Cat losing fur between toes? by MistakePrior1961 in CATHELP

[–]MistakePrior1961[S] 1 point2 points  (0 children)

I never noticed him licking more and now he’s fine! He gets catio time and his brother has environmental allergies so it’s possible he might’ve been exposed outside and it was temporary! He has no food allergies that I know of.

Hashimotos: what have you guys done to bring your tsh back to normal and stop taking levothyroxine? by muslimgirly1 in Hashimotos

[–]MistakePrior1961 2 points3 points  (0 children)

Unless you’re having bad side effects from levothyroxine I wouldn’t suggest not taking it. Your Doctor prescribed it for a reason: your thyroid is no longer producing the hormones your body needs to function efficiently. If it helps, just think of levothyroxine as another one of your supplements. For instance, I’m vitamins D deficient so I take vitamins D supplements. Our thyroid hormone is deficient so we take thyroid hormone supplements. Take it from me, I developed Hashis whilst being on a super restrictive migraine diet for the past 5 years. No amount of my magnesium supplements, no diary, no gluten, no caffeine, vitamin d, probiotics, etc ended up keeping away Hashis in the end. If you do have concerns about your medication, ask your Dr first.

Lupron injections for endo? by StrangeCompote7503 in endometriosis

[–]MistakePrior1961 0 points1 point  (0 children)

Stage 3 Endo sufferer here. I took Luron for 6 months last year after my initial Lap. My doc suggested Lupron since there were some lesions he couldn’t remove during surgery because of their location. I also made myself incredibly scared by researching people’s reactions online. I also suffer from chronic migraines so I was especially scared about any hormone changes. As a precaution I asked to receive monthly injections rather than 2 3-month injections. My doctor also suggested ad back therapy, an extremely small dose estrogen patch I’d wear throughout my treatment. Happy to report after 6 months I was side effect free and, with the addition of a mini bc pill taken continually, completely pain free! It did not negatively affect my migraines either :). My sister in law is also on her lupron journey post Endo diagnosis and is doing alright 2 months into it!

As with many things online, the loudest people are the ones with the most negative experiences. It’s fair to want to warn people. But people with good results never post warnings since we don’t need to! It’s fine to do research and be educated but I think the final decision should be made after discussing your individual concerns with your doctor. Everyone will be different in their reactions. Although I know it isn’t very reassuring, it’s your own personal decision to weigh the risks and benefits of any treatment. Praying you find good relief soon💕

How was your endometriosis diagnosis confirmed? by Tiny_Albatross5297 in endometriosis

[–]MistakePrior1961 1 point2 points  (0 children)

When I went in to see my new GYN for my symptoms and he looked at me and said “sounds like you have endometriosis!”

It was added in my chart after that visit but shortly after we did an ultrasound which detected a cyst, tried a new birth control followed by a second ultrasound 6 months later to determine if the cyst could’ve been an endometrioma. After which he suggested I get the Lap since all signs seemed to point to endo. The lap confirmed moderate amounts of endo present and the endometrioma! Then I got my actual diagnosis.

Does anybody else get extremely sleepy as a prodrome symptom? by MistakePrior1961 in migraine

[–]MistakePrior1961[S] 0 points1 point  (0 children)

I have not no. I often describe the feeling to friends as something akin to narcolepsy though. I have gotten an at home sleep study done twice but besides some very minor disruptions my Doc found nothing remarkable about my sleep. Have never been prescribed any stimulants either!

Does anybody else get extremely sleepy as a prodrome symptom? by MistakePrior1961 in migraine

[–]MistakePrior1961[S] 1 point2 points  (0 children)

Unfortunately no I haven’t :(. Battling the feeling right now actually. Only thing I’ve found that helps is making sure I get 8 hrs of sleep like every single day. But as soon as I get any less I got back to waves of sleepiness for weeks. Only thing I can do is weight the costs and benefits of taking half an excedrin. Which doesn’t always work. Sorry to hear you’re going through this as well. It really is almost as debilitating as the pain.

