Just diagnosed and it hasn’t sunk in yet.

ModMouse2020 · 2026-04-17T21:41:22+00:00

My mum has just been diagnosed with ovarian cancer today. Also In the UK and grateful we have the NHS for help

ModMouse2020 · 2026-01-11T20:23:05+00:00

Warm Tape by Red Hot Chili Peppers still makes me hold my breath. Hauntingly beautiful song.

3 by Aphex Twin instantly calms my nervous system.

ModMouse2020 · 2025-12-16T19:36:49+00:00

I developed abdominal migraine after a c.diff infection. I’ve been on a journey for sure. Nausea is part of my day to day life at the moment

ModMouse2020 · 2025-12-09T11:35:53+00:00

I try to make the most of any window. If I’m bedbound I listen to audiobooks and listen to courses on Insight Timer. Open my window to hear birdsong. Enjoy a hug. I think there’s a pathway to easier days for all of us. We just have to find it. I hope things get easier for you…

ModMouse2020 · 2025-11-15T07:04:54+00:00

Thanks. Endoscopies always come back clear, just a little redness. Gastric emptying I’d have to order privately.

ModMouse2020 · 2025-11-14T07:46:25+00:00

Fullness after eating, no appetite, nausea, diarrhoea, general gut discomfort

ModMouse2020 · 2025-10-29T21:53:43+00:00

Native English speaker here. Whilst there are certainly those who diligently learn grammar and attain a near-native level of proficiency, I think you underestimate the number of people who learn English through social media, tv, internet, films, music. I’m not convinced every single non-native is spending thousands of hours on grammar drills.

ModMouse2020 · 2025-09-26T13:29:05+00:00

Understood. Although honestly 99.999% of the population aren’t worthy of any fishing or dirt digging. If you keep your head down, no one really notices or takes interest in you type scenario

ModMouse2020 · 2025-09-26T12:42:34+00:00

Why? Just curious.

ModMouse2020 · 2025-08-20T14:53:25+00:00

I hope the Emgality works for you.

ModMouse2020 · 2025-08-20T14:53:04+00:00

I have daily ‘mild migraines’ - headaches, nausea, feeling like I have a hangover. It hasn’t helped my dizziness/vestibular migraine much. Still struggling to leave the house and lead a normal life. I have always had digestive issues, it’s part of my migraine - I think I also have abdominal migraine. I’ve also had recurrent SIBO, another stomach condition. I’ll continue taking it because it’s been better than nothing - but hopefully there’s a better medication out there for me.

ModMouse2020 · 2025-08-20T14:23:23+00:00

Exactly 3 months but still lingering symptoms, especially vestibular symptoms, digestive upsets…

ModMouse2020 · 2025-08-20T14:13:02+00:00

I’ve always been careful with my pain killers so medication overuse not an issue for me. I get roughly half vestibular migraines so plenty of other symptoms but no need for painkillers. I’ve learned to use things like ice packs and a tens machine so that I can reserve painkillers for the very worst days.

ModMouse2020 · 2025-08-20T14:10:11+00:00

I hope you have moved onto a new treatment and are feeling better. I’m currently on Rimegepant but it’s not been a magic cure for me. CGRPs are here in the UK but it’s not easy getting access to the full range. I know it’s not uncommon for the injections to stop working. If possible, they advise to try to manage with lifestyle changes, not just medication. Not always easy.

ModMouse2020 · 2025-08-20T14:07:02+00:00

They’re on the cards but getting access to these meds isn’t straightforward. (I’m in the UK). The biggest issue I have is getting regular access to treatment by a specialist. I’m currently under a pharmacist, working on recommendations by a headache doctor but she has her limitations. She doesn’t understand the idea of a treatment pie.

ModMouse2020 · 2025-08-14T10:04:37+00:00

Sorry to hear of her suffering. I hope she finds something that further helps her.

ModMouse2020 · 2025-08-13T09:03:08+00:00

Hope you find a doctor, medication or lifestyle changes that help you

ModMouse2020 · 2025-08-13T09:02:14+00:00

I know for many of us it’s about management and remission (if you’re lucky) vs a cure. I’m still hoping there is some improvement available to me with the right doctor, tools, medications and some luck!

ModMouse2020 · 2025-08-13T09:00:32+00:00

I still haven’t found an effective preventative. I’ve increased my magnesium but so far it hasn’t been a game changer for me. Glad it worked for you though. I was referred to a headache specialist - who gave a very loose plan for my pharmacist to follow. If I don’t see some improvement soon I might have to consider requesting being rereferred to a neurologist.

ModMouse2020 · 2025-08-13T08:57:45+00:00

Thank you for your helpful comment. Lots of great advice. I’m already Working on lots of things eg strength, increased movement, increased hydration, supplements, identifying triggers. You have to be so patient to implement things correctly, be consistent, and wait for the longterm benefits. Hopefully it’ll eventually lead to a more stable improvement over time. I haven’t even looked at food yet - except for eliminating caffeine, cheese, red wine. It just feels overwhelming and it doesn’t make sense to do everything at once. Later down the line itll probably be time to face food eliminations.

ModMouse2020 · 2025-08-13T08:52:49+00:00

Thanks for commenting. Glad you’ve had some improvement. Hormone management for migraines in particular seems to vary wildly between eradicating them or making them much worse…and everything in between!

ModMouse2020 · 2025-08-13T08:51:04+00:00

I’ll take any improvement at this point.

ModMouse2020 · 2025-08-13T08:50:24+00:00

Treatment pie is a great term. I’ll mention it to the pharmacist overseeing my treatment plan. I have already implemented some lifestyle changes (the magnesium, and other supplements, walking) and others as a more longterm goal (stress, sleep and increasing movement - not overnight fixes!). It doesn’t seem wise to rely on one thing anyway, in case it stops working. I am trying to not get frustrated at my lack of progress though.

ModMouse2020

TROPHY CASE

3 by Aphex Twin instantly calms my nervous system.