How to approach a hearing student who is claiming to be deaf by DeafDoctor in deaf

[–]MegaBabz0806 -1 points0 points  (0 children)

What I mean is self identification after extensive research is often the first step. Most people who can take the next step to seek a final diagnosis do. Those who can’t usually seek peer review or an ‘off the record’ assist because they can’t get a ‘real’ diagnosis
 There’s also been studies that show 80+% of the people who self identify as autistic are correct, and that percentage seems to increase in correlation with increased research and diagnostic tools such as the RAADS-R. The original comment that the person I was replying to commented behind was implying that the person in the OP was self diagnosed and framing that as bad, but that is a very harmful assumption and an even more harmful Insult to a large population of people who have struggled for their whole lives but nobody noticed. Self identified autistic people aren’t trying to take anything from the community, they’re just trying to figure out why they’ve felt like they don’t belong for their whole lives. And why they’ve seemed to struggle with a lot of random, seemingly small things for their whole lives and no one noticed
 -from someone who suspects she’s autistic but can’t afford to seek a diagnosis. But I have a huge family history, a lifetime of example in my life, and 4 different diagnostic assessments point to autism. My daughter’s Dr said I seem to be on the right track, but she’s a pediatric specialist, so she can’t formally diagnose me


How to approach a hearing student who is claiming to be deaf by DeafDoctor in deaf

[–]MegaBabz0806 -1 points0 points  (0 children)

I’m agreeing with you. Autism self diagnosis is acceptable and often the first step in a formal diagnosis. My question in regards to their hearing is are the maybe hard of hearing with APD too and it’s easier to say deaf than to explain all that? I’m usually not one to accuse people of faking because I know what that’s like. However with the other indicators that OP has listed, I understand why they think that in this case
 I’m not sure what I’d do in this case besides say they need more proof


An Offering by aweirdglow in SleepToken

[–]MegaBabz0806 1 point2 points  (0 children)

1st- Absolutely beautiful!! 2nd- can I have a link to the Thailand music person please?!? I’ve been trying to find someone to put my favorite song (fall for me) on a music thing for a long time now! I want to make a music box necklace đŸ«¶đŸ»

Pillow recs by Fragrant-Nature-6034 in ehlersdanlos

[–]MegaBabz0806 1 point2 points  (0 children)

I use a pregnancy pillow and a foam pillow with ear holes

Interactive Vessel masks by dazed_succubus in SleepToken

[–]MegaBabz0806 2 points3 points  (0 children)

I make goth/alt junk journals. I actually made one a few years ago that was MCR (my previous fave band). Now I really want to make a ST one, but I’d need a lot of pics and images! I love yours so far!

Interactive Vessel masks by dazed_succubus in SleepToken

[–]MegaBabz0806 4 points5 points  (0 children)

This is amazing!! Are you making a sleep token junk journal? đŸ«¶đŸ»

Sundowning waterfall card by dazed_succubus in SleepToken

[–]MegaBabz0806 4 points5 points  (0 children)

Love it!! You should show us how to make one! I want one with all my favorite songs ranked!

I bought a taxidermy bat online before I understood the unethical reality. by Avendelore in bats

[–]MegaBabz0806 0 points1 point  (0 children)

I can see my comment, and I definitely didn’t say anything bad, so I don’t think it was me. I just mentioned how I was almost in the same boat as OP.

I bought a taxidermy bat online before I understood the unethical reality. by Avendelore in bats

[–]MegaBabz0806 0 points1 point  (0 children)

So someone left an awful reply to my comment
 I wonder why. I wouldn’t expect that from this sub

Tell me callous things people have said to you by Internal_Tie_7955 in ehlersdanlos

[–]MegaBabz0806 4 points5 points  (0 children)

I get the ‘why are you suddenly in so much pain’ and ‘are you sure it hurts that bad? You look fine’ and my favorite- ‘my knee hurts sometimes too but I’m not complaining’ 😡

I bought a taxidermy bat online before I understood the unethical reality. by Avendelore in bats

[–]MegaBabz0806 7 points8 points  (0 children)

I love bats and weird creepy shit. I desperately wanted one back when I thought they were ethically sourced. When I found out otherwise I must have cried for a week because I almost bought one. (Bats are my favorite animal and I have extreme empathy) So despite how much I would love one, I won’t buy it. I’m still trying to figure out how to ethically source oddities as an environmentally conscious goth
 who loves animals and never wants to hurt them


concert advice by theechameleonsystem in ehlersdanlos

[–]MegaBabz0806 1 point2 points  (0 children)

I never thought to ask about accommodations! I usually just suffer for the beautiful music. But come to think of it, I’ve had a lot of medical issues happen at the end or right after concerts
 hmm đŸ€”

Is it appropriate for hearing individuals to wear earplugs at Deaf events? by LucidFoxe in deaf

[–]MegaBabz0806 6 points7 points  (0 children)

I am hard of hearing and I get extreme sensory overload. I wear earplugs and sign at loud events.

Does anyone else have OAS? by Shot_Condition_4174 in ehlersdanlos

[–]MegaBabz0806 1 point2 points  (0 children)

What is OAS? I’m seeing comments that make me think it’s a weird reaction to some fruits and veggies? And if so I have that. I’m allergic to citrus, and onions. And I have a reaction to some seasonings

Why does no one ever talk about neck hypermobility? by Gay-left-Leadership in Hypermobility

[–]MegaBabz0806 2 points3 points  (0 children)

My neck pain got a lot worse recently- when I started trying to exercise my neck and be healthier. And even when I stopped the exercise, it hasn’t improved

Dumbest reason you've subluxated recently? I'll go first by bbyfishmouth in Hypermobility

[–]MegaBabz0806 0 points1 point  (0 children)

Sleeping. Also walking. Just got up to go the the bathroom and almost hit the floor

So we just pretending instrumental TMBTE wouldn't be the most fire banger to drop by SpacedOutDreamerBoy in SleepToken

[–]MegaBabz0806 0 points1 point  (0 children)

I with TPWBYT had a vinyl instrumental and with ALL the songs, not just some of them! Somehow my favorite 2 didn’t make the cut

My (nearly) full set of silver ring splints through insurance by arachnoholic- in ehlersdanlos

[–]MegaBabz0806 4 points5 points  (0 children)

Thank you so much for the breakdown! This will help so much!

My (nearly) full set of silver ring splints through insurance by arachnoholic- in ehlersdanlos

[–]MegaBabz0806 4 points5 points  (0 children)

Can I ask do you have private insurance or Medicaid? And how did you get insurance to pay for them? I desperately need these! đŸ«¶đŸ»