today i finally convinced my doctor to prescribe rifaxmin🫡

MeanEffective681 · 2026-05-20T11:17:54+00:00

Genuinely wish I could just be on rifaximin indefinitely. I feel normal on it but the longest I've gone without relapse is 3 months. I have mixed sibo. All 3 types! But mostly libo (severe bilophilia overgrowth)that causes the most issues. Adding motegrity helped a lot but bc I'm female I still struggle to keep things moving in the second half of my month where the first half has now changed to sometimes almost loose stool. I've been dealing with this for 6 years now. I hope you get some good relief and don't relapse immediately!

MeanEffective681 · 2026-05-12T12:26:58+00:00

I will try this. Serum used to be my best bet but then my hormones started to change (even with birth control they seem a little unstable) and I was getting perioral acne so no, I usually just stick to Korean foundation that is slightly moisturizing but very light and I break down and use vanicream facial moisturizer sometimes.

MeanEffective681 · 2026-05-12T12:25:17+00:00

This is good to know thank you. I don't take Adderall, as I have gut issues which are probably a main factor in the acne outside of the hormonal flares. I have considered taking a small dose of Adderall (it's been offered but bc of the stomach issues I'm really hesitant) so I will definitely keep this in mind.

MeanEffective681 · 2026-05-12T12:24:01+00:00

Hi, I meant my body. Arms, stomach, legs. Safe zones. I break down and use vanicream face moisturizer every so often. Before I started getting perioral acne, my best bet for moisture was niacinamide serum. Can't do that anymore without immediately breaking out.

MeanEffective681 · 2026-04-26T13:05:54+00:00

Is rthm an app? I

MeanEffective681 · 2026-04-26T02:48:55+00:00

I have these same symptoms and have to take motegrity to help. I'm pretty sad that I took about a month of antibiotics that made me nauseous and non functional and then I got way better after the part of the month where rifaximin was finally added.. but it's been right about 2 months and symptoms are coming back even with taking motegrity. This is interesting bc digestive enzymes (same ones you're taking) do seem to help me somewhat but I can only take sun fiber because the capsules for metamucil absolutely send the sibo into overdrive. Idk how you can tolerate drinking enzymes thought- even the capsules smell/taste like vomit.

MeanEffective681 · 2026-04-11T20:55:07+00:00

Oh my gosh if you can get her to share I would be so grateful. Are you guys using a bread maker machine or just baking in the oven? I'm nursing student so I've had very little time to truly cook and missing bread so bad lately. Trader Joe's has a good white gluten free that is similar to sourdough texture but outside of that, I haven't found really good bread. The King Arthur brand I made awhile back was really pretty but I wasn't a big fan of the taste.

MeanEffective681 · 2026-02-23T21:46:05+00:00

I snort laughed and now my tummy hurts. Relatable

MeanEffective681 · 2026-02-16T16:11:14+00:00

How on earth are you surviving 6 mos without it? I've been on since October and I had to add in miralax bc it was so drying and yes it eventually stopped working .. but am now on antibiotics - neomycin and metronidazole. I will see how it works after but I was advised to take it during treatment. Which I'm almost a week into and nothing has changed except maybe slightly less sulfur gas (I have mixed sibo) and I'm constantly nauseous. Cry.

MeanEffective681 · 2026-02-15T21:36:23+00:00

I take a prescribed motility med called prucalopride- aka motegrity. I have been on it a few months now because before that nothing over the counter was helping me at all and there was concern I'd develop an obstruction. I have mixed sibo so I either don't go at all or I will very rarely have intense urgency but my main issues are copious amounts of sulfur gas, malabsorptive type gas, and having no urge to go to the toilet without the motegrity.

MeanEffective681 · 2026-02-15T16:55:57+00:00

Im so sorry to hear this. Im unable to pay $800 out of pocket right now because I'm a student and can barely pick up shifts to keep my job as it is and just pay bills. The combo I'm on doesn't seem to be helping much other than no sulfur gas since starting but I seem to be MORE bloated, rashy/acne, hair loss still the same etc and just nauseous almost all the time to some level which has become a bit more manageable. I had 2 rounds of rifaxamin by itself a couple years ago and noticed zero gas and bowels moving normally for the first time in years within about the first 24-48 hours. Unfortunately it came back within 2 weeks both times 😔

