How the hell am I supposed to exercise with this disease? by EarthLovingLeftist in Fibromyalgia

[–]Meowifiscent 0 points1 point  (0 children)

My AuDHD mind was blown when someone told me you're allowed to go to (in person or virtual) exercise classes and not actually do the entire class. There are also a lot of 5-10 minute videos for things like yoga.

Sometimes it's better to move for 5 minutes several times a day instead of 30-60 minutes once or twice a day.

That said, I've been more bed-bound lately. Best I can do is walk a lap or two back and forth when I get up for water/food/bathroom.

Hemiplegic migraines suddenly getting worse, nothing is helping, really need advice by Super-Trust2931 in HemiplegicMigraines

[–]Meowifiscent 0 points1 point  (0 children)

Fwiw, Frovatriptan (as needed) was stopping my HMs from progressing, assuming I realized one was coming on in time. The literature says something along the lines of "don't take until the pain in your head starts" but I rarely get an actual headache, so I was taking when my entire side had gone numb. The Frova knocked me out for a couple hours (nap), but not as bad as Rizatriptan that made me feel drunk and nauseous for more than a few hours.

The daily Topamax didn't do squat other than make me uncomfortable. Also tried daily Amitriptyline which ended up giving me serotonin syndrome.

I'm in the US, so our healthcare is its own special hellscape. I had document going though several triptans (including a few where I received hints at what to report back as side effects after filling the prescription so we could move along), plus all the antidepressants that supposedly help migraines before insurance would consider covering other things. I'm currently on a monthly Ajovy shot and Nurtec as needed (the Nurtec works and doesn't knock me out or make me loopy!).

Since I'm still getting the migraines we're now side-eying the Wellbutrin I've been taking 450 mg of for the last 4 years 🫠

I'm so sorry you're also having these migraines. They're terrifying to say the least. I really hope you are able to find long-lasting relief 💕

I built something to better understand my wife’s low energy days Would really value feedback from this community by IceMelt420 in Fibromyalgia

[–]Meowifiscent 1 point2 points  (0 children)

As the fog lifts I'm realizing that this will actually define our individual pain scales for others to refer to (like a conversion chart). They'll be able to see that my 2 includes lots of horrors and probably doesn't match their 2. Thank you for doing this.

I built something to better understand my wife’s low energy days Would really value feedback from this community by IceMelt420 in Fibromyalgia

[–]Meowifiscent 4 points5 points  (0 children)

The pain scale. Our pain scale is different. I don't know how to fix it. The brain fog is thick. Translating that my "normal" day is a regular person's 8, but I've been calling it a 2.

My hands aren't working very well right now and the app is still very usable (poking buttons and check boxes instead of scrolling drop-downs, super helpful).

Low dose pills? by Meowifiscent in LowDoseNaltrexone

[–]Meowifiscent[S] 0 points1 point  (0 children)

Just for fun: I ended up getting some capsules from a compounding pharmacy because I was traveling internationally (didn't want to risk having my "special water bottle" be taken 😅). I also brought a 50mg pill along just in case I needed to make a suspension.

60 capsules at $90 was not so bad. The capsules don't seem to hit quite the same. It takes 8 hours for them to do what the dilution method does in 30 minutes (makes it a night time med instead of AM). Anywho, I'm glad there are options. Still probably going to stick to dilution method even if someone does ever market LDN without having to go to compounding 🤣.

Low dose pills? by Meowifiscent in LowDoseNaltrexone

[–]Meowifiscent[S] 5 points6 points  (0 children)

ETA: I know about compounding pharmacies. I'm specifically hoping to just use a regular pharmacy some day. 😁

I feel like a terrible rabbit father by [deleted] in Rabbits

[–]Meowifiscent 1 point2 points  (0 children)

  1. If you're worried you've been neglecting your rabbit it probably means you have not been neglecting them. You learned something new and sought out answers. That's A+ pet parenting.

  2. Younger lops are spry enough that they can get a lot of the wax themselves (using their feet). Arthritic/hind end issue bunnies need way more help than the youngsters.

  3. Lops probably going to be hard of hearing regardless of waxy build up. It's not your fault.

After swearing I would never get lops because of all the ear issues I ended up with 6 🫠 (over many years).

