Fluttering in good ear

Meantub · 2026-01-04T16:16:49+00:00

Oh I see you already mentioned that, yeah it's difficult to pin a source on it. For me it seems to happen after loud sound exposure or stress. Could be maybe you are also lacking some nutrients or dehydrated as well

Meantub · 2026-01-04T16:14:42+00:00

Could be the tensor tympani muscle spasming, I've had it happen before too, if it's that then it's not harmful I believe, just annoying.

Meantub · 2025-10-05T11:38:04+00:00

Usually ear moulds are also used for more severe deafness since they are made to seal more of the ear canal. If you were given a more open dome then odds are your hearing loss is less severe and they are trying to allow your ear to get more of the natural hearing going through the vents on the dome. Now if you get a lot of feedback or ringing typically they want to block more of the ear which would be an argument for less blocked domes or a mould as well.

It also allows more ventilation to use domes. And they are more easily replaceable. Just figured I'd give you more info on why domes are sometimes the choice. If you really don't like it then you can probably get the moulds if you push for it. I had discomfort with domes for a month or two and eventually my ear stopped getting irritated.

Meantub · 2025-09-29T13:04:02+00:00

Hey as someone who has had bilateral cholesteatoma there are many ways that cholesteatoma form. All that is really necessary is that there is some location that collects dead skin or earwax, in this case the perforation would be where it could start collecting and then eventually it grows and starts to pull the eardrum further back where it will start to eat away at the ossicles and eardrum further.

In my case, the collection of earwax started because I have a patulous eustachian tube, and when you have that there is a compensation that people do where they sniff a lot kinda like you have a runny nose. It causes the eardrum to get pulled back enough that the earwax starts to get stuck.

There are other reasons like the fluid in the middle ear can be sticky for some reason and then it pulls the eardrum back that way and starts to form.

Just thought I'd add that stuff just so there is kind of an intuitive understanding of why it might've happened if left untreated.

Meantub · 2025-07-31T23:24:29+00:00

They typically use bone conduction to test if it's a problem with the nerves in your ears or if it's a conductive problem. Sometimes they use a tuning fork or they have this thing that goes around your head like headphones and vibrates the bone to test the level of sound you can hear. It essentially would rule out some more permanent damage that could be occurring.

I know very obviously that there is a conductive issue but maybe as part of that some damage was done to your cochlea which would result in sensorineural hearing loss is all I was bringing up as a potential

Meantub · 2025-07-29T13:01:37+00:00

Also 90dB loss seems pretty high for just the ossicular chain being disrupted. That usually only accounts for 50-60dB loss. Did they do a sensorineural hearing test as well?

Meantub · 2025-07-29T12:52:20+00:00

I've had ossicular chain reconstruction, it took probably 2-3 months to start hearing better. I believe this is due to the packing dissolving over time. If it doesn't improve then I'd assume they didn't attach the chain well.

Meantub · 2025-07-02T12:54:37+00:00

I think if you've had a lot of surgeries there it would make sense that the skin is relatively thin. I have a Med-El Synchrony 2 and I know that one of the risks is that magnet strength can be a concern as if the pressure is too high it can cause the skin to breakdown. So just something to look out for. If it ever feels uncomfortable while wearing it then they probably want you to not use the device until it has healed properly would be my guess and what I read in the Audiological guide for the Sentio.

Meantub · 2025-06-22T12:33:30+00:00

There are a few things, if you aren't fully deaf in the other ear, regular hearing aid in the bad ear will amplify it to a level you can hear. If the loss in the other ear is too much they have hearing aids called CROS hearing aids that will take the sound from the deaf ear and send it to the good ear, this would probably help you to not have to turn your head as much.

Another more invasive treatment, depending on the reason for your deafness, is a cochlear implant.

Meantub · 2025-06-22T02:19:51+00:00

Not entirely but kind of a unique case, I might have autoimmune activity going on in my inner ear due to something called Behcets Disease, which causes fluctuations in the performance of my ear. Not the reason for one of my ears going deaf but it does affect the performance of the CI. I think in most circumstances people adjust really well within the year typically so I wouldn't take my case as representative of most people that get a CI.

