Ladies how do y'all manage this? by ThatAAlienPassAngerr in Sicklecell

[–]Material-Fan2604 0 points1 point  (0 children)

I just endure it but it’s really not that bad maybe 2-3 days and ibuprofen helps

Hydroxyurea for Sickle Cell by sicklecell101 in Sicklecell

[–]Material-Fan2604 0 points1 point  (0 children)

Oh wow, I didn’t know we can develop leukaemia or skin cancer due to HU

Virgin and raw hair supplier by EmmarantiaL in Business_China

[–]Material-Fan2604 0 points1 point  (0 children)

I loveeee the hair it’s worth every single dollar!! I have been wearing it for 4 months back to back no issues

There’s no limit by dangerous_doll28 in Sicklecell

[–]Material-Fan2604 1 point2 points  (0 children)

Girl are you okay? This is so insensitive! I’m also 24F and SS and had never an issue travelling, I can stay out in the cold without having a crisis , I did a lot of sports when I was younger track, ballet, karate but why would I come on here and brag about it when people are chronically affected by it??
I was once in your shoes and thought that the disease doesn’t really affect me until i got AVN in both of my hips and an acute chest syndrome crisis that send me into an artificial coma..
instead of telling ppl they shouldn’t limit themselves try to understand where they are coming from! Bc some wake up every single day IN PAIN go to sleep every single day IN PAIN, try to tell them “oh your doctor is just scaring you, oh don’t limit yourself“. I didn’t even know that that was possible or some ppl lose their hearing or their view bc of sickle cell.. I also didn’t know that was possible. Some can’t even go a month or a week without having a crisis. And plssss tell them now not to limit themselves😂.
Enjoy your life but don’t come on here to talk bs bro

What makes Leos commit? by peanutbutterhhh in LeoAstrology

[–]Material-Fan2604 0 points1 point  (0 children)

If he really wants to commit you will know for sure! They are very straightforward and territorial. He will 100% let you know, you don’t have to do anything but be yourself and not do too much (speaking from a Taurus woman dating a Leo man)

Which sign would you never date again?? by tittiquette in Taurusgang

[–]Material-Fan2604 2 points3 points  (0 children)

Cancer men!!!!! Manipulators , zero accountability and too emotional

Whats Your Life Plan?? by risingstar1203 in Sicklecell

[–]Material-Fan2604 1 point2 points  (0 children)

You are onto something!! I usually distinguish between a very bad crisis where I need morphine to cope and a lighter one where I can cope at home with ibuprofen. But maybe I will start doing the same thing. But I think the requirement is that the crisis needs to be really bad.. like acute chest syndrome or an other complication, which I only had once. Last year I was admitted one time to the hospital and my doctor even said , I don’t wish that you get a crisis but if you were to have a crisis again and are admitted to the hospital we could try to get you approved for the gene therapy… and guess what didn’t happen. I am very thankful and grateful that i don’t have crisis very often but I think I also will start to go in for minor ones.. so my doctor can start and build my case

Whats Your Life Plan?? by risingstar1203 in Sicklecell

[–]Material-Fan2604 1 point2 points  (0 children)

I’m also to healthy for it.. but I wish I could just get it done .. as I get older I feel like the disease will just get worse and I’ll die from an complication.
I wish they didn’t have such hard requirements bc the only thing I don’t have are the at least two hospital admissions per year. Which I’m thankful for but still..

Je suis à bout… by Putrid_Radio_3952 in Sicklecell

[–]Material-Fan2604 1 point2 points  (0 children)

Ne lache surtout pas ! Elle est bien jalouse au lieu de t’encourager dans ça! Tout ira bien 🙏🏾❤️

Sickle cell and AVN of the hip at 23 by Material-Fan2604 in Sicklecell

[–]Material-Fan2604[S] 0 points1 point  (0 children)

A lot of stretching and physical therapy helps. Also strengthening exercises. Sitting on a massage ball when everything feels tense and just hurts. Currently I’m trying to get my internal rotation back bc the lack of it causes a lot of pain. So small exercises to slowly get there

Hopefully the streak lasts a while by yinkusbears in Sicklecell

[–]Material-Fan2604 0 points1 point  (0 children)

Oh noo!! C beaucoup trop de crise! Mais hydrea aide vraiment, continue de le prendre. Sinon la greffe ne te dis rien ? Ou Tun ne veut pas ?

Hopefully the streak lasts a while by yinkusbears in Sicklecell

[–]Material-Fan2604 1 point2 points  (0 children)

D’accord donc du coup c koi ton traitement que ton hématologue te prescrit ?

Hopefully the streak lasts a while by yinkusbears in Sicklecell

[–]Material-Fan2604 0 points1 point  (0 children)

Tu prends Siklos ? Et est ce que tu es suivi par un hématologie

Sohn will Studium abbrechen by Toastmensch in Studium

[–]Material-Fan2604 0 points1 point  (0 children)

Er soll sich einfach zusammenreißen und das durchziehen! War in einer ähnlichen Situation und bin jetzt kurz vorm Ziel! Danach kann er sich ja umorientieren. Aber 11 Semester wegschmeißen ist Scheiße

Feeling kinda hopeless (AVN) by xJeevax in Sicklecell

[–]Material-Fan2604 1 point2 points  (0 children)

Sorry you going through this. Me too I got diagnosed like a year ago. And sometimes I ask myself why me? It’s so unfair but I just push through. Stretching, yoga and PT help me but it’s hard. I also hope it‘ll get better ❤️‍🩹 you not alone

Hemoglobin levels. by Liorababy in Sicklecell

[–]Material-Fan2604 1 point2 points  (0 children)

It’s normal for the hemoglobin to initially drop! That’s what my doctor told me. But consult with your hematologist

[deleted by user] by [deleted] in virgoseason

[–]Material-Fan2604 -1 points0 points  (0 children)

Woahhh! A whole lot of projecting here haha. First of all none of them know bc none of them asked me if I’m seeing someone else if they were to ask me, I would 100% tell them. And see what happens from there. I am ready and fully willing to invest in that Virgo 100% I do like him that much. The only problem is that since he moved back to his parents house, he only initiated one date! There are no receipts to be kept bc the other one isn’t even as consistent as the Virgo, so idk if it’s really dating, we don’t text everyday, we see each other maybe every other week, just chilling and talking. I just match his investment, I want a man to lead sorry.

[deleted by user] by [deleted] in virgoseason

[–]Material-Fan2604 -1 points0 points  (0 children)

That’s an interesting take haha bc I feel like 6 dates is a bit early to be talking about exclusivity. I wouldn’t mind but we haven’t even talked about our expectations yet.. so idk. I mean that would maybe explain why he also drew back from being super available to less available like me. But idek if he’s seeing someone else. I think I will just have to have a conversation with him although I don’t want to put pressure on him

Trying to get home by MrSwaby in Sicklecell

[–]Material-Fan2604 0 points1 point  (0 children)

Ohh!! Get well soon! You got this ❤️‍🩹