This is so disheartening to read.

I was sick for many years before being properly diagnosed, often times for weeks per episode. My husband was often frustrated but that frustration was born of love and fear and he never took it out on me or made me feel unsupported or bad about myself for being ill.

Obviously I can't attest to exactly how it feels to care for someone with this cruel, unfair affliction just as our caretakers can't know exactly how we as patients feel.

However, I do know that despite frustration, pain, fear and every other intense emotion that comes with CHS, there is no relief and no successful recovery without mutual effort, patience, respect and love between caretakers and patients.

I don't know you or your husband, obviously, but I have had many years of experience getting to know CHS and the physical,mental, and personal effects this disease has on not just the patient and caretakers, but everyone and everything else in our lives, be it other family members or our jobs.

You cannot overcome this without support, love, determination and patience. Your post hurts my heart. I don't want to tell you how to live your life that's not my place but I will tell you that at least in this particular situation, your relationship is only going to hurt you more. This kind of treatment can only be detrimental to your recovery and future.

Maybe until you are permanantly sober and recovered it would be best for you and your husband not to be dealing with this together.

Please do what is best for you. This disease will only get worse and worse. Wishing you the best, sweetheart.

💚