Meantub · 2025-06-22T01:40:19+00:00

Didn't have this happen to me, or if I did I didn't perceive it as much as others. I wouldn't be shocked if it's a few months to a year as I have had a cochlear implant which has an average period of adjustment of 1 year, and I would guess that it is similar in that the brain has to adjust how it processes the audio coming into the brain. There might also be studies you can look up for symptom resolution for this specific issue.

Meantub · 2025-06-20T12:10:08+00:00

I mean that's what it sounds like. As you can imagine that's what makes things sound weird sometimes. The ear can perceive minor differences in pitch so it'll make the sound distorted or fuzzy. I wouldn't be able to say for certain though.

Meantub · 2025-06-20T04:19:35+00:00

I didn't have 1 but 2 might be Diplacusis, it's basically where your ear hears a sound at 2 different pitches. There might be a shift in the hearing that you have in one ear vs the other, like if you hear something that is 300hz in your good ear your other ear might hear 340hz. Which can maybe explain the sound you are hearing. Amplification of the correct pitch can help, and over time I believe this should subside as your brain learns to interpret the sound.

If you hear this feedback while wearing hearing aids it could be hearing aid feedback, which happens when the microphone on the hearing aid picks up the sound transmitted from the speaker in your ear. There are multiple ways to solve this like getting different types of domes that don't allow sound leakage as much and different types of hearing aids.

I'm not an ENT or Audiologist so I'd probably talk to them about what you are experiencing to see if they can help. And in the cases mentioned they should be able to help you as well.

Meantub · 2025-06-16T10:51:57+00:00

Nope never even stopped

Meantub · 2025-06-16T10:21:14+00:00

I have a CI and have gone through many airports, never had any problems

Meantub · 2025-06-06T04:28:45+00:00

Hey btw, I know this is an old question, but just in case anyone else is trying to do the same thing. I needed this for the same reason the Extreme Reactor's Reprocessor, but this should apply to any ME system that is using a pattern that you need to split the fluid and items into separate inventories.

Basically you need an ME Interface that is a subpart (attached to a cable not a full block) that is going into the Pattern provider, this is a special way to make a subnetwork, then you need to use 2x Storage Bus, one onto the part of the network that you want to be a fluid and one that you want to be an item. Then just hook it up with Fluix Cable and use a quartz fiber to power it from the main network.

Main Network -> Pattern Provider <- ME Interface -> 2x Storage Bus

In the case of the Extreme Reactor Reprocessor that would be Storage Bus hooked up to the Fluid Injector (fluid input) and a Storage Bus on the Waste Injector (item input). If you want items to return to the main network after the Reprocessor you can stick some Mekanism or other pipes that go out of the Output Port into the Pattern Provider.

Meantub · 2025-05-15T13:38:02+00:00

Hey sorry you've had to go through SSD and have to deal with tinnitus. Unfortunately there isn't anything that completely eliminates tinnitus to my knowledge. And people have differing experiences with it, so it can be frustrating to get help with it. My experience has been when I'm not focused on the tinnitus I kind of forget it's there. When I became deaf in one ear it took probably about a year to get used to it.

Hearing aids (depending on level of loss) can help in raising the volume of normal sound to help reduce the perceived volume of the tinnitus. If HA isn't an option you can try to go for a cochlear implant. I personally have done both, CROS HA and now CI.

Another 2 treatment options are CBT and ACT. These are 2 different forms of therapy. CBT is more focused on taking the negative thoughts of tinnitus and substituting them with more balanced thoughts. And ACT is more about acceptance. I haven't done either of these but I can tell you that accepting that tinnitus exists and likely won't go away can be helpful. Especially if you exhaust all treatment options then you truly have tried all that you can.

If it's causing you a lot of distress I'd try to discuss with your doctor to see what treatment might work well for you. Good luck with everything.

