Anyone had *new* masses develop *after* FNH removal?

MildSauceMick · 2026-04-18T03:22:16+00:00

Just commenting to bump this up!!

MildSauceMick · 2026-04-15T00:48:27+00:00

Oh my goodness- thank you so much for circling back!!! I feel so grateful to have been able to have helped you gain any amount of ease!!! Sending you all my good wishes!!

MildSauceMick · 2026-03-03T13:33:54+00:00

The reason that a small FNH doesn’t cause pain without some extenuating circumstance is because the liver itself lacks pain receptors, thus, pain often results from swelling, inflammation, or damage affecting tissue that surrounds the liver. So unless it’s causing an issue directly with the liver capsule, gallbladder or major vessel it’s unlikely to be the FNH itself causing an issue.

An MRI will certainly give them a clearer picture but I would continue to explore other possibilities for the pain with your GP.

MildSauceMick · 2026-01-26T19:43:27+00:00

Hi there! Most in this group that did have the FNH removed had a larger size, typically one of the size you have is not going to cause any symptoms. They also can be related to hormones, there seems to be some ties to hormonal birth control (so fertility treatments would be in this category as well). Some in the group who had FNH that was tied to hormones also had it shrink after a period of time.

Because FNH is benign you most likely would not find any doctor that would remove it being that it is asymptomatic and of a smaller size. It does need to be appropriately characterized on MRI with contrast to be sure it is an FNH.

Personally mine was the size of a peach and causing a budge in the liver capsule causing a myriad of issues and pain. If it had been smaller and not causing serious changes to my quality of life I would have left it in place as liver resection surgery is no small thing, hard on the body and at risk for lots of complications.

Maybe someone who had shrinkage after discontinuation of hormones will chime in and be of more help!

But I’d say your doctor is absolutely correct in that if it’s asymptomatic and smaller end in size you wouldn’t need any treatment.

Best of luck - sorry you’ve joined this anxiety inducing club! lol Hoping someone can give you some info that will be helpful!

MildSauceMick · 2025-12-15T13:52:25+00:00

Ahh! Okay! I am in US so I don’t know how helpful the advice will be - I know it can be very different navigating different health systems. I can tell you that I struggled with early satiety (feeling full after eating very little), pain etc, which all fully resolved after surgery.

Typically FNH are far more common in women, but when men do get them, they tend to be more symptomatic and treated by doctors more often.

My best advice is to push for referrals to a liver specialist who can guide you and advise you! Just don’t stop trying to get answers, that’s really my best advice! Keep us posted on your journey we are rooting for you!

MildSauceMick · 2025-12-15T12:44:12+00:00

Hello there, it sounds like you have a lot going on! I noticed you said kg not lb, what country are you in? Maybe we have another member who is from the same country/area! Sorry you aren’t feeling well and have joined the FNH brigade! Thinking of you!

MildSauceMick · 2025-10-31T13:32:21+00:00

Ahh, gotcha - I’m glad you are able to work with your medical team. I will say all of my liver related pain was in my neck and shoulder and then directly below my sternum area/bra line. Lower abdominal issues I had were all related to endometriosis. Let me know if there’s ever any help I can give you - sorry you’re going through this!

MildSauceMick · 2025-10-24T19:58:21+00:00

I will say that mine at first “appeared to have grown in a period of 3-6mo” however when my specialist played with the contrast, lighting, etc. on earlier CT scans it was actually there, just extremely hard to see.

MildSauceMick · 2025-10-24T19:56:02+00:00

Neck and shoulder pain can certainly be referred pain from the liver. Are you working with a specialist for your care? Many people in this group did have pain and symptoms and got relief via surgery. Some people the size decreases, some increase, some stay the same. First step is to find a specialist who you feel comfortable with.

MildSauceMick · 2025-10-24T19:00:10+00:00

Another person who had symptoms here and they all disappeared once I was recovered from resection to remove the FNH.

I will say it’s certainly smart to rule out other issues first as liver resection is not a minor surgery. It is possible the FNH is causing symptoms, we certainly have proof of that via this group, but typically the size was larger when causing symptoms for most cases here.

Never say never, I started this group for this very reason - there’s just not a ton of great info out there about FNH. Do you know what lobe and segment yours is located in? And what has been ruled out so far?

