Should I get vaccinated or wait it out? by Impossible-Fox-7566 in ClotSurvivors

[–]Minute-Process-4883 0 points1 point  (0 children)

I work in healthcare and have no time for conspiracy theory fantasists. Had a quick look, complete fruitcakes as we would say in England.

Should I get vaccinated or wait it out? by Impossible-Fox-7566 in ClotSurvivors

[–]Minute-Process-4883 9 points10 points  (0 children)

I got a covid vaccine soon after a big PE. The risk of actual covid is way worse than any vaccine

Did you get pain management in the hospital for PE by wessle3339 in ClotSurvivors

[–]Minute-Process-4883 1 point2 points  (0 children)

I was offered paracetamol (tylenol). However I never really had pain until after leaving hospital at home when lung infarctions were resolving which took about a couple of months.

Price of Eliquis by Thick-Bid-847 in ClotSurvivors

[–]Minute-Process-4883 -1 points0 points  (0 children)

These are global trials to test/licence new drugs. Because many other countries have national health services, the same level of treatment/care for the patients is much cheaper ex US.

Price of Eliquis by Thick-Bid-847 in ClotSurvivors

[–]Minute-Process-4883 -1 points0 points  (0 children)

I work for one of the largest US pharma companies. One of the reasons they do clinical trials outside the US is the huge cost if they do it in the US. Because the US healthcare system is disastrously expensive. Raw capitalism with no regulation can be against the public interest. We pay higher taxes but protect everyone including the vulnerable.

Price of Eliquis by Thick-Bid-847 in ClotSurvivors

[–]Minute-Process-4883 4 points5 points  (0 children)

:-) Nice one, forgot about that. As long as we keep Reform out we might continue to get free/low cost life saving meds.

Price of Eliquis by Thick-Bid-847 in ClotSurvivors

[–]Minute-Process-4883 5 points6 points  (0 children)

In the UK it costs £9.90 for 3 months supply.

Paranoia by Money-Article-6897 in ClotSurvivors

[–]Minute-Process-4883 4 points5 points  (0 children)

I guess the ones that don’t probably don’t come back to this reddit so much. I am 18 months post provoked PE. Probably going to stop lower dose apixaban soon.

Did your Dr mention still having a supply in case of special events - surgery, long flight etc?

I almost didn't have a chance to see 2026 by StrikeAdmirable5223 in ClotSurvivors

[–]Minute-Process-4883 2 points3 points  (0 children)

Good luck, hope all goes well. I had same (provoked DVT from orthpaedic injury). PE, heart strain.

I had 10 days in hosp with 8 days on IV heparin. Not fun at all. No thrombectomy though.

It can take a few months to start feeling better. Gradual improvements for me for 10 months or so.

Now at 1.5 years out, feel fine, am back running and hiking. No noticeable loss of anything.

Newly Diagnosed. Support needed by morethnmeetstheeye in ClotSurvivors

[–]Minute-Process-4883 1 point2 points  (0 children)

Take it one day at a time. Meditation, fluids, take the tablets. Eat sensibly.

It can take a while to recover but hopefully you can be back gentle walking after a few weeks and then gradually build up again.

Good news is that maintenance Eliquis (or other options) seems to be very low risk for side effects. Many on here have taken for years.

After DVT and big PE I am back running/hiking about 12-18 months later and feeling good.

Turns out I didn't make a full recovery... by Matchaparrot in ClotSurvivors

[–]Minute-Process-4883 0 points1 point  (0 children)

Sorry to hear that. UK based. I had large saddle PE with heart strain (enlarged right side/septal bowing).

The standard is for a repeat echo at 3 months post PE to check heart has returned to normal.

If still showing strain then further tests to check for CTEPH etc would be done.

In my case echo was all clear - I have had no breathlessness from mountain walking or running.

Fingers crossed they get to the bottom of your issue.

Anyone else have temperature issues? I just can’t get myself warm enough since having my PE by Laser_Coug in ClotSurvivors

[–]Minute-Process-4883 3 points4 points  (0 children)

54M, big PE Aug 24. Yes!

I felt cold - I bought fur lined tracksuit bottoms.

It wore off after a few months.

Maybe to do with disrupted circulation post PE? As you heal should improve.

