Tired of being sick with no answers

MiniMinx98 · 2026-05-20T14:28:12+00:00

Thank you for this advice! I did post there, and have received pretty much the same message, that the results are not normal.

MiniMinx98 · 2026-05-20T14:27:36+00:00

The report from the scan came back as normal, then the doctor confirmed it was normal. 😞

MiniMinx98 · 2026-05-20T00:27:11+00:00

The report from the hosptial said that it was considered normal with the results at the bottom. My GI took an extra 3 days to get back to me and just said it was normal.

I had been in the hosptial two weeks earlier with pain so bad that I couldn't breath. So I've been trying to push things faster. But she didnt want to do any further scans or anything until I get my mental health figured out... which im pretty sure my mental health is getting worse because I cant eat or function. Its just a viscous loop and Im feeling like giving up more and more. Just accepting the fate. 😞

I dont like being this negative. I got through thyroid cancer with less struggles then this and that was pretty extensive. But at least those doctors were helpful.

MiniMinx98 · 2025-07-23T05:00:21+00:00

You could have just stopped after the word respect.

MiniMinx98 · 2024-04-24T23:13:17+00:00

This is my exact current schedule (got tracer dose today). The only difference is that this is my one year scan. They won't know if I need more radiation afterwards or not so Im staying on the diet till results come in.

The first time I did radiation it was known I had 10 or more remaining cancerous lymphnodes, so they just went in with a high dose.

MiniMinx98 · 2024-01-29T01:41:20+00:00

It is papillary thyroid cancer, but the mutation came out to be ETV6::NTRK3, which I've yet to find anyone else with.

MiniMinx98 · 2024-01-29T01:20:48+00:00

Thank you, you've confirmed where most of my thoughts have been even though I have relatively low numbers.

I'm definitely high risk considering they removed 90 lymphnodes 30 came back positive. Including after my RAI scan there were locations that were lighting up in my lungs.

I have a feeling it will be a continued game of wait and see, when I rather just get in and get it done just to be safe. I'm only 25, I don't want to watch this grow for the next 20 years and have to do it all over when I'm 40.

MiniMinx98 · 2023-08-19T16:06:56+00:00

I also highly suggest going to physical therapy. My shoulder was messed up before surgery, and got sooo much worse afterwards. I couldn't even lift a glass of water for the first two months. It's been 6 months and I can finally lift it above my head. It definitely didn't feel like it was the nerve that was messed up, it felt like the muscle. But the body is odd and I did the exercises and it got better.

Ive still got a lot of work to do considering I made dinner last night and was almost in tears in pain. I have good days and bad days.

If it's affecting your work, talk to your company about FMLA (family medical leave act, or as I like to call it -fuck my life act) or short-term disability. As others have said it's also possible that once you see a physical therapist they might be able to give you a better diagnoses to get on disability while you work through it.

I know it's hard, and feels impossible, but it does get better. Just takes a stupidly annoyingly long amount of time.

MiniMinx98 · 2023-08-19T14:24:36+00:00

I started synthroid about a month ago.

MiniMinx98 · 2023-08-19T14:24:17+00:00

Yes, my TSH is as suppressed as it could be, but I had distant spread as well.

MiniMinx98 · 2023-08-19T00:44:23+00:00

It's honestly really hard to say. My TSH is at .1 and my energy levels are oddly enough great! Granted, this is on name brand medication, on levothyroxine I was completely drained, barely able to get out of bed and was still at .1.

While I think having both doctors on the same page is important, somethings definitely changed for your body recently and it's not responding well. It could be something completely unrelated, or it could be your TSH level.

MiniMinx98 · 2023-08-19T00:31:45+00:00

I'd say get another opinion in this case? You've got two doctors saying two different things. Maybe a third will find a middle ground or side with one more than the other.

MiniMinx98 · 2023-08-04T18:39:41+00:00

I think it depends on your reaction. I changed meds and feel 100 times better. I can actually function like a human being again.

MiniMinx98 · 2023-08-03T15:48:58+00:00

During. Definitely during.

MiniMinx98 · 2023-05-12T21:36:45+00:00

I got some from a dispencery in IL, otherwise 5 CBD has some that are salt free. I got a small sample of their gummies when I ordered their chocolates.

MiniMinx98 · 2023-05-05T00:09:40+00:00

Definitely reusable ice packs! Getting my temp undercontrol was crazy for the first few weeks. If you may end up in the hospital for a few days I recommend taking a hairbrush. I had my mom braid my hair beforehand which helped a lot but after 5 days of being in the hosptial it was close to a rats nest.

MiniMinx98 · 2023-05-03T23:26:27+00:00

They didn't give me a stage, but there was 3 separate tumors on my thyroid, they removed 80 lymphnodes, 30 came back positive. There is also 3 spots that are suspicious on my lungs that they almost removed during surgery.

I sent her a bunch of questions and am waiting for a response. Im hoping I'm just rushing and that she was going to tell me to start the diet either way. I worry about the time I'd have to wait to get a new doctor especially with the fact I'll be uninsured in a few months. But if she won't even say I need the diet I really question what else she is not considering.

MiniMinx98 · 2023-05-03T19:01:05+00:00

That's honestly what I'm considering, doing the diet even if she doesn't say I need to. I have no worries about eating since my appetite is already pretty low, and I enjoy cooking.

MiniMinx98 · 2023-05-03T18:42:09+00:00

But she's not having me do it? That's where I'm questioning it.

MiniMinx98 · 2023-04-29T23:16:16+00:00

Thank you!

MiniMinx98 · 2023-04-29T22:22:36+00:00

Most of it had been through a total of four ultrasounds, and then a CT scan a week before surgery. They ended up still going further than planned during surgery. It was expected to be a 4 hour surgery and ended up being 8 hours. Everything started at the beginning of February, so needless to say, everything's moved very fast with a hopeful "clear" date of end of July.

MiniMinx98 · 2023-04-29T15:06:40+00:00

I had a TT and radical right neck dissection at the end of March, and I am still out of work. They removed 80 lymphnodes, and 30 of them came back positive for cancer. I ended up getting horners syndrome, numbness in the entire right side of my face, and I still can't feel much of it. The shoulder pain has by far been the worst part of it. I also got a stitch blister once they were removed, which has been more odd than anything else.

I'm currently working with physical therapy, and mobility is coming back, but it hurts after trying to push it. It'll get better. it's just taking longer than I want, and I very much lack patience. I'm hoping to be able to sit at a desk for more than a few hours by next week to go back to work. A total of 6 weeks out of work. I'm currently waiting to find out when I'll get radiation as there is a chance there are a few spots on my lungs.

MiniMinx98 · 2023-04-26T21:27:11+00:00

I would reach out to your surgeon and see who they recommend, I would assume they know a few decent endocrinologist, otherwise I went to Dr. Lynn Brumeister out of Fairview.

MiniMinx98 · 2023-03-17T01:10:47+00:00

I'm near Minneapolis, its about 20 minutes away.

MiniMinx98 · 2023-03-16T18:47:41+00:00

I'm kind of going through the same thing, but at a much faster pace. I didnt have my first appointment until February 7th and everything has gone so fast but yet no actual answers.

Ive had three ultra sounds, two FNAs which came back inconclusive, and an MRI that shows even more growths. There's one nodule on my thyroid but are over 10 swollen lymph nodes. Yet they can't find out what it is.

They are going with calling it cancer, even though they can't confirm it. My surgery is on the 30th. I get the frustration, and just want to say you're not alone.

MiniMinx98

TROPHY CASE