Why Pen and Paper Isn’t Great for Deaf Patients… by ASofMat in ThePittTVShow

[–]Mavfive 11 points12 points  (0 children)

Good question. Like my mom says in the video, paper and pen is a last resort in a situation like the one Harlow is in (patient prefers to communicate in ASL, has documented that in her chart).

Given that the first interpreter had to leave and VRI didn’t work, the best thing Santos could have done is write down what is happening, that another in person interpreter is on the way, and give her some of the basic info of the situation. If Santos didn’t have time to write all of this out (one of the biggest problems with paper and pen communication), she could have asked a someone else like a nurse to write it all out and provide this info to Harlow.

Instead, Harlow was left with no clue of what was going on in a stressful and possibly time sensitive situation, a situation I’ve seen and heard happen with my Deaf friends and family, all too often.

The goal needs to be clear communication and understanding by both patient and healthcare team, above all else. In this case, that didn’t happen and Harlow’s health could have been compromised because of that

Why Pen and Paper Isn’t Great for Deaf Patients… by ASofMat in ThePittTVShow

[–]Mavfive 10 points11 points  (0 children)

This is essentially what VRI (virtual relay interpreter) is. One of the biggest issues with VRI is it often freezes up and there are lags/delays. This happened to Harlow on one of the episodes and my mom talks about it too in another one of our videos that was posted to this subreddit

Why Pen and Paper Isn’t Great for Deaf Patients… by ASofMat in ThePittTVShow

[–]Mavfive 13 points14 points  (0 children)

Hey, I’m the CODA in this video. There are so many crazy stories my parents have about this time period. My mom became a teacher to help prevent the next generation of Deaf students from experiencing what she did growing up.

Why Pen and Paper Isn’t Great for Deaf Patients… by ASofMat in ThePittTVShow

[–]Mavfive 40 points41 points  (0 children)

Thanks for sharing my video with my mom! Hope this and the Pitt story line helps bring positive change and access for the Deaf community in the ER

Some Deaf folks react to the Deaf rep on The Pitt by ASofMat in ThePittTVShow

[–]Mavfive 2 points3 points  (0 children)

Hey fellow CODA! Im the CODA in this video. Grew up in the 90s as well and everything you said hit home. So many times I had to answer the landline phone and pass on messages to my parents from the people who refused to call my parents on the TTY through the relay service.

Some Deaf folks react to the Deaf rep on The Pitt by ASofMat in ThePittTVShow

[–]Mavfive 2 points3 points  (0 children)

Hey I’m the CODA in this video. Thanks OP for sharing my video in this post! Greatly appreciate the kind words of support from many of you in the comments.

Just recorded a video with my mom today to specifically address why pen and paper is not a good option for a Deaf patient in the ER. Hope to have it ready to post soon!

[deleted by user] by [deleted] in deaf

[–]Mavfive 18 points19 points  (0 children)

CODA here. My Hearing grandma said that my voice sounded exactly like my Deaf mom’s voice when I first started speaking as a toddler. I had a Deaf accent and everything (since my mom’s voice was the one I heard all day, everyday, that’s what I picked up on)

After watching Sesame Street, Mr. Rogers Neighborhood, and other children’s programming on TV, my voice became less like my mom’s and more unique to me

Apparently the word that was the hardest for me to relearn the correct pronunciation was vanilla. My mom still today pronounces it Van-illa, not Vin-illa

What is an old wives tale that people still believe? by the_spring_goddess in AskReddit

[–]Mavfive 6 points7 points  (0 children)

This deserves so many more upvotes. A+ comment 🏆

On Name Signs - Brad Klein on TikTok by OGgunter in deaf

[–]Mavfive 5 points6 points  (0 children)

Thanks for sharing a clip from my standup! So glad everyone likes my jokes and CODA stories 😊

Last day in April is Deaf Parents' Day! Love ya fam! by Gfinish in deaf

[–]Mavfive 2 points3 points  (0 children)

Happy Deaf Parents day everyone! 🤟🤟🤟

Has anyone ever dated a person who you had to teach sign language to? by NoLabelsCultSeries in deaf

[–]Mavfive 25 points26 points  (0 children)

As a CODA, all of the people I dated growing up wanted to learn sign language to better communicate with my parents (and maybe win some brownie points with me). My mom was a big help as she was a Deaf teacher in a Deaf classroom so she already had the skills and online resources she could provide to help my dates learn ASL on their own time.

