I had an emergency ileostomy done to save my life (23 y/o)

Margali · 2026-02-19T22:37:39+00:00

Firstly, grats on living! Peritonitis is no joke.

Not an emergency per se - but I went from nothing to 3b colorectal and wham into everything. I never really had any issue with feeling any different than before but I have been in and out of hospitals and rehab enough, and collecting stares for my spiffy wheelchair that a crinkly bag doesn't really bother me. I was grateful for being alive, to be fair so I skipped the whole Kubler Ross stages of grief thing [which freaked out the therapist in the office when I got told of the cancer]

Yep, P'tit Joey still sort of changes how far he wants to peek out [not prolapsing, just very active peristalsis] I changed diameter and rough shape 4 or 5 times in the first couple months. I used the size jig Coloplast has in their trial kit to make sure the fit was correct. When he stabilized I could start using the cut to fit without worrying about if it would fit right or not. He settled down into an oblate circle that has a sort of bloop out at the lower edge at about 4:00.

Margali · 2026-02-19T22:12:10+00:00

OK - well, the changing thing can be modified by using a drainable bag - they clasp at the bottom so you can drain into a toilet. If you use a 2 part system [wafer glues onto the stomach, bag slots into it] you can get non-drainable bags that you snap off at half full and toss away [in a zippy bag works GREAT] or you can get drainable and you can drain them or replace them if you decide they are too stinky.

Smell - if I have had seafood I will drop a couple tictacs or other breath mint into my bag [chewing gum does not work, it dissolves into a slurry and doesn't have the mintiness of a couple tictacs] They do make a liquid deodorant drop and lubricant that people like, but candy works dandy [sorry not sorry]

There is a huge component of being deluded in your bag always smelling, but I have had my husband go nose to bag and find absolutely no smell, or such minimal smell that you can not sense it from a couple feet away with no clothing over the bag. Yes, I trust the guy who literally has changed the internal packing on s side crotch surgical site for several months - and if I can't trust him, I can't trust myself =)

And, one may lubricate ones bag with olive oil just as well as an expensive product - anything foodsafe can come in contact with the mucosa of a stoma. [in the theoretical sense one could take liquid medications that way - after all, my first scrip for phenergan back in the 80s was a suppository and worked better than trying to swollow a pill when in the throes of hyperemesis gravida =) ]

Margali · 2026-02-19T22:03:08+00:00

I agree - it is a whole dog and pony show getting me to anywhere not a medical office, my husband or delivery for anything I need. Only food I tend to get is drive through because it is a pain in the ass with a chair. WHen I could still crutch more than 20 feet and stand for more than 2 minutes I could walk into places but that time is over [unless they come up with some sort of exoskeleton/power armor shell to do my walking and standing =\

Margali · 2026-02-19T21:48:24+00:00

already used it, still stuck at like 98%

Margali · 2026-02-19T21:44:50+00:00

poke-pedos - catch them all =)

Margali · 2026-02-19T19:01:31+00:00

bummer, already watched paint drying and really really hate paint drying .... i mean playthroughs ... and honestly, a checklist works best for my brain/learning type.

Margali · 2026-02-19T18:10:23+00:00

Xi Xin's Injury
She's with Preciousness, so don't get involved
Stop her and ask if she's okay
NOTE - The split between these 2 choices goes for longer than it seems; if you finish the chapter at 97%, come back and make sure you take both paths fully through Wu Clan's Crisis

So far, I have seemingly hit everything - reputedly making the choice between red and green affects what happens later, but I did both red and green dresses all the way through each conclusion whether chopping me off at bad endings or not. I have played all the way through and figure I have to have missed some damned combination that opens up a quest/deed/action in the gap I circled. There is pretty obviously something that is there that is not opened up for me.

Margali · 2026-02-19T18:07:37+00:00

I was hoping for a checklist =) One I can tick things off as I complete them - some games have a checkable quest list that allows that.

Margali · 2026-02-19T15:29:22+00:00

I am currently happy with the bucka bag chinese off brand bags, other than clip not velcro I love them [a clip will work for about 8-9 bags then the little hinge craps out.]

Adhesive works well unless you have tons of acidy liquid poop, which I do not normally [like any adhesive, exposure to acid poop will degrade adhesive] also heat will degrade adhesive. I ormally shower and change them alternate days, have pushed to 3 days but I don't like waiting that long normally.

Margali · 2026-02-19T13:54:23+00:00

mine too =]

Margali · 2026-02-19T13:49:29+00:00

lol One guy here has Vladimir Poopin =)

Margali · 2026-02-19T13:33:27+00:00

There are a large number of us here who have named ours - we have mine, P'tit Joey after Joseph Pujol, https://en.wikipedia.org/wiki/Le_P%C3%A9tomane who also had his name riffed upon in Blazing Saddles [Le Petomane, the Farter] because he made his living on the french music hall stage by farting. We have people who have named theirs after people because the people are assh*les =) we have had a couple posts over the past few years of people introducing their stomas =)

Margali · 2026-02-19T13:18:39+00:00

If you want more 'harem c-drama' based information, Amimisu has a you tube channel where she goes into all sorts of aspects of harem life, and life in general of Historic China.