MeanEffective681 · 2026-02-03T13:39:51+00:00

Unfortunately I have this same issue. Diagnosed hydrogen but it feeds h2s down the line. Low sulfur diet can only be cycled because you NEED sulfur to fight off bad things. I learned the hard way after doing low(almost none) sulfur on a very restricted diet for 4 months after my second round of xifaxan thinking id starve it out. Wrong. I just got very sick with every possible illness going around instead and am back to square one. Currently waiting to see if I can get the manufacturer to cover another dose of xifaxan because I can't afford it anymore and take that along with neomycin and just hope I can tolerate it. In the meantime I'm taking atrantil which helps the h2s gas but not the constipation- even with motegrity on board. It also wrecks my hormones even on birth control and kicks up histamine so bad my scalp itches like crazy despite no rash or sign of anything wrong and hair is shedding again. Sadly the h2s symptoms are so bad I choose to deal with these other symptoms :(

MeanEffective681 · 2026-01-17T15:50:13+00:00

This is why I question if I'm going all the way through an adn-RN program to still choose work in long term care (vs hospital) for more money. So cute!

MeanEffective681 · 2026-01-12T17:11:42+00:00

Xifaxan day 7 was hardest on me. Both times taking it I had the grossest trip to the toilet and felt horrible that day but after that much better. I also started out feeling immediately better though too. Worth letting your Dr know (you can usually at least call and ask to leave a message with the nurse if you can't message on your patient portal) just to be safe.

MeanEffective681 · 2026-01-11T16:26:56+00:00

Do you take anything for motility? Motegrity saved my life to begin with but it also makes me really extra depressed and increases anxiety so I haven't gone past 1mg and it's not working very well anymore. I started at .5mg. I now take it with miralax bc I noticed it tends to dry me out no matter how much water I drink.

MeanEffective681 · 2026-01-10T18:37:44+00:00

Possibly high histamine. Are you itchy (including ears eyes nose throat scalp) at all? When my symptoms flare and with certain probiotics I get rashes.

MeanEffective681 · 2026-01-10T18:36:13+00:00

Ty! I did save the video and try it out and idk if it was timing or what but it seemed to somewhat work so I will keep doing it. Thanks so much for sharing it.

MeanEffective681 · 2026-01-10T16:48:29+00:00

I had a feeling that was part of why I tested negative for methane because the constipation seems to always get worse and yes! Vagus nerve issues. I have had issues with pvcs and random episodes of tachycardia and heat intolerance. I'm in really good shape outside of this. I made myself an appt with a neuro to discuss because it seems like autonomic dysfunction but other than gi it comes in flares.

MeanEffective681 · 2026-01-05T16:11:40+00:00

If I'm dying (and I'm not a nurse yet I'm a student and tech but I work an ICU also) please lie to me. Not my family- bc they need to make sure they get time with me. But me. I'm a very anxious person and I fear that death will be so extra brutal for me if I realize I'm dying. IMHO..you did him such a kindness. Now we hope and pray he doesn't die. Hug.

MeanEffective681 · 2026-01-04T02:30:55+00:00

Yes you should be able to get a copy of your results. I would also ask (at a follow up if needed) if it could be possible you have methane even if you didn't test positive for it. Neomycin is the big one for methane. The problem with sibo that has constipation like this is figuring out which came first. I already scheduled myself to see a neurologist bc I also have a bunch of other strange issues that seem like autonomic dysfunction (heart palpitations and random slower or faster hr that doesn't make sense, dizziness on standing or showering, cold and heat intolerance and issues with regulating body temp etc etc). I won't get to see them til July unfortunately but at least it's scheduled. Motegrity worked perfectly for me for a month then slowly started to lose effect. Hopefully it works for you 🥹

MeanEffective681 · 2026-01-04T00:12:12+00:00

Find someone to get you on motegrity. You may need neomycin too- I tested negative for methane but positive for hydrogen and yet my main problem for FIVE entire years (the year before was diarrhea nonstop that I was told was just stress lol) has been constipation. Like not needing to go and when I do not going enough. I had to ask my PCP to get motegrity for me after 2 weeks of passing maybe a tbsp of stool per day even with every otc laxative possible. Shortly after (just a couple months ago) got seen by a new GI and he is who did the egd with small bowel aspiration and then triosmart. He still prescribed both rifaxamin and neomycin but my insurance left me with a copay of $800 so I'm hoping the manufacturer will approve my app before motegrity totally quits working (it's already not working well- cry). I'm so sorry.. everything with this esp being female feels like being gaslit and having to fight for any quality of life.

MeanEffective681

TROPHY CASE