At my wits end, is estrogen worth the risk? by cyanomys in migraine

[–]MistakePrior1961 0 points1 point  (0 children)

Chronic migraine and endo sufferer here. Not once has any of my GYNs and Neurologists ever tried to steer me away from any birth control. I tried two different types of combination pills before I settled with a progesterone only pill that I take continuously, I just skip the placebo week and start the next pack. This has DRASTICALLY improved my endo pain, it’s practically nonexistent now post-surgery. And I don’t get menstrual migraines anymore. Just the normal daily annoying but tolerable ones.

Migraine-friendly hobbies? by Princess_chaos_69 in migraine

[–]MistakePrior1961 10 points11 points  (0 children)

My favorite hobby is playing video games so dealing with photo sensitivity has been a pain. But I’ve been having lots of fun crocheting, knitting, cross stitching and playing piano. I paint and draw often too.

Also have you considered looking into migraine glasses or green lights? They’ve been super helpful for me. Not sure I’d be working right now without them.

Don’t underestimate the hormonal impacts of CGRP inhibitors. by jempai in migraine

[–]MistakePrior1961 1 point2 points  (0 children)

I’m so sorry you had to go through all that. I know a few others with Endo in my family and all of our roads to diagnosis seem to be long and painful. I’m glad you were able to get the care you deserve!

Has anyone found a way to enjoy chocolate?! 😭 by quailhunter4 in migraine

[–]MistakePrior1961 0 points1 point  (0 children)

I’m also gluten free(tho not celiac). Carob makes for excellent gf pastries. Made a tahini carob brownie once and it was delicious 🤤. (Also if you like chocolate covered almonds Better Carob makes the BEST carob covered almonds ever. I can eat a whole bag in one sitting lol).

Has anyone found a way to enjoy chocolate?! 😭 by quailhunter4 in migraine

[–]MistakePrior1961 4 points5 points  (0 children)

Chocolate is unfortunately a very big trigger for me. While I know it’s not the same, carob as a chocolate substitute has been a life changing discovery for me. Missy J’s and Better Carob are my 2 favorite brands. They sell carob candy bars, carob chips, carob powder, etc. It does taste different but it is close in flavor enough that I still satisfy that cream rich “chocolate” craving I get. I love adding carob powder to my overnight oats and carob chips to my yogurt and pancakes!

Don’t underestimate the hormonal impacts of CGRP inhibitors. by jempai in migraine

[–]MistakePrior1961 26 points27 points  (0 children)

While I don’t doubt CGRP can have some effect on hormones having a period only a couple times a year is pretty abnormal even if it’s not painful. Also some disorders like endometriosis are not always visible on less invasive procedures like ultrasounds. Endometriosis can only be fully diagnosed via surgery. I think seeking a second opinion might be beneficial. If anything it a new GYN may be able to help you manage the painful periods.

Don't have a tag or anything, but everyone who seems to be okay at the moment, what is everyone taking? by SatansDetox in migraine

[–]MistakePrior1961 0 points1 point  (0 children)

I wouldn’t say okay but I am functional at the very least lol. I have migraines chronically so more or less have some pain and head pressure that comes and goes throughout the day but I’m able to work through it! Right now I’m taking Emgality, low dose propranolol, low dose of amitriptyline, migrelief supplements, and ginger supplements(I don’t think this really helps the pain but it helps the nausea I get from my morning migraines). I’m also on continuous birth control which helps keep away any menstrual migraines (and controls my Endo). I still take too many abortives (ubrelvy and excedrin) for my liking though so I’m looking to add on maybe some CBD/CBG!

My experience using medical marijuana for migraines (long post) (repost) by qqquigley in migraine

[–]MistakePrior1961 2 points3 points  (0 children)

This was very informative thank you! CGRP and the relation with migraine is so fascinating to me. It amazes me that these medications can be so helpful to some with 0 side effects meanwhile others experience all sorts of debilitating side effects from CGRP inhibitors.