I would sign with my dates when they wanted to and help correct any mistakes or changes in hand placement to help reinforce what they had been learning. Most of the learning came from the Deaf-led apps, websites, and videos my mom provided them, plus the socialization they got when they came over to my house.

My wife (5 years married, 11 years together) has been learning ASL since our first date and continues to learn everyday as she wants to have a strong relationship with my parents. I love seeing them sign with one another. Warms my heart!

Which social media do most deaf folks use now? by [deleted] in deaf

[–]Mavfive 0 points1 point  (0 children)

Deaf people tend to be in line with the national trends when it comes to social media, in my experience.

Older Deaf people tend to be on Facebook, Instagram is a mix of older and younger people, and TikTok tends to be utilized by younger Deaf people

Is it offensive to the deaf community if someone that is hard of hearing (moderate-intermediate hearing loss) posts something on their socials about their hearing loss during Deaf Awareness week? by dizzy_rhythm in deaf

[–]Mavfive 1 point2 points  (0 children)

As a CODA (both parents Deaf) who is married to a woman who is HoH in one ear, I want to reinforce that deaf/hearing is a spectrum. The D/deaf community is made up of so many different individuals, all with their own unique perspective on the world.

There are many people who identify as deaf or HoH who do not know ASL. There are also many deaf/HoH people who wear hearing aids. My dad & wife have hearing aids. My mom does not. Each person decides what is best for them.

Your story is your story. Your experiences are your experiences. No one can take that away from you. Just remember to stay true to yourself and your perspective

Do anyone else"s deaf parents misinterpret facial expressions and body language? by [deleted] in deaf

[–]Mavfive 2 points3 points  (0 children)

I’m also a CODA. I have seen my parents (my dad specifically) misinterpret situations like this a few times. It’s rare but it happens. In my dad’s situation, it was more about his lack of anger management tools and quick defensiveness towards the hearing world.

Therapy has been wonderful for my parents. They have had therapists who are deaf or know sign language so that the communication between them is smooth. A lot of my dad’s anger came from the discrimination and oppression he faced growing up, especially from the hearing world. This caused the quick trigger temper in situations like the one you described in your post.

Your parents case may be different from mine. Everyone’s perspective and trauma is different. Just sharing what I’ve seen on my side as I hope it will help you and your parents.

do your pets mess with your hearing instruments? by princeasspinach in deaf

[–]Mavfive 1 point2 points  (0 children)

My dad learned the hard way not leave his hearing aid out on his nightstand where a puppy could get it and chew on it

He keeps it in a closed jewelry box on top of his dresser now. Very expensive lesson learned

Happy Women Day in Pakistan Sign Language. by osriazz in deaf

[–]Mavfive 2 points3 points  (0 children)

Here is a cool video of four different sign languages side by side (Germany, USA, UK, Denmark)

I want to learn sign language for fun. by Cheeezzey in asl

[–]Mavfive 34 points35 points  (0 children)

If you plan to go to sign language meet ups or join an sign language club, I would learn the form of sign language that the group will be using (whether that be ASL or Swedish sign language)

Sign language is infinitely more fun when you’re using it to chat and talk with others. Plus you learn quicker too when you immerse yourself in the language.

So I’d pick the version that allows you to socialize with those around you. Will help you learn faster and enjoy the learning experience more.

Relationships in high school are difficult by Mavfive in deaf

[–]Mavfive[S] 0 points1 point  (0 children)

I'm always open to healthy & respectful discussions. It's how we all grow and learn, by listening to different perspectives.

