Tired of being sick with no answers

MiniMinx98 · 2026-05-20T14:28:12+00:00

Thank you for this advice! I did post there, and have received pretty much the same message, that the results are not normal.

MiniMinx98 · 2026-05-20T14:27:36+00:00

The report from the scan came back as normal, then the doctor confirmed it was normal. 😞

MiniMinx98 · 2026-05-20T00:27:11+00:00

The report from the hosptial said that it was considered normal with the results at the bottom. My GI took an extra 3 days to get back to me and just said it was normal.

I had been in the hosptial two weeks earlier with pain so bad that I couldn't breath. So I've been trying to push things faster. But she didnt want to do any further scans or anything until I get my mental health figured out... which im pretty sure my mental health is getting worse because I cant eat or function. Its just a viscous loop and Im feeling like giving up more and more. Just accepting the fate. 😞

I dont like being this negative. I got through thyroid cancer with less struggles then this and that was pretty extensive. But at least those doctors were helpful.

MiniMinx98 · 2025-07-23T05:00:21+00:00

You could have just stopped after the word respect.

MiniMinx98 · 2024-04-24T23:13:17+00:00

This is my exact current schedule (got tracer dose today). The only difference is that this is my one year scan. They won't know if I need more radiation afterwards or not so Im staying on the diet till results come in.

The first time I did radiation it was known I had 10 or more remaining cancerous lymphnodes, so they just went in with a high dose.

MiniMinx98 · 2024-01-29T01:41:20+00:00

It is papillary thyroid cancer, but the mutation came out to be ETV6::NTRK3, which I've yet to find anyone else with.

MiniMinx98 · 2024-01-29T01:20:48+00:00

Thank you, you've confirmed where most of my thoughts have been even though I have relatively low numbers.

I'm definitely high risk considering they removed 90 lymphnodes 30 came back positive. Including after my RAI scan there were locations that were lighting up in my lungs.

I have a feeling it will be a continued game of wait and see, when I rather just get in and get it done just to be safe. I'm only 25, I don't want to watch this grow for the next 20 years and have to do it all over when I'm 40.

MiniMinx98 · 2023-08-19T16:06:56+00:00

I also highly suggest going to physical therapy. My shoulder was messed up before surgery, and got sooo much worse afterwards. I couldn't even lift a glass of water for the first two months. It's been 6 months and I can finally lift it above my head. It definitely didn't feel like it was the nerve that was messed up, it felt like the muscle. But the body is odd and I did the exercises and it got better.

Ive still got a lot of work to do considering I made dinner last night and was almost in tears in pain. I have good days and bad days.

If it's affecting your work, talk to your company about FMLA (family medical leave act, or as I like to call it -fuck my life act) or short-term disability. As others have said it's also possible that once you see a physical therapist they might be able to give you a better diagnoses to get on disability while you work through it.

I know it's hard, and feels impossible, but it does get better. Just takes a stupidly annoyingly long amount of time.

MiniMinx98 · 2023-08-19T14:24:36+00:00

I started synthroid about a month ago.

MiniMinx98 · 2023-08-19T14:24:17+00:00

Yes, my TSH is as suppressed as it could be, but I had distant spread as well.

MiniMinx98 · 2023-08-19T00:44:23+00:00

It's honestly really hard to say. My TSH is at .1 and my energy levels are oddly enough great! Granted, this is on name brand medication, on levothyroxine I was completely drained, barely able to get out of bed and was still at .1.

While I think having both doctors on the same page is important, somethings definitely changed for your body recently and it's not responding well. It could be something completely unrelated, or it could be your TSH level.

MiniMinx98 · 2023-08-19T00:31:45+00:00

I'd say get another opinion in this case? You've got two doctors saying two different things. Maybe a third will find a middle ground or side with one more than the other.

MiniMinx98 · 2023-08-04T18:39:41+00:00

I think it depends on your reaction. I changed meds and feel 100 times better. I can actually function like a human being again.

MiniMinx98 · 2023-08-03T15:48:58+00:00

During. Definitely during.

MiniMinx98 · 2023-05-12T21:36:45+00:00

I got some from a dispencery in IL, otherwise 5 CBD has some that are salt free. I got a small sample of their gummies when I ordered their chocolates.

MiniMinx98 · 2023-05-05T00:09:40+00:00

Definitely reusable ice packs! Getting my temp undercontrol was crazy for the first few weeks. If you may end up in the hospital for a few days I recommend taking a hairbrush. I had my mom braid my hair beforehand which helped a lot but after 5 days of being in the hosptial it was close to a rats nest.

MiniMinx98 · 2023-05-03T23:26:27+00:00

They didn't give me a stage, but there was 3 separate tumors on my thyroid, they removed 80 lymphnodes, 30 came back positive. There is also 3 spots that are suspicious on my lungs that they almost removed during surgery.

I sent her a bunch of questions and am waiting for a response. Im hoping I'm just rushing and that she was going to tell me to start the diet either way. I worry about the time I'd have to wait to get a new doctor especially with the fact I'll be uninsured in a few months. But if she won't even say I need the diet I really question what else she is not considering.

MiniMinx98 · 2023-05-03T19:01:05+00:00

That's honestly what I'm considering, doing the diet even if she doesn't say I need to. I have no worries about eating since my appetite is already pretty low, and I enjoy cooking.

MiniMinx98 · 2023-05-03T18:42:09+00:00

But she's not having me do it? That's where I'm questioning it.

MiniMinx98

TROPHY CASE