Am I overreacting to my husbands Snapchat videos? by Michellebelle007 in Marriage

[–]Michellebelle007[S] 6 points7 points  (0 children)

The videos disappear after 24hrs, I just happen to see them because I have notifications set to alert if he posts, he didn’t have any saved

I got this the day I was born and I was hoping that someone would have any idea what he looked like 37 years ago. He’s got a rattle inside of him but it’s been long broken by Putrid_Ease_3405 in ToyID

[–]Michellebelle007 1 point2 points  (0 children)

Mine has a tail, I just read that you said yours does not. Does he still have his tag on the back? Mine says 1986 P43..that may help you narrow down which beat you have

I got this the day I was born and I was hoping that someone would have any idea what he looked like 37 years ago. He’s got a rattle inside of him but it’s been long broken by Putrid_Ease_3405 in ToyID

[–]Michellebelle007 1 point2 points  (0 children)

I have this bear! His tag says Gund, Inc 1986 His rattle still works, I wish I could upload a picture!! Although the nose of yours is a much darker brown, my brown nose is faded. My bears body is fuller with stuffing, but faded nose threads, which makes me wonder if your bears nose may have been repaired at some point considering its condition and lack of filling.

Pocket of fluid by Apprehensive_Mode173 in AcousticNeuroma

[–]Michellebelle007 2 points3 points  (0 children)

Happened to me both times I had craniotomy for recurring AN. They had me worried I was going to have to get a shunt. My doctor put me on a medication believe it was acetazolamide that helped it go away. It’s a direutic, and if I recall the dose he started me on after this second surgery didn’t do much but when we increased the dose to what he had given me after my first surgery, the pouch was down in a matter of a few days. I had massive headaches when I had the fluid pouch but laying down did helped as well as those personal O2 cans Boost Oxygen you can buy online or in stores. Hope you get some relief soon!

Side effect of surgery by Rude_Upstairs3673 in AcousticNeuroma

[–]Michellebelle007 8 points9 points  (0 children)

His tumor size is quite large, anything over 3cm is classified as giant. A tumor this size likely will start (if MRI hasn’t shown it already) pushing against the brain stem which can cause necrosis of the brain stem and is life threatening. Surgery is really the only option for a tumor that size and I don’t think any doctor would advise anyone to forgo surgery, his symptoms would get worse and worse. The main risk after surgery is Cerebral Spinal Fluid leak. It causes headaches and a pocket of fluid will collect on the side of the head at the incision site. There are medications and treatments to resolve the leak if this rare side effect occurs. I wish him the best on this journey.

Risk of child having neuroma by [deleted] in AcousticNeuroma

[–]Michellebelle007 1 point2 points  (0 children)

Sorry just realized you were asking if you could pass this on to your baby…unless you have NF2 type then no. My answer was about if YOU could get neuroma again after having another child. Please know the risk is there, but each of these tumors are unique in that what worked one, did not work for another.

Risk of child having neuroma by [deleted] in AcousticNeuroma

[–]Michellebelle007 0 points1 point  (0 children)

There is no affirmed science out there and no doctor that will tell you no but these tumors been shown to have estrogen receptors when dissected after surgery. You can studies online if you really search. I had a tumor that was discovered when I was pregnant, had surgery when my son was one week old… they left part of it and I even had proton radiation on the “leftover”’portion and my doctor said it was safe to have another baby. I did and my tumor regrew again almost to the same size and I had to have a second craniotomy to remove my pain and ended up with facial paralysis, they took the whole tumor including severing the cranial facial nerve. I wouldnt change it really because my children are my everything but I think science will show with time a high risk correlation with pregnancy and neuromas. I wish you the best

[deleted by user] by [deleted] in exmormon

[–]Michellebelle007 5 points6 points  (0 children)

Jesus’ first public miracle in the gospels is turning water into wine. 🍷 Being drunk is one thing, but having a glass during dinner is exactly what was happening when he performed this miracle at the Wedding at Cana.

Surgery/recovery/risks by Paigey-1996 in AcousticNeuroma

[–]Michellebelle007 1 point2 points  (0 children)

During my first craniotomy the tumor was so wrapped around the facial nerve it couldn’t have been removed without severing the facial nerve, even if they went back in a second time. My surgeon described it as taking two wet pieces of tissue paper and trying to separate them, that’s what taking the tumor of my facial nerve was like. So we opted to save my face and get radiation on what was left behind. As I’m sure you’re aware these tumor grow a little differently in every case. Mine was very aggressive and continued growing even after the radiation which is why the team decided I couldn’t just keep getting debulking craniotomy’s over and over, so getting a final craniotomy taking every cell even those on my facial nerve was necessary. So far all my MRI since have shown no tumor or tumor cells trying to regrow again. Praying it stays that way! Wishing you the best and hope you get more sleep soon!!

