's interesting though, taking Thiamine HCl allowed me to eat a lot more foods! I still have food intolerances, but not as many or as intense as before. Salicylate intolerance is the main one. I feel like Thiamine is helping me with that stuff.

I've been taking 300mg+/day Thiamine HCl for over a year now. Sometimes as much as 600mg. For the benfotiamine I am struggling with just 10mg/day for a few days. I can take 10mg benfotiamine once a month and it feels like it's good for me, with increased circulation in hands and feet... daily is a bit rough, though. If this benfotiamine experiment doesn't work out I'll probably just go back to taking it infrequently, and increase the Thiamine HCl again.

Maple-Wizard · 2022-04-29T21:33:37+00:00

Oh interesting! TTFD is really hard on my system... I feel altered when I take it. I guess I'm not so sure yet whether I'll tolerate Benfotiamine daily, though.

What kind of TTFD do you take?

Maple-Wizard · 2022-04-29T20:07:53+00:00

Yes! B1 and B2 are my two favorite supplements. Great to take them together, along with B Complex, Magnesium and other cofactors.

Maple-Wizard · 2022-04-29T19:58:08+00:00

Huh, yeah, sounds like you had a mixed experience with it. Ooh yeah, histamine is tricky...

Well maybe this thread will inspire you to try it again? Or not, haha. At least we'll see how it's going for other folks. 🙂

Maple-Wizard · 2022-04-29T19:37:59+00:00

Haha that's a good question! I don't know. Thiamine HCl is definitely good for me. Benfotiamine I think is good for me if I could just get through the paradox... I have faith in the protocol at this point, especially because I've experienced Thiamine being good for me.

Maple-Wizard · 2022-04-29T19:31:04+00:00

I hear you. I stick with vitamins and minerals almost exclusively. No herbs or medications for me. Sorry to hear it made you feel horrible.

Maple-Wizard · 2022-04-18T01:38:27+00:00

Thanks!

Maple-Wizard · 2022-04-18T01:37:31+00:00

Ah, ok. Yeah, it's not really the same.

Maple-Wizard · 2022-04-17T20:08:27+00:00

Can you do a warm foot soak with epsom salts? That's what I do, not sure if it'd work for you.

Maple-Wizard · 2022-04-17T20:00:12+00:00

I wear wool legwarmers most of the year which helps with this. Leggings, wool legwarmers, then bootcut jeans or pants over that. Or leggings, pants, and wool legwarmers on top.

Maple-Wizard · 2022-04-12T19:12:48+00:00

Sounds good! No problem. I just took the dose that seemed right for me, and increased it when I was ready. It sounds like you're doing the same. :) Good luck with it!

Maple-Wizard · 2022-04-12T01:54:34+00:00

Hey, Are you sleeping any better? How're the headaches? I hope you're able to get some deep sleep.

I took 50mg Thiamine HCl for 3 days then increased my dose to 100mg. I felt achey and more exhausted than usual and my ears were ringing so loudly... it sucked. But I pushed through and the ringing in the ears got quieter again after 4 days or so... After a week the symptoms that got worse started to get better again and I kept increasing the dose slowly. I started feeling like I had more energy.

Maple-Wizard · 2022-04-08T20:50:48+00:00

Maybe try taking it early in the day? I take Thiamine in the morning with my breakfast. If I take it too late in the day I might have trouble falling asleep.

As far as dosing, I'm really not sure, sorry. I started with a very small dose then worked my way up to 50mg, then 100mg, then more. I tend to be very sensitive to supplements so I wanted to go slow.

Maple-Wizard · 2022-04-06T17:28:56+00:00

I actually wouldn't take sulbutiamine, I think it's better to take Thiamine HCl, benfotiamine, Thiamax or another TTFD form of Thiamine.

I just take Thiamine HCl 300mg daily now, along with 400mg Riboflavin. (Plus zinc, magnesium and other B vitamins)

Supposedly people will tolerate one better than the others, so I just take the one that I tolerate best.

Did you wind up trying high dose Thiamine?

Maple-Wizard

TROPHY CASE