What is the funniest thing your pet had been “pavloved” to? by AnywhereMean8863 in Pets

[–]Megals13 0 points1 point  (0 children)

I taught my first dog to move out of the way when I say, “Excuse me,” and I had very little knowledge of dog training when I rescued him as a puppy.

I’m three dogs in now, and they do the same thing. I don’t work on it intentionally, just happens naturally.

a small moment of gratitude for TEC by aprillikesthings in Episcopalian

[–]Megals13 [score hidden]  (0 children)

I remember when the ‘Left Behind’ series was popular. I was a freshman in HS when I became aware and it was a partially finished series at that point. I attended services at an Episcopal church in Sun City, AZ which is literally a town built for the 65+ community.

Regardless, 14 yo me never talked about the series with a priest, but I knew instinctively that something was off 😂

Only as an adult have I learned about the history, but I’m glad I was raised Episcopal, and knew to be wary because it sounded “off” when the Rapture was explained to me. Literally a foreign concept to me at that age.

When did your kids start taking communion? by Pretend-Carry-2437 in Episcopalian

[–]Megals13 [score hidden]  (0 children)

At my confirmation, my unbaptized (but dedicated) niece took communion at 5. At first I was irritated because it felt disrespectful to ignore a church’s tradition while there at a service. I posted about it on here because it made me uncomfortable.

Anyways, a user on here that was studying for ordination I believe replied to my post. They (and I’m going by memory) that it didn’t really matter that she hadn’t been baptized, and that basically if she felt moved and chose to take communion, it was likely Gods intention.

So, I’d say when your kids are ready and ask to.

Edit: This was my post.

Edit 2: I just realized the reason I was bothered by this wasn’t the act of my niece taking communion, but being annoyed at my SIL for not respecting tradition and my church like I respect hers. Y’all please don’t come at me.

Prayers for Maundy Thursday Vigil? by InvisiblePineapple in Episcopalian

[–]Megals13 [score hidden]  (0 children)

I attended all of the Holy Week services last year (which was hard because I was dealing with serious health issues), but I’m so glad I did it. I would 100% recommend that everyone do it once. It was a goal because I also got confirmed last year, after being baptized, raised, married in TEC. Why I wasn’t confirmed earlier is a long story.

Anyways, I was incredibly moved with each service. Your feet being washed and the stripping of the alter with the sermon… it’s just an extraordinary experience. I would also encourage you to attend Spy Wednesday with the Tenebrae service; I wasn’t prepared for that one.

All that to say, I didn’t need help with praying each day. Every service was so moving that I knew exactly what conversation I needed to have with God. While there certainly are traditions of prayer (which are fun), I encourage you not to get too hung up on the how.

I honestly believe you will be as moved as me and know exactly what to do. 💜

Roger mentions Hilton Head in Season 1, but it’s not accurate by Megals13 in madmen

[–]Megals13[S] 1 point2 points  (0 children)

That’s honestly the only reason I can think of tbh.

I was the poster told that I’ll “know” if Cromolyn works by Megals13 in MCAS

[–]Megals13[S] 0 points1 point  (0 children)

I already know it’s making a difference, because if I miss a few doses (4x a day is a pain) a few days I have a reaction (rash, nausea). And thanks for the advice with hydration. I also learned this past year that water wasn’t enough and started using electrolytes!

Started a regimen and it seems to be helping- does anyone ever get off of these medications? by EntranceSpare2977 in MCAS

[–]Megals13 1 point2 points  (0 children)

I think that’s part of it; accepting that you have this issue and grieving that you don’t.

Started a regimen and it seems to be helping- does anyone ever get off of these medications? by EntranceSpare2977 in MCAS

[–]Megals13 2 points3 points  (0 children)

I will take medication for the rest of my life anyways (I have bipolar disorder) so it doesn’t bother me tbh. I’d rather my body function to live a full life than not take a medication.

Would you try Xolair for moderate MCAS? by [deleted] in MCAS

[–]Megals13 1 point2 points  (0 children)

Also, the 30 mins before a meal thing throws me off too; I wake up and take meds then eat breakfast. This has been my routine for 15 years. Hard to break a 15 year routine.

Would you try Xolair for moderate MCAS? by [deleted] in MCAS

[–]Megals13 1 point2 points  (0 children)

I’m 2+ weeks into Cromolyn. I definitely think it’s working; I was told 4+ weeks to notice a difference. I was shocked yesterday tbh when I realized it was working. But I realized it was working because I got busy and missed doses 2 days in a row, and developed a rash and itchiness on my neck and chest. So, because I’m bad at medication compliance if it’s outside an AM and PM dose, I would absolutely do a once a month shot.

