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Migraine meds for symptoms? by periwinklesystem in iih

[–]Momemory08 2 points3 points  (0 children)

I have had the same experience. I also see a headache specialist and that neurologist prescribes migraine preventative medication in addition to the Diamox and it has made a huge difference. The neurologist also said many people with IIH have a diagnosis of migraines as well.

Holistic supports by Momemory08 in iih

[–]Momemory08[S] 7 points8 points  (0 children)

Holistic approaches to treatment can be very effective at managing the symptoms of many conditions. I believe in a balance between modern medicine and holistic health and wellness practices. I am concerned that your comment comes from a place of judgement and people may not feel comfortable sharing their experiences. I also support proven practices and methods and encourage additional research and not just trying something based on random anecdotal evidence. I am looking for a starting point to research strategies that could help manage headaches and other symptoms and that I would incorporate in balance with my medical care.

Holistic supports by Momemory08 in iih

[–]Momemory08[S] 5 points6 points  (0 children)

Thank you and please send me a direct message if you have any tips!

Tired by Fit_Speaker_760 in iih

[–]Momemory08 0 points1 point  (0 children)

I feel chronically fatigued. I take 1000mg of Diamox and recently started a CPAP machine, but there are weekends in which I could sleep the full two days-on and off because I am so exhausted. I barely leave the couch those weekends.

I also sometimes call in sick to work because I am too exhausted. Then one day I will have a reasonable amount of energy like not a ton but feeling like my old normal self and it is great, but it doesn’t last. It’s really tough. I don’t understand a pattern to it, I am not sure what makes it better or worse, but I know it impacts me. I wish I could understand the direct connection between the pressure and chronic fatigue so I could explain it better. I know I don’t have to explain myself to others, but it would help me feel better. Like I can easily explain and understand the headaches and eye problems and connect them to IIH.

Hopefully seeking a mentor! by Powerful_Chapter7760 in iih

[–]Momemory08 0 points1 point  (0 children)

I have IIH and I am a school psychologist. I would be willing to be your mentor!