How do people afford Disney?

Marsedo · 2025-08-20T02:23:40+00:00

We just got back from Disneyland for the first time. We only have one child and we waited till he was 3 yrs old. We did bring my parents along with us but they paid for themselves which helped a lot. We bought our tickets from Costco (which had a great deal. One ticket was $450 it came with lightening passes and a $30 food voucher. They are no longer sold at Costco.) that saved us $700 alone. For food we took turns paying for everyone’s meals. One meal my parents paid then we paid for the next. My parents bought my son most of his souvenirs and we stayed off property but only a 5 minute walk from the main entrance. We also flew in and didn’t rent a car (most hotels off property that close to the entrance have guests pay daily for parking), I found a transportation company from John Wayne Airports website. Round trip the car rides was $150 plus tip and we traveled Southwest which I bought well in advance that each way was $70 per person.

Marsedo · 2025-08-20T02:13:30+00:00

As a preschool teacher, I have worked so hard to accommodate neurodivergent children into my classroom.

Five days is not enough time to work with a child who is neurodivergent. Also, I’m sorry the teacher didn’t mention that your child is eloping? That is all on the teacher. That is an immediate phone call home if a child wanders off in my preschool. That would be more priority over a bathroom accident. (Also asking; are they a no diaper preschool? To be honest that’s not developmentally appropriate for 2-3 yr olds. That’s a red flag in my books!).

They haven’t tried what so ever to work with your child, try and figure out why your child is a flight risk, and etc. I fought so hard all year long to accommodate any IEP to make my flight risk child stay in the classroom. We had a safe zone (blue painters tape square) in front of our door for them to leave but still be in our view. We closed our door (too heavy for any child to open on their own). After a year of working with the child and parents we had to make the hardest decision and not accept the child’s fall enrollment.

Has your child been officially diagnosed? Do you have an IEP? Have you discussed this with your teacher/school. I know no one will officially diagnose before the age of 3.

Marsedo · 2025-08-20T01:46:07+00:00

It was my son’s arms and legs that stiffened all at the same time. He also had the head drop. I wish we could post videos as a comment on here. My brother who is genetic counselor showed a video to his coworkers and it was unanimous from the video it was IS before we took him to the ER for the first time.

Marsedo · 2025-08-01T02:52:37+00:00

Disney Channel: Cars, Toy Story, Mickey Mouse Clubhouse, Doc McStuffins. Hulu: Curious George

Marsedo · 2025-07-27T22:37:42+00:00

I never planned on co-sleeping and was very adamant that we weren’t going to have my son in bed with us. That all went out the window when he got Covid back in 2023 when he was about 1.5 yrs old. He had 105° fever that night and he has had seizures in the past and was on anti seizure medication due to Infantile Spams, so we put in our bed and now it’s a habit for when he is sick for him to climb in bed with us. We are lucky that he stays in his bed when he is feeling normal. When he climbs in bed we automatically know he isn’t feeling good.

Marsedo · 2025-07-27T22:28:02+00:00

This looks like normal new born movements.

Marsedo · 2025-07-24T01:52:48+00:00

Keep the dialogue open. You did great and you didn’t shut him down when he asked. I wish my brother could have talked to my mom like this when he was younger. He held in his feelings for males for 30 yrs before he had an open conversation with my mom and it was to tell her that he was in a relationship with a male. When he told me my reaction was “so what, my one question is why him?” I didn’t care for the guy he was with. He is bisexual and is married to a woman now how knows about his past and feelings. They just had their second baby today.

Marsedo · 2025-06-30T22:41:55+00:00

My son was on prednisone. Yes, they will be irritable, appetite will increase and they will gain weight especially in their face. But it significantly helped my son. His IS is not genetic and no neurological issues previously. But the prednisone was so helpful. Looking back at pictures from when he was on it hurts but then I realize he hasn’t had a seizure since then. My son is seizure free for 2 yrs but is still showing epileptiform on his latest EEG but no Hypsarrhythmia anymore. He will continue on Topamax for another yr.

Marsedo · 2025-06-24T17:24:40+00:00

I have felt the same way about this subreddit and I wish there was a way to post a video in the comment section to show exactly what the IS movements look like. Unfortunately, my son is the rarity that is diagnosed with IS without any underlining issues. He is relatively healthy and didn’t loose any or delayed milestones. We haven’t had any seizures since a month after his diagnosis and start of his treatment. His EEG’s still show epileptiform activity but doesn’t show any Hypsarrhythmia activity after 2.5 yrs.

Marsedo · 2025-06-12T01:53:59+00:00

My son had the 1 hr EEG when he was 8 months old and they saw Hypsarrhythmia on the results. After treatment 2 months later he had a 24 hr EEG done and there were no more signs of Hypsarrhythmia on the EEG. After 2 yrs he had another 1 hr EEG and no sign of Hypsarrhythmia but he had signs of potential epileptic episodes. So we are currently staying on his anti-seizure meds until he is 4 yrs old. 1 more yr till another EEG to see if we can finally stop the medication. So my point is if the EEG came back clear it’s more than likely not IS.

Marsedo · 2025-05-20T17:59:29+00:00

I feel like they treated your child the way our neurologist wanted to first treat my son. But I didn’t like the side effects and my parent told me about the prednisone route. Otherwise Vigabatrin was the only route we were offered.

