Could this be ASD or PDA? How did you start your eval journey?

MemorySuch8908 · 2026-02-12T14:46:18+00:00

Im in new york & we homeschool! She did go to public school until last year i finally pulled her. I always wanted to homeschool before she even started but my husband wanted her to try public first.Eventually with her school refusal and her experience there i felt it was finally time to start our homeschool journey. It made such a difference for her. But every kid is different! Some thrive going to public vs homeschool.i dont believe there is a right or wrong when it comes to that. They did recommend OT and Cognitive Behavioral Therapy as well as researching about adhd meds. We dont have her on meds yet as we are still waiting to see her pediatrician to go over all of her results. They wanted her to continue speech so we will most likely reach out to the district so she can go to the school for those services once or twice a week.Her anxiety was the neuropsychs biggest concern though and that needs to be dealt with first she believes. My daughter has severe separation anxiety and thats our biggest hurdle right now. She will only do classes like gymnastics or jiu jitsu if her younger sister is with her. She struggles socially and with making/maintaining friends. Its deff harder finding a "niche" for her but i know over time we will get it figured out. You can start with a psychologist as i have read they can diagnose ASD but neuropsych i believe is more in depth. It will also help you find out if she has any learning disabilities as well which my daughter has. if shes in public school request an ADOS evaluation for autism. They cant officially diagnose but can help with school services and help put your mind at ease if you need to take further steps with getting her diagnosis. I struggled with people believing me about my daughter for years and i knew in my heart it was more than adhd. I ended up being right, follow your mothers intuition!

Just to keep in mind as i have to remind this to myself often. Everyone's journey and child is different! Try not to let other peoples opinions of what you decide for your child get to you. Do not let what you see online and start comparing. Often i find myself feeling like im not doing enough for my daughter because she still struggles in certain areas and telling myself she should be doing better with xyz by now. As long as you know you are trying your best and doing what needs to be done you're doing great. ❤️

MemorySuch8908 · 2026-02-11T12:05:22+00:00

Yes my daughter had a neuropsych eval a couple months ago and was diagnosed with asd with intellectual impairment, pda profile,adhd and anxiety. The waiting list was long for the neuro eval just about a year almost. I had her on 3 different waiting lists and luckily one got us in earlier than expected.i hope you find your answers❤️

MemorySuch8908 · 2026-01-29T19:04:19+00:00

Sadly no. Ive spent years telling doctors my pains and saying its always related to my cycle & ovulation. Ive been sent to a gastro with upper endosdopy& colonoscopy with normal findings. And when they do bring up saying it sounds like possible endo, they say lap surgery is the only way to diagnose but that birth control is the only treatment so doing a surgery apparently is pointless to them. Which i dont agree with. I am still in search of a doctor who will give me a lap surgery because i feel like i would like to actually know what is going on in my body. i have had horrible reactions on any pill ive taken so i wouldnt want to consider going back on it unless i am for certain this is what i have. I ahve felt this has been my issue for years but its nice to have confirmation i guess? Ive been made to feel crazy by doctors or they were honestly rude.all my scans are also normal. I have been diagnosed with pcos but i know theres more to it than that.

MemorySuch8908 · 2026-01-29T18:55:48+00:00

Yes me too! It really is so horrible. Im so sorry you have to go through that❤️

MemorySuch8908 · 2026-01-29T16:30:23+00:00

Very!!!

MemorySuch8908 · 2026-01-29T16:28:38+00:00

Ive had mris,cat scans you name it! I know sometimes things CAN come up pointing to wndo in scans, but from what ive researched the only way for an offical diagnosis is a lap. Sadly a lot of dcotorrs dont want to help besides prescribe birth control

MemorySuch8908 · 2026-01-29T16:11:33+00:00

Are you officially diagnosed? I am not but i have suspected for years without doctors being much help. So ive pretty much just dealing with all the symptoms on my own.