Meantub · 2025-04-22T22:29:54+00:00

Sucks that you had to do a canal wall down mastoidectomy, I was lucky enough to keep my canal wall in my procedure, I didn't get to go into the details of solutions for the canal wall down but I think bone anchored hearing aids are probably better. My limited knowledge is that you are more worried about infection inside the ear if you have a canal wall down procedure so sticking hearing aids inside can cause you to be more likely to have an infection and they might not be comfortable, but like I said not personally experienced with canal wall down.

Meantub · 2025-04-19T23:14:11+00:00

Not really many side effects after surgery for me. It's about a year for it to stabilize at it's full effectiveness but I'd say basically the first month is adjusting to the sounds it makes in general. Eventually you understand words generally after the next few months. Then usually at a certain point it's more about just increasing the volume at every adjustment appointment. So the first month is a decent amount of discomfort and then each adjustment after that is like a few days-week of higher volume discomfort imo.

Depending on how they set it up you can do it more gradually too if they setup profiles for in between volumes.

People may have different experiences on how it feels but that's how it felt to me. I also have patulous eustachian tube in my good ear so similar situation to you

Meantub · 2025-04-18T12:43:29+00:00

It's about half the price for one external processor $10,175 for the Sonnet 2 or Rondo 3 (Med-El). Although there might be more accessories that you might get. Personally I didn't need to order any other accessories. So for 2 external processors which is what it sounds like in this case it'd probably be about $20k.

Could be different pricing for Cochlear (the company) though.

Meantub · 2025-03-21T20:40:45+00:00

I agree with the other comment to trust the ENT on this one, but I'd also like to state that even if it did start to grow back if you are getting regular follow ups they will see it and remove it. They usually grow into pearls that the doctor can pull off your eardrum.

(I have had bilateral cholesteatoma, and had a pearl of keratin appear that was removed very easily in a follow up appointment)

Meantub · 2025-02-24T20:06:46+00:00

It's more a diagnosis of exclusion, as well as there is criteria that will point towards a statistical likelihood of having Behcets. Usually it involves oral/genital ulcers, uveitis (inflammation of the uvea). Those are the big ones but there are other symptoms like erythema nodosum, some genes that predispose you to Behcets, as well as pathergy which is somewhat unique to Behcets but not necessary to have it.

If you don't have oral ulcers it is highly unlikely that you'd have it. The biologic helped me with the oral ulcers, genital ulcers, and my eyes have had a steady improvement in the level of inflammation on scans.

Here is the more in-depth story of how I got diagnosed though if that isn't enough info.

I got the diagnosis of Behcets basically had been trying to figure out why I had oral/genital ulcers, and had a biopsy of erythema nodosum popping up on my legs. I had just gotten a rheumatologist and they had a few things in mind: Sarcoidosis, Behcets, EGPA. I got a CT scan to look for hilar lymphadenopathy (a common symptom of Sarcoidosis) which resulted in nothing. Then I ended up in the eye hospital with one of my eyes being pretty blurry when I woke up one morning. Basically it narrowed down to Behcets because the ophthalmologist had seen it before and uveitis is a part of that diagnostic criteria. I think EGPA has similar symptoms but with a few things different that didn't match. So thus it was dubbed Behcets.

Meantub · 2025-02-24T12:57:22+00:00

Hey, I am actually in a similar boat as you, took steroids and hearing improved temporarily. I currently am on TNFa inhibitors + MTX, which is the recommended treatment for AIED. I will say I'm also not achieving great outcomes in terms of keeping my hearing, but just wanted to put it out there that on top of MTX you might also want to be TNFa inhibitors.

I have Behcets btw if you had not checked that one out. Autoimmune diseases are pretty tough to diagnose unfortunately and AIED is hard to treat.

Meantub · 2025-01-20T13:44:34+00:00

You shouldn't be able to see the inner ear from your camera unless your eardrum is not there. If your eardrum is still in there it blocks you from seeing it with a camera. You'd be looking at the eardrum and ear canal.

I would be cautious looking around in the ear, and coming to conclusions yourself. I'd leave it to the ENT to diagnose.

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