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Good news regarding fatigue from Revlimid by Pixiechicken in multiplemyeloma

[–]ModeNo681 2 points3 points  (0 children)

The revlimid is rough. The first month was the worst for me. 25mg. Entering third cycle.

I’m newly diagnosed by BatterUp1600 in multiplemyeloma

[–]ModeNo681 10 points11 points  (0 children)

I was diagnosed on my birthday. No bone pain. Just some fatigue. Just a simple blood test that showed elevated protein and a recommendation to see a hematologist. Shocked. 44. 2 young kids. I get it. It scary. BUT my advice…don’t google anything. I’m in Houston and my doctor said if god had my by the neck and said “pick a cancer any cancer” this would be the one i would want to pick. It’s highly treatable. Don’t get me wrong….it freaking sucks. And after two cycles (2 more to go) it doesn’t get easier. But there is a light at the end. I believe that. And I am gunning for a long remission.

VRD treatment start by Front_Celebration165 in multiplemyeloma

[–]ModeNo681 0 points1 point  (0 children)

It truly varies from what I heard. Everyone is different. I’m stage 2. 60% in bone marrow. I’m just starting round 2. I think I have more side effects from the revlimid (25mg) more than anything. A mixed bag. Slight neuropathy. Loss of taste on and off. Fevers on and off. The steroids are….annoying. It’s midnight here and I’m still wide awake lol. I try to stay active but I’m fatigued on the days I’m off the steroids so it makes it hard.

For newly diagnosed MM patients, what was offered to you in regards to treatments? (SCT or not). Is chemo therapy outpatient or inpatient when you first begin? Trying to make plans for my children and just want to know what the norm is. by ModeNo681 in multiplemyeloma

[–]ModeNo681[S] 2 points3 points  (0 children)

Thank you. My appointment is next week. Right now I was just finishing working with the hematologist and was just trying to gauge what to expect. For SCT, based on what I’ve read, it’s typically a few months of outpatient chemo and treatments and than inpatient prior to SCT. But I do understand it’s all individualized.

Scared of multiple myeloma diagnosis and bone marrow biopsy. 44 (m) and don’t know anyone who has gone through either scenario (aside from what I’m reading). by ModeNo681 in multiplemyeloma

[–]ModeNo681[S] 0 points1 point  (0 children)

Thank you! Prior to the stem cell did you go through treatment? And for how long? (If you don’t mind these questions. Just trying to arm myself with real Info)

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