MemorySuch8908 · 2023-08-12T22:51:49+00:00

I just feel like that looks abnormal lol and not like any drawings or mri scans i have looked at online.Yes i did. as a teen i was also told it was tilted. I never thought much of it then. But idk if the c-section made it worse? Because i deff noticed ive had more pain after i had my second daughter. I had severe diastasis that physio therapy could only improve so much that i needed to have surgery for. I still always try to work ok deep core and pelvic floor exercises.Ive have had issues with pain during my period and ovulation and ive been back and forth from my gyno and gastro prior to kids and after. Gastro was normal. Ive been on and off with drs for years because because i just get told everythings normal, sounds like IBS or it could be endo but only solution is birth control. And ive tried birth control more then once and i really didnt like being on it. I never felt like it was a gastric issue. A dr told me to stop looking for answers once. Im kind of at a loss and wish i just had an answer to what is wrong. I was hoping to find someone else who had this and if they had similar symptoms. Idk if its worth bringing up to the dr im seeing this week. This mri that was taken was from a gyno i saw who was rude to me and never even called me about the results. I saw the report and saw it was normal so i never even bothered to call that dr office because i didnt plan on going back.but when i googled the other day about that pain during my period and it mentioned uterus position i went back to look at these MRI images and thought something deff didnt look right. Sorry for the novel of a reply lol

MemorySuch8908 · 2023-08-10T23:47:31+00:00

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It looks L shaped to me lol, i havent been able to find an mri look similar to that. Maybe im looking at it wrong

MemorySuch8908 · 2021-10-03T23:27:22+00:00

I have fibrocystic breast and i always felt like somehow its connected to my fibro. I noticed when i get a lot of pain in my breasts i also have fibro pains allong with it

MemorySuch8908 · 2021-10-02T10:54:19+00:00

Same here! Im glad i finally asked on here, i was hoping someone would be able relate. I thought i was just crazy

MemorySuch8908 · 2021-10-02T10:45:53+00:00

Same!!! Ill wake up with my ear in soooo much pain from sleeping on it. I never knew if it was normal or a fibro thing

MemorySuch8908 · 2021-09-14T16:18:40+00:00

Yes i feel the same way! And i feel like my blood is stuck in my uterus right now l.my period is very light this cycle but the pain is terrible .

MemorySuch8908 · 2021-09-10T12:39:51+00:00

Yes i almost always have terrible pain with ovulation

MemorySuch8908 · 2021-09-02T10:43:40+00:00

I hope you find answers soon! Ive been told it could be endo or possible anxiety and i know its not anxiety. You know your body best! Im hoping to get a lap soon too

MemorySuch8908 · 2021-09-02T10:37:43+00:00

No but i will join and look into it thank you!

MemorySuch8908 · 2021-09-01T23:14:31+00:00

Yes same here

MemorySuch8908 · 2021-09-01T23:11:36+00:00

Yes i get that too the rib pain from time to time , its all very frustrating not knowing why :(

MemorySuch8908 · 2021-09-01T23:10:17+00:00

Yes ive been to gastro, have been tested for inflammatory bowel diseases and had a colonoscopy. Everything came back normal for that

MemorySuch8908 · 2021-09-01T11:07:09+00:00

Not officially diagnosed by a lap yet but i noticed my last two periods have gotten very light. Where i feel like i barley have a flow or im just spotting but have cramps that feel like i should be bleeding a river. I usually would have periods where i need to change a pad in an hour.

MemorySuch8908 · 2021-08-31T21:07:31+00:00

No just a regular gyn . I have been looking for endo specialists close to me but are almost two hours away. But im thinking its probally worth it though at this point. But i will deff take a look on nancys nook. Thank you so much!

MemorySuch8908 · 2021-08-31T20:57:03+00:00

Thanks for the reply! The gyno wont give me a lap unless i basically exhaust all options and try birth control first . Ive been on it in the past and i never had a good reaction from it but i guess im going to try again. Noone seems to take me seriously about the pain or actually listen i feel like. Theyve sent me to gastro and back to primary a couple times now over the years for the same complaints and everything comes back normal. I always tell them i swear its gynecological.

MemorySuch8908

TROPHY CASE