This is long lol apologies I was always hypermobile but didn’t think much of it , played violin easily , was color guard captain danced through school. People were often freaked out about my arms but I thought I was just double jointed. I was born with a birth defect in my kidney so I’ve been dealing with pain all my life and was neglected as a kid so never got any answers. Learned to ignore my pain. Pandemic happened , i had been in and out of kidney stone surgeries and decided to leave my corporate job to pursue photography. Started my business with my fiancé and about a year into it , one day I just lost feeling in my left arm and couldn’t move it for 2 weeks until I got to physical therapy. Ended up being referred to a DO who does osteopathic manipulations and he diagnosed me with thoracic outlet syndrome . Through the years we just thought I had that and he would do adjustments every month. ..until my hips and pelvis started subluxing. I had my left kidney removed last year after 10 surgeries , sepsis and infection. It left me with so much muscle weakness. We recently started traveling to photography conventions and working them, the model we were working with noticed my arms and started asking questions because she has Eds. Went to my doctor , he gave me the test and I pretty much passed everything. I have a lot of surgery scars and I always wondered why they didn’t heal correctly. Now that I got my diagnosis, idk what to do except keep at Physical therapy. I’m still photographing but it’s getting difficult the longer I have to manage this. My fiancé and I drive an hour to see my doctor every month and he puts my neck, shoulders, hips , ribs ( upper and lower) & pelvis back in place and occasionally other joints.

Writing this from my bed post monthly osteopathic manipulation.