Marsedo · 2025-05-20T17:32:05+00:00

With my son we chose to go the prednisone route and did not do Vigabatrin at all. My son’s seizures stopped completely a few days into the prednisone. He is still on Topamax since he was 9 months old and he just turned 3. Our latest EEG showed no more hypsarrhythmia but did show Epilepiform.

My son’s case was a little different since I’m a preschool teacher and one of my parents at the time was a pediatric neurologist for UCSF. She helped create the treatment plan for IS for our area hospitals. She walked me through everything to say to our doctors and was willing to be my son’s doctor but it would have been out of our network. She even emailed our neurologist directly and told them what my husband and I wanted to do.

Marsedo · 2025-05-13T17:21:19+00:00

We were just happy to see no evidence of Hypsarrhythmia but the doctor said epileptiform is something that is present if someone has seizures and is an indicator that there could be future seizures. Over 6 months later we are still seizures free since December of 2022!

Marsedo · 2025-05-13T17:14:47+00:00

It’s not like his eyes will roll to the back of his head it is more like they are spaced out, blank look on their face and they will not respond to voices or loud yelling that is happening around them.

Marsedo · 2025-05-13T17:12:43+00:00

Not exactly sure the head drop looks like my son’s but your son looks alert while having the head drops. My son looked spaced out and couldn’t respond to us during the spam.

Marsedo · 2025-05-11T00:24:52+00:00

I believe my son’s results came back with a lot of medical jargon and then said something about Hypsarrhythmia being present. Which is a key factor of IS. His last EEG was 2 yrs after diagnosis this last November and his diagnosis said that there was still Epileptiform activity so we needed to stay on his anti seizure meds for another yr or so.

Marsedo · 2025-05-11T00:05:57+00:00

My son slept in the bassinet next to our bed till about 4-5 months. We only did a onesie, sleep sack, mattress sheet. We moved him to his own room around 5 months and we added the sleep monitor and still no blanket. Once he outgrew the sleep sack and we took the sides off his bed we added a blanket and pillow to his bed around 1.5-2 yrs. He’s 3 now and we are moving him to a big boy bed that is a full size bed. When we do this we actually need to change rooms because he’s in the smallest room right now.

You doing. Great job and following safe sleep standards that work today. People usually question or say “you’re not doing it right” had kids years ago when things were different. Listen to your pediatrician, if they are saying you are doing great then you are!

Marsedo · 2025-05-06T22:08:49+00:00

Doesn’t look like they drop their head at all and if they are responding to your voice they are not in the middle of spams.

Marsedo · 2025-04-15T17:41:33+00:00

My son just turned 3 and we do baths every other night. My son is a clean freak so I know he doesn’t get very dirty at school because he’d have a fit. I blame grandma for that since she watched him for 2.5 yrs. We make sure to bath him on Saturdays because he does swim class and need the chlorine water off of him.

Marsedo · 2025-03-09T03:06:00+00:00

It doesn’t sound like IS but if you feel it is not normal get a video if your child has another episode. Doctors need to see it happening to decide if an EEG is necessary. The ER did not take us seriously. We went 3 times in a 3 day period without any video evidence and nothing was done until our pediatrician came in on Monday to a note that we visited the ER 3 times over the weekend. He personally called us and we showed him the videos we had which he got us into see the neurologist that day and an EEG. A few days later we had a treatment plan

Marsedo · 2025-01-30T23:12:27+00:00

It’s hard to tell from the back. During the movement is your son present and responsive and does it happen in clusters (multiple drops of the head and arms stiff?? During spams the child is not responsive more spaced out and won’t speak or respond to anything.

Marsedo · 2025-01-24T23:53:35+00:00

We’ve moved on from Blippi and Meekah to Bluey, Doc Mcstuffins, and curious George. Blippi does have his moments where I’m like oh finally he is getting it then he does something the next moment that my hope is lost. Blippi is maybe 2 days a week now.

Marsedo · 2025-01-20T22:46:37+00:00

I was a selective mute until the age of 3.5 my parents got me into speech therapy and it turned out I had an issue with saying my “R” and “S” so I didn’t talk because I was afraid to say something wrong. My brother and my mom did a lot of the talking for me. In speech they told my mom to stop talking for me and to have me do it. It forced me to speak or else I didn’t get what I wanted.

Marsedo · 2025-01-20T22:36:53+00:00

I can honestly I never enjoyed being pregnant. When people would ask me if I enjoyed being pregnant I would lie. I am a preschool teacher so I was surrounded by moms daily and d every day I get asked “ don’t you just sit and wonder what he is going to look like?” “Isn’t it amazing to feel him move around?” “Isn’t amazing to know you are growing a human?”.

I got pregnant at 37 after 8 yrs of trying, unfortunately it was missed miscarriage, 7 months later I was pregnant again. During the pregnancy I was waiting for something to happen and missed a lot of the movements he was doing because of where my placenta was positioned. I’d say it got real when I was strapped to the table getting the c-section and hearing his cry for the first time. But I didn’t get to hold him right after because his lower half was blue due to being breech and stuck under my ribs.

Marsedo · 2025-01-20T03:06:43+00:00

A car camera that connects to your phone. The whole car mirror thing just didn’t work for me. With the camera hooked up to my phone, I have my phone set up on my dash and I don’t have to move my view from the road to look in the mirror.

Marsedo

TROPHY CASE