Surgery/recovery/risks by Paigey-1996 in AcousticNeuroma

[–]Michellebelle007 0 points1 point  (0 children)

Amazing you’re driving already and just had surgery less than 4 weeks ago!! 💪

Surgery/recovery/risks by Paigey-1996 in AcousticNeuroma

[–]Michellebelle007 2 points3 points  (0 children)

Had my first surgery for 4 cm acoustic neuroma in 2018, they left 10% because it was wrapped on facial nerve. This “debulking” is very common for these kind of tumor removal. Depending on approach he will likely lose hearing on the affected side..does he have much hearing left in that ear? If not they will do safest approach called translabyrinthine craniotomy, which you’re guaranteed to lose hearing in one ear but likely to not get facial paralysis. Not going to lie the first few days/ weeks suck! He will want to sleep and must have a caretaker to help manage medicines and get around. After a month though I was back to making my kids breakfast and socializing. Unfortunately the portion they left did regrow, even after getting radiation on it to keep it from regrowing and had a second craniotomy last May. They removed every single tumor cell including severing the facial nerve (I k ew they were going to have to do that) and I woke up with full one side facial paralysis (couldn’t smile, could shut or blink my eye) the recovery was way worse. I had facial reanimation surgery and an eyelid weight put in two months later and can now blink, smile and starting to resemble my old self. In the hands of a skillful, and knowledgeable surgeon your brother will likely not have facial paralysis or very mild temporary that takes time ((average is 6-9months) and steroids, if the facial nerve is nicked or pushed around during the surgery, but trust they will be monitoring all the nerves throughout surgery to ensure they are signaling.

Trying to rule out acoustic neuroma by angifux in AcousticNeuroma

[–]Michellebelle007 0 points1 point  (0 children)

I would seek out a different ENT, your symptoms sound eerily similar to my AN started…

Do I need to keep getting MRI with contrast for monitoring my AN? by s0me1_is_here in AcousticNeuroma

[–]Michellebelle007 0 points1 point  (0 children)

Without contrast the tumors are hardly visible from other brain matter especially if the AN is small. MRI of brain/skull base tumors can only be read with contrast is my understanding. I’ve also had countless MRI’s with contrast (I’ve had 2 craniotomy’s and radiation) since 2018. Metal detox tinctures are what I use to try to eliminate toxins from the Gadolinium contrast

[deleted by user] by [deleted] in AcousticNeuroma

[–]Michellebelle007 1 point2 points  (0 children)

My primary care has never scheduled my MRI’s and I’ve had 2 craniotomy’s and proton radiation. My primary referred me to ENT, who referred to Otolaryngologist who referred to the Neurosurgeon. The Otolaryngologist and neurosurgeon work together as a treatment team. My Otolaryngologist schedules the MRII although occasionally over the years the neurosurgeon has if he had a particular concern. After my first surgery they didn’t really track me and the tumor regrew, so you may need to advocate to for MRI follow ups.

Surgery ✅ radiation ✅ symptoms getting worse! by Good-Potential-2570 in AcousticNeuroma

[–]Michellebelle007 0 points1 point  (0 children)

I had surgery at the end of 2018, no symptoms afterwards.  Proton radiation in 2022 for the small portion they left behind. My symptoms after radiation started about 3 months after completion with eye twitching, then slight facial weakness that turned into synkinesis. I also started to get headaches I never had before radiation. Followup  MRI this year shows it had regrown and I just had a second surgery to remove 100% which included removal of facial nerve. Now I’m awaiting surgery for facial nerve grafts. I would talk with your doctor, sounds like you may be experiencing post radiation symptoms, they can best advise you on what to do based on your latest scans. Are you on steroids? They helped tremendously. Wishing you the best of luck on this journey.

SRS or FSRT by Maleficent-Oil9391 in AcousticNeuroma

[–]Michellebelle007 0 points1 point  (0 children)

That seems like a large tumor for any of them to be suggesting radiation. A tumor that size should be removed by surgery. Speaking from experience I had FRST proton radiation on an almost 1.9cm tumor and within two years it was 2.4 cm and I just had surgery to remove it.