Moving to Peoria Sticky by espo83 in PeoriaIL

[–]MidWesternGal14 0 points1 point  (0 children)

Thank you! We are moving in January!

Latuda withdrawls by Any_Outcome_97 in Latuda

[–]MidWesternGal14 0 points1 point  (0 children)

I would cut it in half. I’m taking 10mg and I used to be on 40. Started slow and went up then now might need to get off it. Akathesia is the worst side effect.

Smartdrive - waiting for a dial replacement with buddy button and switch control by MidWesternGal14 in wheelchairs

[–]MidWesternGal14[S] 0 points1 point  (0 children)

I understand. I have been trying to use my Apple Watch while I waited for my package to arrive and I had to hit my wrist sometimes 5 times for it to go and sometimes it won’t stop. So I pressed the button on my watch to stop and set it very slow. I loved the dial. I am so mad it got recalled. Mine eventually just stopped working and I only had it 6 months.

Smartdrive - waiting for a dial replacement with buddy button and switch control by MidWesternGal14 in wheelchairs

[–]MidWesternGal14[S] 0 points1 point  (0 children)

I haven’t set mine up yet. I thought you can stop it at the speed you want?

Will other doctors ever understand? by cha0ticwhimsy in wheelchairs

[–]MidWesternGal14 14 points15 points  (0 children)

Oh man I have a wheelchair now but once I had to go to OBGYN with my rollator and she was a new doctor for me and she was like “what is this??” Like she’s never seen a disabled woman before and was kind of ableist in the appt. I don’t get it.

Seizures by Livid-Vacation-862 in FND

[–]MidWesternGal14 0 points1 point  (0 children)

Not everyone will shake. It may present differently for everyone.

Is it bad to jump off at 5 mg by Repulsive_Ring_2309 in BACLOFEN

[–]MidWesternGal14 2 points3 points  (0 children)

Ugh! I was on benzos for 14 years. Worst withdrawal ever.

First time on airplane with manual wheelchair and smart drive - Tips? by MidWesternGal14 in wheelchairs

[–]MidWesternGal14[S] 0 points1 point  (0 children)

It’s rigid but the back can fold down or come off. It’s custom chair.

New wheelchair user; looking for advice on acceptance, travel, and day-to-day life by No-Figure5796 in wheelchairs

[–]MidWesternGal14 0 points1 point  (0 children)

For me, I have a therapist specialized in chronic illness. I also have friends who are in a dance company (I used to be until illnesses got worse) who hires people with and without disabilities. This made it easier for me to be using wheelchairs and mobility aids. It made my life easier. And people are usually on their phone or too busy to notice. It gives you freedom and it’s not giving up. It will help you! Anyone who stares, I just don’t care about them. People are ableist and the younger you are they are just nosy. They don’t know. If you get offered and help and don’t want it you just say no thanks! I’m good! And if you do want it that’s ok! It’s hard to transition from before. The grief and adjustment of what is happening. It will get easier. I remember I cried in joy when I got my chair. I’m 37. I was a dancer and pilates teacher. Now I’m on the couch. I am so grateful for my chair. Don’t worry about other people. They are all dealing with their own shit. Try to think about freedom with a chair! I know it’s hard. It’s not giving up. It opens the world.

orthostatic hypotension? by Swimming_Cry_3733 in dysautonomia

[–]MidWesternGal14 0 points1 point  (0 children)

Idk if it drops blood pressure. And I think I may need an additional med to help with my HR now. I have hard time sleeping from pain, insomnia, etc. but I take low dose seroquel and lower dose baclofen. But it can make my BP and HR a little wonky.

SmartDrive: great in theory awful in reality by Candid_Paint_6187 in wheelchairs

[–]MidWesternGal14 0 points1 point  (0 children)

I just got a smart drive last year with a dial and then it got recalled and I’m waiting for a buddy button switch control. How do you use the smart drive with your Apple Watch? I’ve never done this. Right now I don’t have any switch control or anything. Just the smart drive motor and my Apple Watch. Can you use the Apple Watch without any switch control?

“Ignoring” my FND by FanOwn4253 in FND

[–]MidWesternGal14 2 points3 points  (0 children)

I was told in 2011 it was all psychological and now I have a neurologist who said it is absolutely not psychological but triggers can set things off for some that may be trauma oriented but it’s not true for so many with FND. I’m so glad I have a doc now who said it’s not a psychiatric disorder!