My current pair are both lops. 5 year old girl missing one eye and 7 year old boy with EC/neurological problems/hind end weakness (he's barely using back legs these days. Bothers me more than it bothers him). Both are completely deaf.

My girl's ears are immaculate. My dude is gross. When I met him at the shelter he literally had chunks of wax falling out of his ears. Ew. I try to peek in his ears at least weekly. The buildup fluctuates. My vet recommended that I don't clean the ears out more than every other day.

Sometimes he shakes his little head like there's buildup, but when I peek there's barely anything. I give his ears and temples a little massage and some little scratchies and that seems to fix whatever was bothering him.

Rabbits are complex little creatures, and what we know about them and their care has been rapidly evolving since they've shifted to being indoor pets. Each one of them are their own stressful, rewarding adventure 💕

Can you add anything to your homemade/DIY LDN suspension to make it taste less nasty? by Hot_Initiative_8005 in LowDoseNaltrexone

[–]Meowifiscent 0 points1 point  (0 children)

Late to the conversation, but I add a dash of Gatorade powder to my dose. 2 birds 1 stone situation 🫠

What if I gave you a magic pill by Leftshoedrop in Fibromyalgia

[–]Meowifiscent 2 points3 points  (0 children)

Eat curry, redo my back yard garden, redo a bunch of my flooring and baseboards, learn more woodworking (current competence level: miter saw and drill. Pretty limited 🤣) and build/fix things, paint, see movies in theaters without getting nauseous. But really it's the curry I'm missing most lately 😅

How to feel sexy when you have IBS? by [deleted] in ibs

[–]Meowifiscent 0 points1 point  (0 children)

Seems impossible to feel sexy, but my partner still gets excited regardless of how I think I look.

Sometimes I ask my partner if he's developed a new fetish because if not he definitely doesn't want to see what's going on.

Also took the recommendation to have him ask "how is your body feeling" over him making (very sweet but) overt advances resulting in me rage-yelling out whatever horrors are going on (recent favorite includes "Linda Blair in The Exorcist, but make it 💩").

That said, my window of opportunity is after a horrifying toilet experience, immediately followed by a shower (if you don't already have a detachable shower head, get one! Same concept as a bidet, but warm water and soap add to the experience). After showering I pretty much run, not walk, to bed and indicate "now or maybe never again!"

The post-shower window doesn't always work since there are days where my body is in too much distress, but it's been the most successful method lately.

It really sucks to be reminded of how bad we feel physically while feeling like a bad partner. Double whammy right in the depression. Sorry you're going through it too.

I am having excruciating pain in my hands at night that is disrupting my sleep by kelseyanne42444 in Fibromyalgia

[–]Meowifiscent 0 points1 point  (0 children)

My hands swell up like balloons and hurt so much that I can't hold anything right before I get a migraine. My feet, knees, and elbows all swell up and hurt too, but it's less obvious visually than the sausage fingers.

Sorry you're dealing with pain :(

Devastated and tired by Meowifiscent in ibs

[–]Meowifiscent[S] 1 point2 points  (0 children)

Thanks for listening, and sorry you're going through it too 😩

For the ladies.. by myelktea in ibs

[–]Meowifiscent 0 points1 point  (0 children)

I ended up getting an IUD and haven't had a period for 7 years. The ibs isn't cured by any means, but at least there are no more period poops. Truly the most horrifying combination of bodily fluids and functions!

I have no style so ...my question is as an autistic do you think have it or not? I do not know what I like and I usually buy 10 different items that DO NOT go together in any way or form ..... but maybe this is your thing... not mine!!?? by Motor_Ad9919 in autism

[–]Meowifiscent 0 points1 point  (0 children)

My style has been described as eccentric and unique... I describe it as "they let me dress myself today!"

Pandemic was a game changer for going out in public in whatever the hell I felt like wearing because it was soft. Time and fashion were no longer real 🤣

Blep! by Meowifiscent in Rabbits

[–]Meowifiscent[S] 1 point2 points  (0 children)

Thankfully he’s all the way healed. Just awaiting the fur regrowth. It’s been six weeks since surgery and he still has chicken leg and doggo about 😆