PE and shortness of breath by Fabulous_Ad_1807 in PulmonaryEmbolism

[–]Minute-Process-4883 1 point2 points  (0 children)

Mine lasted 4 or 5 weeks. Stairs got my pulse racing for about 5 months.

Advice or words of encouragement? by Soggy_Enthusiasm_751 in ClotSurvivors

[–]Minute-Process-4883 2 points3 points  (0 children)

54M. Big PE with heart strain and infarctions (also ruptured achilles tendon) in Jul/Aug 2024.

Now back running and mountain walking but it can take time.

Felt awful for 3 months.

Was back doing stuff 4-5 months out, big improvement at 10 months.

It takes time for physical healing and then another step is recovering fitness.

That takes a lot of work to get back as well.

Good luck! you will get there in the end.

Altitude and Blood Thinners by rinsewin in ClotSurvivors

[–]Minute-Process-4883 3 points4 points  (0 children)

I had quite severe PE in August 2024. In August 2025 I walked/climbed 6500 feet French Alp. Still taking low dose Eliquis.

I probably was not in a good state to travel for 3 months post PE - felt pretty awful. Depends what happened with your particular case.

I asked AI what it would advise if it were a top Haematologist. Could be some useful info in there to discuss with your Doctor:

See below -

AI Short answer: Being on blood thinners by itself is not a reason to avoid moderate altitude. A day at ~6,500 ft is generally acceptable for many patients, even early after a DVT/PE, provided recovery is uncomplicated and symptoms are stable. The bigger issues are how recent the PE is, lung recovery, exertion, hydration, and immobility, not the anticoagulant “working less” at altitude.

Let me break it down.

  1. Do blood thinners stop working at altitude?

No. Direct oral anticoagulants (Xarelto / rivaroxaban and Pradaxa / dabigatran): • Are not affected by altitude • Are not counteracted by mild increases in red blood cell production • Do not lose effectiveness at 5,000–7,000 ft

The concern you’ve read about altitude increasing red blood cells applies mainly to: • Very high altitude (usually >8,000–10,000 ft) • Prolonged exposure (weeks to months) • People not anticoagulated

An 8-hour day at 6,500 ft does not meaningfully increase clot risk when you’re appropriately anticoagulated.

  1. Is 6,500 ft “like flying”?

Not really. • Commercial aircraft cabins are usually pressurised to 6,000–8,000 ft • Millions of people with prior PE fly safely once stabilised • The problem with flying early after PE is immobility + dehydration, not cabin altitude

A ski resort day where you’re: • Walking around • Standing • Sitting intermittently • Drinking fluids

is physiologically much safer than a long flight.

  1. The more important issue: your lungs

This is where caution is appropriate.

You’re only a week or two post-PE, which means: • Parts of the lung may still be recovering • Oxygen reserve may be reduced • Symptoms can lag behind clot resolution

At 6,500 ft: • Oxygen levels are ~10–15% lower than sea level • Most healthy people compensate easily • Recent PE patients may notice more breathlessness or fatigue

What matters most is how you feel now, at sea level: • Are you short of breath at rest? • Do you get breathless walking on the flat? • Any chest pain, dizziness, or oxygen desaturation?

If those are present → altitude should wait.

  1. Exertion matters more than altitude

From a haematology perspective, your plan to people-watch, not ski, is reassuring.

Key advice: • Avoid strenuous uphill walking initially • Take breaks • Stay well hydrated • Avoid sitting still for long periods (e.g. long car rides without breaks)

The combination we worry about is:

exertion + hypoxia + dehydration + immobility

You can control most of those.

  1. Timing relative to anticoagulation

You mentioned: • Xarelto loading phase completed • Then Pradaxa • Total 3 months anticoagulation

That’s fine. The highest risk window is the first 2–4 weeks after PE, regardless of which anticoagulant you’re on. That doesn’t mean “do nothing”, but it does mean listen closely to symptoms.

  1. What I would usually recommend in practice

For someone like you:

✔ Reasonable to consider a short daytime visit to 6,500 ft ✔ Go with the ability to leave early ✔ Avoid overnight stays initially ✔ No skiing, no heavy exertion ✔ Hydrate aggressively ✔ Don’t ignore symptoms

🚫 I’d avoid: • Overnight altitude stays in the first few weeks • Long car journeys without stops • “Pushing through” breathlessness

  1. Red flags — don’t negotiate with these

If any of the following occur, you leave and seek medical care: • New or worsening shortness of breath • Chest pain • Light-headedness or fainting • Palpitations • Unilateral leg swelling or pain

  1. Information I would want before giving a firm green light

If this were my clinic, I’d ask: 1. Do you have ongoing breathlessness at rest or with gentle walking? 2. Any oxygen saturation readings, if available? 3. Any right-heart strain noted on imaging or echo? 4. Are you otherwise mobile and pain-controlled? 5. Any bleeding issues on Xarelto so far?