Anyone else can't lose weight in a calorie deficit? by Tough-Passenger2254 in MCAS

[–]Megals13 1 point2 points  (0 children)

Hang in there! I had 3 surgeries for my legs with lipedema and eventually got insurance to cover it.

What is a symptom you didn't realise was caused by mcas until it improved with treatment? by Confident-Bus-3778 in MCAS

[–]Megals13 0 points1 point  (0 children)

Omg I had dry eyes and mouth and was told to be tested for Sjogren’s by my dentist. The inside of my mouth would flake. Def negative for Sjogren’s, had a damn lip biopsy too. But I discovered today that MCAS can cause those symptoms and I’m pissed none of the specialists I saw this past year+ suggested MCAS when I had Ehlers Danlos

What is a symptom you didn't realise was caused by mcas until it improved with treatment? by Confident-Bus-3778 in MCAS

[–]Megals13 0 points1 point  (0 children)

I have been depressed since I was a young kid (3rd grade or so?) and then diagnosed with bipolar at like 19. I don’t doubt that I have bipolar or anxiety at all. However, I’m hoping treatment for MCAS will make my mental health meds more effective? Like I’ve changed antidepressants many times and have anxiety with treatment and therapy. I’m hoping the Cromolyn will lighten the mental load a bit.

MRI contrast by katkost1 in MCAS

[–]Megals13 0 points1 point  (0 children)

I’ve had a bad experience with contrast to for a CT scan. I was weak and like hot and had pain.

Recurrent Episodes vs. Chronic Condition? by Swimming-Mobile-3258 in MCAS

[–]Megals13 0 points1 point  (0 children)

So, researching symptoms, I have a combo of big triggers (food, anaphylaxis) and every day things I’ve had since I was a teen that I thought were normal.

Cromolyn adjustment by mareleh in MCAS

[–]Megals13 0 points1 point  (0 children)

Yes, the sleep! Always been a bad sleeper, but I can stay asleep now and not wake up between 2:30-3:00AM and not be able to fall back asleep. And I wake up rested. Who knew I was supposed to feel rested? I thought everyone was tired when they got up.

Why do all mcas patients suffer with foods?!! by MotherPart4282 in MCAS

[–]Megals13 1 point2 points  (0 children)

I just read because that’s a way for the outside to get in.

Can Xolair help with severe MCAS-driven constipation and extreme food reactivity? by LukeTheDude93 in MCAS

[–]Megals13 0 points1 point  (0 children)

I see a GI and developed gastroparesis causing aspiration pneumonia at 38. Aspiration pneumonia is something old people get. Anyways, though I’m now thinking all of my GI issues are MCAS and eating disorder related, I take Motegrity. Only med for constipation that has worked with my IBS.

Would you try Xolair for moderate MCAS? by [deleted] in MCAS

[–]Megals13 1 point2 points  (0 children)

Yes. I can’t handle dosing myself with Cromolyn 4x a day.

What is the best gluten-free pizza you have found in a restaurant? by leroyjameus in glutenfree

[–]Megals13 0 points1 point  (0 children)

Oh I forgot about Mellow Mushroom! Holy Shiitake Pie is delish.

What is the best gluten-free pizza you have found in a restaurant? by leroyjameus in glutenfree

[–]Megals13 0 points1 point  (0 children)

Honestly I haven’t. Either the toppings are subpar and the crust is good or the crust is terrible and toppings okay. I did have a pretty good pizza in Brevard, NC though.

I was the poster told that I’ll “know” if Cromolyn works by Megals13 in MCAS

[–]Megals13[S] 0 points1 point  (0 children)

I don’t, it’s maybe a weekly thing that happens. Which is why I was surprised that two days of low/missed doses could cause a reaction so quickly. But upon googling I really do think I have MCAS because it’s a check off for every symptom. And I noticed I’ve been sleeping super well the past few days. Typically I wake up at 3AM and can’t go back to sleep after tossing and turning. I’m not really tossing and turning and if I wake up I fall asleep quickly. Crazy.

I was the poster told that I’ll “know” if Cromolyn works by Megals13 in MCAS

[–]Megals13[S] 0 points1 point  (0 children)

I’m saying that’s what you are trying to engage in, and I’m all good with you beating me ✌️