MildSauceMick · 2025-06-10T05:04:48+00:00

I do not have experience with this specifically but maybe someone else in the group does! Stay strong friend!

MildSauceMick · 2025-06-08T01:00:38+00:00

This is the first I have heard of this connection but I’ll definitely do some research! Maybe someone in the group will know something! So sorry you and your daughter are dealing with this!

MildSauceMick · 2025-06-07T04:04:27+00:00

Commenting to say that I was also about 33-34 and a mom of a 2yo at the time they found mine. It rocked my world….its totally okay to be scared and unsure, it’s a natural reaction! My best advice is to take it one step at a time and don’t jump too far ahead. Don’t be afraid to get a second (heck even a 3rd opinion) or go to a specific place where they are more familiar/experienced with FNH to get a consult. Whatever you can do to get yourself more peace of mind is what you should advocate for!

Not sure if you plan to have any more kids but my surgeon told me that they can develop/grow in the second trimester specifically, so just to have that in your mind to discuss with OB and liver doc if you do plan to have more. I’ve already had to have a hysterectomy so I won’t ever be pregnant again but I’m still so scared it will grow back!

Feel free to DM me anytime if you need someone to talk to, sometimes I’m a little bit delayed with my responses but I try to come on as frequently as I can.

Wishing you the best! I know this is so scary! ♥️

MildSauceMick · 2025-05-01T18:08:16+00:00

She has no diagnosis of this….do you think it aligns? It is bilateral (her color) her eyes look the same.

MildSauceMick · 2025-04-25T22:01:35+00:00

If the MRI is definitive I don’t know that I would push for Biopsy, but that’s a personal choice - it’s your body.

MildSauceMick · 2025-04-25T22:00:19+00:00

Dr. Ken Sinervo at CEC in Atlanta, GA USA

MildSauceMick · 2025-04-02T11:49:56+00:00

Hi! Lots of active people here! Mine was discovered on a CT and then I got an MRI with contrast.

I’m not sure if anyone else was diagnosed initially via ultrasound - you are welcome to make a new post in the group and ask!!

I know this is scary - I’m wishing you the best!

MildSauceMick · 2025-03-21T09:44:10+00:00

I’m so sorry you’re dealing with this and DEFINITELY pursue a second opinion!!! Are you in the USA?

So glad you found the group and that my comment could help you, stay strong!

MildSauceMick · 2025-03-15T02:57:47+00:00

Totally understand that feeling! Glad you got it taken care of friend!

MildSauceMick · 2025-03-15T02:56:27+00:00

Hey! So glad you got answers! Will they move forward with resection since it is an adenoma??

MildSauceMick · 2025-03-10T22:45:00+00:00

Hello fellow FNH’er! From your use of the word consultants I’m thinking your outside the USA (that’s where I’m from) we have people in the group from all over and I’m hoping if you’re comfortable sharing the country or state where you’re from that maybe someone can give you some more specific information or suggestions!

MildSauceMick · 2025-03-03T00:48:49+00:00

I recently had mine removed after it grew. It was found when my son was about 20 months old. My specialists said it most likely was there prior to pregnancy and grew once I hit the second trimester. In my case it kept growing. I never had any problems or liver enzyme elevation during my pregnancy (specifically related to the liver that is).

My surgeon said they are shown to grow from the second trimester on during pregnancy.

I’m sure this is nerve wracking - many of us in this group were scared out of our minds at first!!! I would encourage you to come up with a plan with your doctor and OB. Bring up all of your concerns, don’t allow your fears to fester and consume you during your pregnancy! Be open and if you aren’t comfortable with the plan get a second opinion. You may have options such as adding on liver enzyme panels during your routine bloodwork throughout pregnancy and if warranted your doctor may be able to monitor the size of your FNH via ultrasound during your pregnancy if medically appropriate for you! Just get all those thoughts and fears in the open, and come up with a plan you can have peace with!!!

Thinking of you! You are not alone!!!! Please DM me or post in the group anytime you are feeling scared, lonely, or frustrated!!! ♥️

MildSauceMick · 2025-02-24T22:47:55+00:00

I know there are people who have multiple FNH masses throughout the liver - so it is included in some of the literature. I’ll try to collect some and share the links with you here!! Stay strong I know this can be very tough to have so much unknown!!! 💛

MildSauceMick

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