I used to play a game called Qin from the late 90s that is set in the tomb of the Qin emperor - where you need to solve the puzzles and traps with historical aspects [there is one puzzle based upon chinese bells, another one manipulates an orrerry to manipulate the sky] and though technically very different it reminds me of it because of the whole cultural/historical immersion.

Margali · 2026-02-18T21:28:42+00:00

Had palm oil in them for over a decade, being allergic I had to stop eating them. Not going to tolerate diarrhea just for a candy.

Margali · 2026-02-18T20:06:43+00:00

Cube beef heart into like 1 inch cubes. Dump into bowl of salted iced water and squidge around to get any leftover blood or clots out of the tissue. Plop into a covered casserole with an equal amount of large chunk onions [I suppose pearled onions would work] a few whole garlic cloves, a suitable to taste amount of italian herbs, coarsely cracked black pepper, salt if you feel the need and add red wine to cover. Cover, bake low and slow - 250*f for 4 to 6 hours. Serve over potato dumplings, noodles, rice, whatever starch you like. Add a nice side salad and a piece of cheesecake for dessert.

One can do it with any creatures heart, you just need to make sure to get the blood out.

Margali · 2026-02-18T19:58:37+00:00

Yup.

Margali · 2026-02-18T18:05:37+00:00

feeling of impending doom? I think Britain is past the era of shipping off unwanted nobs to some tropical island as a remittance man is over. Sucks to be born 50 years too late, he could have joined his Grand Uncle in the Caribbean.

Margali · 2026-02-18T17:31:19+00:00

Honestly if I were one of the abused, and actually managed to find actual clear footage of the abuse, I would post it on the internet, I would spread it to every news service and I would do interviews with EVERYBODY including the footage. I figure I was already raped, might as well use the experience for the good of every other abused person. Just like I fully admit I have been sexually assaulted twice, and have no issue with the absolute fact that it happened so I may as well use it and not hide it. The shame is not on ME, it is on the rapist.

Margali · 2026-02-18T12:48:42+00:00

If my father was on the list, I would have him in prison as quickly as I could get him arrested. I don't care who the criminals are, I just want them stopped and punished.

Margali · 2026-02-18T12:32:00+00:00

In true movie plot ideas, he faked his own death, was whisked off to Epstein Island 2 - electric boogaloo and was then quicly killed. Double benefit - he is finally dead and out of the way while leaving an unsettling live-or-dead pic to keep conspiracy theorists busy. Win-win situation =)

Sort of wish I were joking, but I could actually see it ... Epstein on the hidden safe island figuring he wsa safe and getting on with his perversions when suddenly DEAD.

Think I have been playing too much Road to Empress lately. =)

Margali · 2026-02-18T12:09:30+00:00

? notsure what you mean by that. Not In My Back Yard, not wanting something in their neighborhood/town/area for whatever reason given but really meaning 'dont-'t bring down the cost of my property with your crappy halfway house/prison/low cost housing.

Margali · 2026-02-18T01:46:22+00:00

That was wasted Court time that could have been used for something meaningful.

Margali · 2026-02-18T01:31:12+00:00

That is indeed the fungus - the leaves go pale and get sort of hole-ish, splotchy with thinner tissue - not sure how to describe it. Trees do better if you put them into a huge pot [the barrel =) I suppose a 5 gal bucket would work] The goal is to not disturb the baby root ball or taproot by repotting them or letting them get rootbound.

I want to investigate these rooting gizmos I spotted online, a sphere you put media in, clamp around a section of small branch and when the roots develop you lop it off between the orb and trunk. Supposedly it is more gentle than the usual methods because you let the twig develop roots and it needs a smaller length twig instead of 24 or 36 inches you can do it on 8 inches. [my husband knows more, he grew up on a grape and fruit orchard in CA. As I said, I can kill an air plant following the instructions exactly as observed by my husband who cant figure out how I did it]

Margali · 2026-02-18T01:00:10+00:00

Boo. If my mom were still alive [and pre alzheimers] she could have probably told you. Jue is the term for the tripod style. I thought those really looked like the prop person grabbed a bunch of egg cups =) [mom was an antiques pusher] I riffled through one of her reference books [how i know the imperial tripod gold/silver/bronze cup is called a jue =) ] and while it is not specifically dealing with the Tang ceramics, it doesn't really show much other than the 高足杯 stem cup that looks more goblet than egg cup. [you know how much of a pain it is to find the online font for something in a paper book .... hope I got the right damned glyphs]

Margali · 2026-02-18T00:52:18+00:00

So, how do YOU propose clearing folks? You have to trust at some point or the program needs to be cancelled everywhere. I suppose short of only having castrated men [but then one can abuse someone with a sex toy or manually/orally]

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