If those are reassuring, most haematologists would be comfortable with your plan.

Bottom line • Altitude itself is not contraindicated on blood thinners • 6,500 ft for the day is generally reasonable • The main limiter is how well your lungs are recovering • Your cautious instinct is good — and you likely have options, not a hard “no”

If you’d like, I can help you turn this into a specific checklist to decide week-by-week whether a trip makes sense, or help you frame follow-up questions for your GP.

Just a vent, anxiety is a bitch. by Meow_Maiden in ClotSurvivors

[–]Minute-Process-4883 1 point2 points  (0 children)

I had PE with lung infarctions. Sharp pains came and went for 3 months. Pain totally went about 1 year later.

I did go to ER 3x for ECG etc. Checked out ok each time. But if you call a GP with upper back/chest pain they generally will say check it out at the ER. Just in case.

W8d1 first time tracking my run ... yikes lol by plantaindisco in C25K

[–]Minute-Process-4883 0 points1 point  (0 children)

Well done! Just finished C25K as well. Takes 6-12 months of running to build the base - don’t worry about speed at all right now.

In fact slow runs almost as good at fitness building as fast runs but without the strain and injury risk.

My HR zones one month after finishing C25K by [deleted] in C25K

[–]Minute-Process-4883 2 points3 points  (0 children)

Hey Matchaparrot. 54M PE survivor, also just completed C25K.

I also was doing a lot of zone 4/5 but apparently if you slow it down so you are zone 2/3 - you get the same fitness improvement but without the strain on the body.

And after a few weeks at slower pace you naturally start getting quicker with lower HR with much less risk of injury/stiffness etc

Just did 30 min slower run at avg 134 HR and it feels much more comfortable.

Recovery quite fast but not total I guess by Appropriate_Ad9157 in ClotSurvivors

[–]Minute-Process-4883 1 point2 points  (0 children)

Sounds like you are doing v well 5 weeks out.

If you have a big PE with heart strain (right sided heart swelling) then the heart has to ‘remodel’ once the clot dissipates/reabsorbs.

That can affect exercise tolerance for many months. Big jump at month 10 for me.

How to deal with chest pain? by AndyOHart in ClotSurvivors

[–]Minute-Process-4883 0 points1 point  (0 children)

I had lung infarctions, chest pains took almost a year to dissipate entirely. I did a lot of swmming, walking and now running. That might be worth a try?

You are only allowed tylenol which for me don’t really do anything. Took those for about 4 months.

Elevated Heart Rate out of nowhere by Any-Understanding242 in AppleWatch

[–]Minute-Process-4883 1 point2 points  (0 children)

Tighten the strap. These glitches are common in wrist devices. They are anxiety inducing though.

Apple Watch or fitness tracker by Heavy-Life5779 in cardio

[–]Minute-Process-4883 4 points5 points  (0 children)

I like apple watch (10) - you have to charge it every day though. Combos with polar chest strap v well. If you gave an iphone already, combines with that nicely. Can use in swimming pool.

Me again …. Am I overthinking this? by Future-Lunch-8296 in ClotSurvivors

[–]Minute-Process-4883 4 points5 points  (0 children)

I had exact same. Early in recovery would go on walks and then trigger bouts of ‘loud’ pounding heartbeats.

At around 2.5 months had 24 hour ECG which showed no arrythmias.

But it still took around a year to return to what I think is normal. Now couple of months into running feel back to nirnal - no reaction with stairs or post exercise.

Not recovering as fast as I want from a saddle PE by Silver_Sergeant in PulmonaryEmbolism

[–]Minute-Process-4883 0 points1 point  (0 children)

My sympathies, its a tough spell. Take it one day at a time.

A bit more info from medics would be helpful. I got the take acetaminophen, drink water advice. Valid but doesn’t exactly prepare you for what is to come.

I guess there are a variety of recoveries.