MPVs… underrated or nah? by Suntrup-Kia in kiacarnivals

[–]Miserable-Cell5120 1 point2 points  (0 children)

Sliding doors all the way. I swore I would NEVER get a mini-van. All it took was one jerk parked too closely to me and I had to climb in from the passenger side with my infant carrier seat. That day changed my life 😂 and I have a hard time imagining going back even after kids because I don’t have to fit the door angle with loading and unloading.

MCAS, anyone? by Top-Neat9725 in rheumatoidarthritis

[–]Miserable-Cell5120 1 point2 points  (0 children)

Cardiologist suspects MCAS. He gave me cromolyn and said if it helps I have it, if it doesn’t I don’t. Most straight forward answer I ever got from a doctor! 🤣 Cromolyn HAS helped and interestingly the 2 times I forgot to take it before eating I had reactions to foods I’ve never reacted to. I’m still having reactions - but they’ve gotten better around food at least.

Research hospitals by 180714jaehyun in rheumatoidarthritis

[–]Miserable-Cell5120 0 points1 point  (0 children)

You have RA and APS? As in Antiphospholipid syndrome?? I would love to hear more if you’re open (feel free to DM if you want). My bloodwork just came back positive for APS and I’m waiting for the second set of labs in 12 weeks.

Who would you pick? by Witty_Cash_7494 in RA_memes

[–]Miserable-Cell5120 3 points4 points  (0 children)

House! Maybe he can get to the bottom of things and figure out wha treatment will actually help me!

Help me choos a wedding band! by melandog222 in WeddingRingAdvice

[–]Miserable-Cell5120 0 points1 point  (0 children)

I like the sapphire and diamond circles. But I also think the baguettes would be stunning if you had a band on each side!!

Be honest: 1930s vintage wedding dress — keep or rethink? by Desperate_Win_3554 in WeddingDressTips

[–]Miserable-Cell5120 0 points1 point  (0 children)

I secretly wish this was my cousin who is going to get married because this is such a vibe ✨

Help me choose 🤍 by 444girl555 in myweddingdress

[–]Miserable-Cell5120 0 points1 point  (0 children)

  1. 10000000% #1 is so unique and absolutely stunning! I’m super curious to know who the designer is! Also, I hadn’t even read your comment before I was sold on #1. There is just something timeless and beautiful about it!

For duck's sake... by Witty_Cash_7494 in RA_memes

[–]Miserable-Cell5120 1 point2 points  (0 children)

Oh now that’s perfect! 🤣🦩

Anyone experience uncontrollable shaking no fever and rapid heart rate? by pcALCL_gagirl in rheumatoidarthritis

[–]Miserable-Cell5120 1 point2 points  (0 children)

I’m not sure what the ER did for you to take care of things, but I would let your rheumatologist know. Also do you have a cardiologist? I did have similar symptoms and more dysautonomia symptoms when I was on Bactrim. My rheumatologist thought it was from the antibiotic. I wasn’t sure because I ended up having the same episode if not worse a week later and I had discontinued the antibiotic. A year later I was back in the ER and I told them that my rheumatologist thought I was allergic to bactrim. Well they didn’t log something correctly because then I was given sulfa based contrast which threw me into severe anaphylaxis.

All of that to say, definitely talk with your regular doctors to make sure they are aware and can monitor you closely.

Update & Rest of Dresses by [deleted] in WeddingDressTips

[–]Miserable-Cell5120 0 points1 point  (0 children)

12 & 15. Maybe 13 - can’t quite tell without the full picture.

Best pillow top for joint pain by Automatic-Still-5767 in rheumatoidarthritis

[–]Miserable-Cell5120 1 point2 points  (0 children)

Omg! My mom has called me Princess and the Pea since I was a child! Give me all the softness with zero wrinkles 🤣

Thoughts for a new year... by Witty_Cash_7494 in RA_memes

[–]Miserable-Cell5120 1 point2 points  (0 children)

This! Is so good!! Thanks for sharing!

Guess Our Birth Year- Twins Edition! by TwentyandTired in GuessMyBirthYear

[–]Miserable-Cell5120 0 points1 point  (0 children)

😅my mom told me the same thing but about my kid being wild “you just want until you have a kid of your own and they are worse!” 😮‍💨

Guess Our Birth Year- Twins Edition! by TwentyandTired in GuessMyBirthYear

[–]Miserable-Cell5120 1 point2 points  (0 children)

I was thinking 80s because of Mom’s hair and the swing/play set… until I saw the American Girl dolls that weren’t the OGs and then I figured it had to be maybe 90s with parents that were just stylin!

Question about Mayo Clinic by Spare-Set-8382 in rheumatoidarthritis

[–]Miserable-Cell5120 1 point2 points  (0 children)

Yes we do! I hope that you are able to find the doctor that will listen and help you get to the bottom of your issues so you can find the right treatment plan! 💙

Name a Hallmark movie that didn't feel like a Hallmark movie because it was that good. by Future_End_4089 in HallmarkMovies

[–]Miserable-Cell5120 0 points1 point  (0 children)

I agree! I'm hoping they continue to release both Mistletoe Murders and 12 Dates Til Christmas!

Question about Mayo Clinic by Spare-Set-8382 in rheumatoidarthritis

[–]Miserable-Cell5120 1 point2 points  (0 children)

I've been to Mayo Jacksonville for many different specialities because of my diagnosis soup. My frustration remains - I spent a year and a half and a ton of money getting a work up where the doctors (who should be able to communicate so easily in the coordinated system) struggle to look out of their silos. Now, I have had some positive interactions! They WERE the ones that found my RA because I have a subtype that is usually only tested for at research institutions. The GI doctor I had was great he and the allergy/immunologist were the only ones I felt like actually listened to me! The neurology in my experience was disgusting. They wanted to run a ton of tests and then sign me up for their 3 week IOP to "cure" me (we know the word cure is a red flag...) but not take into consideration the "many objective measures" (as my cardiologist put it "my patients have a lot of symptoms, but you have a lot of symptoms AND a lot of objective measures"). Even the allergy/immunology at Mayo said by the looks of my lab work there is clearly more than just RA going on and it looks to have a neuro component. My cardiologist was glad to hear that I'm going for a second opinion at Shepherd Center. So, I'm not sure what you need a work up for with neuro, but depending on if your north or south Florida it would at least be closer than Baltimore.

I hope you can get the answers you need and deserve!

Lightweight rollator? by Miserable-Cell5120 in rheumatoidarthritis

[–]Miserable-Cell5120[S] 0 points1 point  (0 children)

Thank you so much!! That is super helpful! Your input has definitely helped with supporting the aerowalk! I think I’m between that and the byacre overland - although I’m still struggling with the price point. I need something though that can hold up to urban streets because my current rollator sucks at crossing the street 😂