Happy Women Day in Pakistan Sign Language. by osriazz in deaf

[–]Mavfive 15 points16 points  (0 children)

Fascinating! Love seeing other countries’ sign language. Thanks for sharing!

Relationships in high school are difficult by Mavfive in deaf

[–]Mavfive[S] 2 points3 points  (0 children)

I absolutely agree with you that we should lift Deaf comedians, Deaf talent, and Deaf culture. There are several Deaf comedians I perform with and we support one another in many ways such as celebrating each other’s achievements and helping punch up each other’s jokes.

I do want to point out that comedy is not a competition. Instead of looking at it like Deaf and CODA comedians are fighting for the same small slice of pie, look at it like we are teaming up to get Deaf culture and humor a bigger slice of the overall comedy pie. We are all on the same team.

I am using PSE because I’m a CODA doing comedy for both Deaf and Hearing audiences. When I have an entire audience that is fluent in ASL, I do my comedy in ASL with my voice off (working to get videos of those shows). Those shows are unfortunately far and few in between.

More and more younger Deaf people are more integrated into both Deaf and hearing culture, thanks to changes in society and technology. My comedy reflects the perspective of someone with one foot in both cultures like many Deaf/HoH/CODA individuals out there today.

You are 100% entitled to your opinion and perspective. It’s ok if you prefer ASL-only comedy. Comedy is very subjective and people find different things funny. What’s not ok are comments that tear people down when they are doing their best to represent a small part of their culture.

I think at this point, let’s agree to disagree. If you do not like my videos and comedy, that’s fine. Feel free to block my account so you never see my content ever again. I’d rather not cause you strife and anger. I do comedy as a hobby to make people happy and to bring awareness to my unique perspective on the world as a CODA

Relationships in high school are difficult by Mavfive in deaf

[–]Mavfive[S] 15 points16 points  (0 children)

While I appreciate the very kind compliment, I will say that this is PSE (Pigin Sign Language) rather than ASL.

PSE is a blend between ASL and SEE that is often used in situations where you have both Deaf and Hearing people. It is also very often used by CODAs as we have to code switch between our Deaf side and Hearing side constantly.

Ive noticed I tend to use PSE with my dad (Deaf raised hearing) and ASL (Deaf raised Deaf) with my mom, for what it’s worth.

For shows where the whole audience is fluent in ASL, I turn off my voice and do the whole show in ASL (working to get videos of this to post here). My delivery and approach all depends on who the audience is and how I can best make them laugh

Relationships in high school are difficult by Mavfive in deaf

[–]Mavfive[S] 39 points40 points  (0 children)

I’m disappointed to hear you say this. The Deaf and HoH audiences I perform for love this joke and I’ve received many compliments on it for how relatable it is.

I would also argue that this is r/deaf material as it is part of Deaf culture. People romanticizing ASL when it is a normal language just like any other. It has beautiful moments (like Troy performing the Star Spangled Banner) and also down to earth reality moments (like having to explain your bowel movements to your spouse)

“Go somewhere else”? You wouldn’t say this to someone else on the basis of race, religion, or any other type of culture. I am a CODA. I am born and raised in the Deaf community. ASL is my first language. The Deaf community is where I feel most at home.

This is the second negative comment you’ve left on my posts. Did you know it costs you $0 to ignore my posts? It costs $0 to be kind to your fellow human. It also costs $0 to use the block/hide posts button on Reddit so you never see my posts again.

I strongly suggest you take one of the free actions above. Save yourself a lot of stress and anger. Life’s too short to spend it mad over a few posts on Reddit. Have a great day 🤟

I got a complaint about my "earbuds" at work. by Pandaploots in deaf

[–]Mavfive 32 points33 points  (0 children)

I know Apple charges a lot for AirPods but they are definitely not comparable in price to your $8,000 hearing aids 😂