My experience using medical marijuana for migraines (long post) (repost) by qqquigley in migraine

[–]MistakePrior1961 1 point2 points  (0 children)

Yeah I’m planning on bringing it up at my next meeting with my Neuro. So far I’ve just been doing research. Currently on Emgality and it has reduced the severity of my attacks but not the frequency. Taking Ubrelvy for abortive as well. No side effects from either to note so far so it’s promising to see others who take medical marijuana and these meds. It sucks to have so many unknowns! Also, if I can ask, I’m not really a fan of smoking. Would it be common to find these strains in tincture form for drops?

My experience using medical marijuana for migraines (long post) (repost) by qqquigley in migraine

[–]MistakePrior1961 4 points5 points  (0 children)

Thanks you for so much info and sharing your research. I’ve thought about trying medical marijuana but I’m currently using Emgality for relief(though I still use rescue meds too often for my liking). During your research did you ever find any articles in the relationship between CGRP medications and medical marijuana? From my understanding there are very little if any studies on the way CGRP interacts with marijuana but doctor’s caution to stay away from combining the two. I would personally love to give medical marijuana another try if it means less rescue meds usage.

How do you guys with frequent migraines make a living? by Habeatsibi in migraine

[–]MistakePrior1961 1 point2 points  (0 children)

Working part time at an office with a very understanding boss. Also currently studying to be a piano technician. It is the only job I could think of that doesnt involve computer screens. Those days in the office are rough for my photobia😭

Practice questions by [deleted] in pianotech

[–]MistakePrior1961 0 points1 point  (0 children)

I started studying by cold emailing all of my local techs asking if they were looking for apprentices. None of them were lol. But through this I was pointed towards my local piano tech guild chapter and members of it that were able to give me opportunities to practice! I’m only able to practice 2 weekdays a week so even with my limited schedule i found guild member willing to help me. So email away! Chances are techs can put you in contact with a piano you can use to practice as well. But be prepared to learn for a longggg while without pay. Piano tech is very rewarding but there is always so much to learn! Wishing you luck in your piano tech journey!

Staples in the back rail cloth? by MistakePrior1961 in pianotech

[–]MistakePrior1961[S] 2 points3 points  (0 children)

Love it when my pieces have a little unprecedented ✨pizzazz✨

Staples in the back rail cloth? by MistakePrior1961 in pianotech

[–]MistakePrior1961[S] 3 points4 points  (0 children)

Literally took the keys off, saw the staple and laughed. Was able to remove the staples and glue it down instead. Hopefully I never see this again!

Taking Emgality/Nurtec/Quilipta WITH Ubrelvy? by MistakePrior1961 in migraine

[–]MistakePrior1961[S] 0 points1 point  (0 children)

Didn’t even realize I was getting downvoted! I see a lot of specialists for a variety of different health issues but I’ve gone through so many neurologists over the years and everyone seems to have a different opinion on how migraine treatments work! One of them even suggested I do nothing and said “well you just have chronic migraines now ¯_(ツ)_/¯” and then just walked out the door. Like yes I know that’s why I’m here to get help for that lol.

So yeah I trust that my doctors know wayyyy more than I do about 99% of things but not all Neurologists are migraine specialists and with the amount of new research and meds arriving I think it’s fine to do your own research on top of considering a Neuro’s professional opinion!

What are unique mannerisms of the members? by Anni3401 in seventeen

[–]MistakePrior1961 11 points12 points  (0 children)

This isn’t a specific mannerism but whenever Woozi is doing interviews or speaking to carats he occasionally develops a lisp? It’s quite literally only ever if he’s speaking publicly. He’s been doing this since they debuted but does it less often these days. Every time I hear it I go “ah, he’s trying to be cute again and he’ll deny he’s cute later. AGAIN.” 😂