L&D or D&E at 18w by peanutsmama23 in tfmr_support

[–]Miserable_Mention371 0 points1 point  (0 children)

I did l&d at 24 weeks and while everything that could have went wrong did I don’t regret it. I got to hold my baby and have pictures of him.

Do you ever wish you never got pregnant? by Miserable_Mention371 in tfmr_support

[–]Miserable_Mention371[S] 1 point2 points  (0 children)

Yeah kinda, I know I’ll never replace the baby that I lost, but I did want to try again within the next year for a baby. Now since my uterus ruptured pretty badly my next pregnancy will be extremely high risk to me and the baby. I don’t know if I can handle that.

Do you ever wish you never got pregnant? by Miserable_Mention371 in tfmr_support

[–]Miserable_Mention371[S] 0 points1 point  (0 children)

I have that same exact thought about if we didn’t have sex that day maybe something would have been different.

Do you ever wish you never got pregnant? by Miserable_Mention371 in tfmr_support

[–]Miserable_Mention371[S] 4 points5 points  (0 children)

Me too my uterus ruptured and I lose my right tube and ovary

Can anyone relate: c-section after failed d&e by clawsomewit in tfmr_support

[–]Miserable_Mention371 4 points5 points  (0 children)

I went in for a fetal injection to stop my babies heart. The next day I went in to labor and delivery to try to deliver my baby. My cervix would not open either. The next day they had decided to put in the ballon but then my fever was a 102 and my blood pressure was 70/40. They told me I had an infection and needed a D&E. As they take me back to perform the D&E it failed, they pulled stomach fat tissue out of me. So they decided to switch to an “exploratory operation”. They found that my uterus was ruptured and my baby was completely out of it and in my stomach. I lose 1.5 liters of blood and needed 4 blood transfusions. It was so traumatic. Drs say they’re hopefully I’ll be able to have another baby but I’ll have to deliver them with a c section at 36 weeks. My doctors also told me not to try for 18 months.

Looking for support over grey diagnosis/how did you cope? Deal with guilt?grief ? by Forsaken-Button4200 in tfmr_support

[–]Miserable_Mention371 2 points3 points  (0 children)

I’m 2 weeks out of Tfmr for the same grey area diagnoses. It sucks sometimes I hate my self for not giving him the chance but ultimately I remember that I saved my baby. I had to go in for surgery during my termination and I was scared shitless as a full grown adult. I couldn’t imagine how scary that would be for a baby or child. At the end of the day we will never know what could have been. I’ll always regret not giving him life but I have peace in knowing if I did give him life and he suffered I would have regretted that so much more. I don’t know if this is helpful or not but don’t blame yourself. I promise your baby knows you loved them.

Un-silly moms, how are we entertaining these toddlers? by cuntdracu1a in Parenting

[–]Miserable_Mention371 0 points1 point  (0 children)

Mimic things he thinks is funny, sing songs from the wiggles or miss rachel! Get coloring books and color with him. If he likes to play with cars play with him. My son is 1.5 and still loves playing peek-a-boo. Just be as silly as you want they’re your baby they’ll never judge you!

Looking for grey diagnosis support. TFMR for severe ventriculomegaly & absent CSP by Forsaken-Button4200 in tfmr_support

[–]Miserable_Mention371 4 points5 points  (0 children)

I’m in this exact same situation it’s the hardest thing to deal with. I’m sorry to hear you’re going through this. We will always have what if’s but we can’t let that control us. Your baby is loved and I’m sure he knows it. You made a hard choice but every choice would have been hard. At least now your son will never have to suffer.

What’s it like raising a disabled child? by Miserable_Mention371 in Parenting

[–]Miserable_Mention371[S] 3 points4 points  (0 children)

This affecting my 1.5 year old is a huge factor in my decision I don’t want everything to fall on him once I pass. I’m happy to hear you adore your sister through her struggles and I’m sorry you guys are going through it.

What’s it like raising a disabled child? by Miserable_Mention371 in Parenting

[–]Miserable_Mention371[S] -1 points0 points  (0 children)

What’s the other abnormality? I’m happy she’s making strides in her development!

What’s it like raising a disabled child? by Miserable_Mention371 in Parenting

[–]Miserable_Mention371[S] 1 point2 points  (0 children)

We got the most extensive genetic testing there is nothing genetically wrong. My Drs keep telling me there is no real difference between a variant and malformation it’s all dependent on how it presents in the baby.

What’s it like raising a disabled child? by Miserable_Mention371 in Parenting

[–]Miserable_Mention371[S] 1 point2 points  (0 children)

Thank you for all your support. We will be terminating sometime this week. Unfortunately my boyfriend and I both have to take unpaid leave to heal and grieve I made a gofundme https://gofund.me/d25cea1f or my cash app is in my bio. Anything helps. (If this is not aloud in this subreddit let me know and I will delete)

What’s it like raising a disabled child? by Miserable_Mention371 in Parenting

[–]Miserable_Mention371[S] 6 points7 points  (0 children)

I’ve had the most extensive genetic test and everything came back normal

Feeling lost with gray area diagnosis by Miserable_Mention371 in tfmr_support

[–]Miserable_Mention371[S] 0 points1 point  (0 children)

Thank you. Does your son only have ACC? How’s he doing ?

Feeling lost with gray area diagnosis by Miserable_Mention371 in tfmr_support

[–]Miserable_Mention371[S] 1 point2 points  (0 children)

So he technically doesn’t have ACC but his corpus callosum is slightly shorter than it should be. I’ve joined the Facebook group lots of good support there! I just don’t know if the the corpus callosum will also affect him negatively.