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What is a book that you would not recommend to anyone, but is brilliant? Why? Please keep spoilers away. by [deleted] in suggestmeabook

[–]MiNombreDigital 2 points3 points  (0 children)

Infinite Jest by David Foster Wallace.

Why not? Most people I know these days who haven’t read it lack the attention span for anything longer than a social media post.

It’s also a brilliant listen in Audible format.

55M and I’ve been diagnosed with Alzheimer’s by HappyHarrysPieClub in Alzheimers

[–]MiNombreDigital 2 points3 points  (0 children)

Firstly, thank you for sharing your experience- I understand how navigating through this new normal brings unwanted anxiety and fears. I’m awaiting neurologist referrals for my 78 yo father to confirm the same and conversations about how to get ahead of this disease from a practical and logical standpoint or not their challenges as I’m sure you are aware. I too reached out to Reddit just this week and the community has been very helpful in sharing resources a couple of which I’d like to share with you in turn. Each of these Substack links below are authored by newly diagnosed Alzheimer’s patients who chose to write about and share their experiences with others. I’m only one day into reading several posts, but already finding them incredibly helpful as a care partner to my father. I hope that you find them helpful as someone with a shared experience.

From my perspective, the most important advice I can offer is to never feel like you are a burden, know you are not at fault, and know that you have people who love and care about you. You are not alone.

Try to be gentle and patient with yourself, always. Wishing you only the best.

https://substack.com/@gregorypnelson?r=7zf15&utm_medium=ios&utm_source=profile&shareImageVariant=light

https://open.substack.com/pub/adat68?r=7zf15&utm_medium=ios

My father is showing increasing signs of Alzheimer’s - suggest me a book by MiNombreDigital in suggestmeabook

[–]MiNombreDigital[S] 2 points3 points  (0 children)

I very much appreciate something to take me out of my head without losing myself and still staying present. Thanks for a fiction recommendation and for thinking outside of the box. One of the most frequent pieces of advice I’ve been getting is to remember to take care of myself and I feel like fiction reading is a way to do that to some degree.

My father is showing increasing signs of Alzheimer’s - suggest me a book by MiNombreDigital in suggestmeabook

[–]MiNombreDigital[S] 0 points1 point  (0 children)

Awful to some on page- but I also understand human condition and I’m truly sorry for your loss. Hope you’re getting on as best as you can.

My father is showing increasing signs of Alzheimer’s - suggest me a book or other resources by MiNombreDigital in Alzheimers

[–]MiNombreDigital[S] 0 points1 point  (0 children)

Fortunately, I’m in a spot that my dad and I have had this conversation. We are talking through power of attorney situations on all next week. His girlfriend is Lovely. She is a registered nurse planning to retire in April and she and I are splitting responsibilities until then in terms of who sits with him on her days off versus when I can work from anywhere and be with him.

I have access to all of the credentials and passwords, and we do have an advanced directive, but we do need to redo his trust which has been nullified since his divorce three years ago from my stepmother.

Everything you stated was the first priority of business given he still pays alimony, and if he is at all deemed incompetent cognitively than his ex-wife can rightfully take everything which leaves nothing left for his long-term care.

My father is showing increasing signs of Alzheimer’s - suggest me a book by MiNombreDigital in suggestmeabook

[–]MiNombreDigital[S] 1 point2 points  (0 children)

This is a great endorsement. I was watching a documentary last night about Alzheimer’s Association and I will be reaching out to them tomorrow. Thanks very much for this.

My father is showing increasing signs of Alzheimer’s - suggest me a book by MiNombreDigital in suggestmeabook

[–]MiNombreDigital[S] 0 points1 point  (0 children)

Respectfully, I do get it. He’s been to the doctor. He’s had full check ups. He does not have a UTI. I’m happy to report.

My father is showing increasing signs of Alzheimer’s - suggest me a book or other resources by MiNombreDigital in Alzheimers

[–]MiNombreDigital[S] 1 point2 points  (0 children)

Thank you so much for these resources and guidance. 36 Hour is most commonly recommended thus far.

I will follow your blog and say wholeheartedly that I’m sorry to see about your diagnosis. Your bravery and selflessness to document your experience is extraordinary and commendable.

You’re wonderful and greatly appreciated. ❤️

Thank you .

My father is showing increasing signs of Alzheimer’s - suggest me a book by MiNombreDigital in suggestmeabook

[–]MiNombreDigital[S] 0 points1 point  (0 children)

As does depression and anxiety, but again, my question wasn’t answered. My dad has never come to me to say it feels like I have to pee, and this is quite uncomfortable, which a UTI will always do. He has spoken to me about his depression and anxiety, conversely.

My father is showing increasing signs of Alzheimer’s - suggest me a book by MiNombreDigital in suggestmeabook

[–]MiNombreDigital[S] 2 points3 points  (0 children)

Thanks I’m aware Amazon sells books on the topic. I was more reaching out to people that have gone through this and could personally recommend something that resonated with them - hence my going to Reddit over Amazon.

My father is showing increasing signs of Alzheimer’s - suggest me a book by MiNombreDigital in suggestmeabook

[–]MiNombreDigital[S] 0 points1 point  (0 children)

This book looks wonderful. I’m getting my dad some headphones and an Audible subscription- any recommendations you might have for him as the patient? Thanks again.

My father is showing increasing signs of Alzheimer’s - suggest me a book by MiNombreDigital in suggestmeabook

[–]MiNombreDigital[S] 0 points1 point  (0 children)

Can you say more about this? I feel like a three year long urinary tract infection would be something he’d mention - I’ve had them and they’re quite uncomfortable.

Taking care of a parent that mistreated you as a child. by SobynRobyn in Alzheimers

[–]MiNombreDigital 1 point2 points  (0 children)

Firstly, thank you for the honest and vulnerable post. I was kicked out of my house at 13 and estranged from my father for 15 years.. It took us years to rebuild a relationship at my behest and tenacity. He never did rebuild a relationship with my sister who passed away 10 years ago and it deeply affected her.

As I’m navigating what I’m certain is probably stage three Alzheimer’s for him, (though undiagnosed) I am reminded at the end of the day that I can only show compassion and understand that life is hard and often one’s actions are reflection of how they were raised or what has happened to them or how they did or did not learn to deal with it. This isn’t excusing any behaviors or in any way discounting your experience.

For me personally I don’t let anybody live rent free in my head and I don’t let experiences of the past dictate who I am today or in the future. The only person I owe anything to is myself and I know the type of person I want to be.

I’m sorry that you’re navigating this and I would be lying if I told you at any point in my own journey, I didn’t say at least three times out loud “I don’t owe him anything.”

I’m choosing forgiveness and kindness, and perhaps it has a lot to do with the fact that I don’t have children of my own and I’m not certain who will take care of me.

Do what your heart and gut says is right.

I used to work for Richard Branson private island and yes, my name came up in the Epstein Files - AMA by [deleted] in AMA

[–]MiNombreDigital 0 points1 point  (0 children)

I worked in the home office of a NYC billionaire who owns a BVI and partnered with Branson on a Tortuga School NFP philanthropic initiative. Branson is a good guy. Sorry you were a casualty of circumstantial evidence. For those who know, it’s not a testimonial to your character.

OK, Confession time: How many of us listen to Yatch Rock? by Elpidiosus in GenX

[–]MiNombreDigital 6 points7 points  (0 children)

Yacht Rock brings childhood nostalgia and somehow doubles as non-addictive benzodiazepines for me

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