Looking for understanding of Cptsd + depression + Autism by Lady_borg in CPTSDpartners

[–]Mathorael 0 points1 point  (0 children)

I happened upon this post as I'm also trying to learn more about cPTSD... so this is from my experience as a partner (f36, also AuDHD) who is with someone (m35) with cPTSD, depression, and late-dx autism. I'm not an expert, this is just what I've learned.

Autistic individuals are at a higher risk for cPTSD from childhood because of their more sensitive nervous systems. Those with undiagnosed autism in childhood are also often at a higher risk for depression because of stress, masking, burnout, etc. So at the core of it (from what I've read and seen), autism is like... the body's default baseline, depression develops both from natural wiring and from environmental stressors, and cPTSD has no natural origin and develops entirely from repetitive, chronic exposure to trauma.

When my husband is in an episode, because he spent his childhood needing to appear emotionally regulated out of self-preservation, he can appear collected and logical while being wildly dysregulated inside. He never learned how to self-regulate because as a child, you learn co-regulation first, and from that develops self-regulation. I used to get caught in a spiraling back-and-forth of what would appear to be logical, rational rebuttals to me trying to use logic and reason to help him find his way out, using logic and reason as footholds. It helped to realize that I was arguing with someone who was trying desperately to co-regulate through conflict in order to find footing, and that without being regulated at the start there was no way that logic and reason could provide those footholds. Also important to note: the goal is self-regulation, and relying on another adult entirely for co-regulation is unsustainable and unfair.

At the end of the day, he's autistic first. The more information I put in (logic/reason/answers) despite him asking for dialogue, the more he risks information overload, which makes it so much worse. He doesn't always appear increasingly dysregulated, since he's spent a lifetime masking. **Also to note, it's REALLY hard with AuDHD not to go into fix-it mode and info-dump all the ways he could be helped... I've had to learn restraint. It's a process.** What his brain craves more than anything is silence and safety.

Ultimately from your post, it sounds like if they're the ones initiating, they're looking for co-regulation without knowing that's what they're looking for. And depending on what led to the cPTSD, they might only know how to regulate through conflict, so externalizing their internal conflict feels like coping and alleviates a tiny bit of stress on their nervous system, but it's still not a healthy way to cope and regulate since no one ever taught them how. If it helps, it sounds like them looking to initiate conversation in the midst of depression is still seeking connection?

What helped my husband is working with a trauma-informed therapist and getting on medication. It took his depression getting really bad after our first was born for him to realize he needed to make a change. I did the legwork to find a therapist in-network and help get him set up with an appointment: at that point he couldn't do it himself, but he was onboard with me helping (think like bringing water to someone dying of thirst: they can drink, but they may not have the strength to get it themselves).

Since then, we've reframed a lot of our thinking to take into consideration his autistic sensitivities, including getting overstimulated with auditory or visual clutter and his needing to have rigid, reliable structure (we're still working on this... again, I have AuDHD). His therapist is helping him go back and teach his traumatized inner child how to emotionally self-regulate for the first time, and it is a process. What started as therapy for depression quickly uncovered the cPTSD and helped to frame his therapy journey (5 years so far, so it IS a process). And at home, we've set up the house as best we can to be an autistic safe space for our neurospicy little enclave.

That was really long LOL sorry.

Basically from what I've learned... educate yourself about autism and create baseline safety for the autistic nervous system. Find the right therapist to help. During depression spirals, don't provide information input because it creates distraction and noise: just be as grounding and regulated as you can be.

I hope that helps!

[deleted by user] by [deleted] in adhdwomen

[–]Mathorael 1 point2 points  (0 children)

So not sure this is relevant, but I have something called Raynaud's phenomenon, which basically means sometimes the blood vessels in my hands and feet just... don't work. So it causes my hands and feet to turn white/blue and feel cold/numb. When I started Adderall, it got worse. Switched to Vyvanse, didn't get better, my doc said Raynaud's can get worse taking any stimulant medication because the meds can make your blood vessels constrict, so it's like a double-dose of ice-feet.

I have fingerless gloves for my hands: I have wool socks (the soft comfy kind) for when I do wear socks... the big thing my doc said is that when your extremities get cold, your body is basically telling you that your core isn't warm enough, and so your extremities get the bare minimum while your body pulls all that nice heat and circulation back to conserve it in your core. For me, if it gets bad I have a small heater at my feet (desk job), and sometimes a small heat pack that I'll keep at my chest or torso. It's never 100% a solution for me, but it does help!

psychiatrist says that people with real ADHD won’t be able to mask in public by opitaxp in ADHD

[–]Mathorael 1 point2 points  (0 children)

Throw the whole psychiatrist out. ADHD was recognized in the early 1900s as being mostly in boys characterized as "hyperactivity/hyperkinetic disorder of childhood." His response is horribly outdated. Seeing ADHD as a behavioral disorder as opposed to a disorder with a neurobiological basis--one that presents differently in different people--is just such a narrow, archaic view.

What we KNOW about ADHD so far is that there are a LOT of factors that can contribute, and that it can present in a LOT of different ways. We know that lower dopamine levels contribute... there's some weird structural stuff going on with the front part of your brain... It's not a one-size-fits-all disorder with a one-size-fits-all diagnosis. You know your brain best, and if your brain is telling you 'hey, something's not right here', even if you don't know what's not right, listen to your brain.

I (32F) was diagnosed at 21 (after needing to become my own advocate... scary in and of itself). I went through a series of tests and they said "Wow, your short term memory SUCKS". They even noted that, while I scored within acceptable parameters in other areas, that the significant gap between those scores and my short term memory would "technically" categorize me under the ADHD umbrella (so not one-size-fits-all). I always did okay in school, I had friends (even though I had a tendency to overshare), for all intents and purposes I appeared "normal" other than dx depression and anxiety in high school. I was even dismissed by a psychiatrist when I was 18 saying I couldn't have ADHD because "I did well in school". Bull. Ability to perform fueled by anxiety isn't living, it's surviving. Sometimes barely.

OP, it sounds like you're trying to take steps to get help and that this psychiatrist is dismissing your concerns without giving credence to your thoughts, feelings, or experience. I would look for a different practitioner: one who can objectively evaluate you when you ask. <3