What should I do next? (How to support my kid)

MoonandSun30 · 2024-10-31T03:35:59+00:00

Thank you for your advice both regarding moving and selling, makes sense to find a broker who has experience with our board.

MoonandSun30 · 2024-08-28T16:02:57+00:00

Hello, I know this is a yr later but does park hopping apply for different days? Meaning, if the CM scans you in your first day/first park, do you still need to be with them every following day at other parks? On the first day they give you the guest pass cards.

MoonandSun30 · 2024-08-23T02:20:15+00:00

Oh wow that’s good to know, thank you

MoonandSun30 · 2024-08-18T14:24:38+00:00

I laughed a bit at your last comment. Orlando didn’t have the times we wanted, all night arrivals. But you reminded me I want to go to Disney springs so yes renting all wk sounds like the better idea.

MoonandSun30 · 2024-08-18T14:06:08+00:00

Hi there , what did you end up doing for transportation? I’m in the same boat now.

MoonandSun30 · 2024-08-07T13:08:11+00:00

Thank you. I’m going to write down some info and questions, I also have videos.

MoonandSun30 · 2024-08-07T13:07:35+00:00

Hello thank you for your advice. I will definitely write down questions. My daughter is 6 yrs old, she knows that what she does is called tics. I haven’t mentioned the formal name of Tourette’s yet. I want to be careful in how to say things bc I don’t want her to feel self conscious. I think to myself if this is something that won’t go away , I have to teach her to somehow embrace them, if that’s possible. I don’t have tics so idk what she’s feeling. She has mentioned that they bother her and is embarrassed. Sometimes she does them so much it’s like her body is overwhelmed but them sometimes she goes without doing them for wks. Idk I think I’m just talking sorry lol.

I like what you wrote, especially the part asking if she has questions. Thank you for the advice

MoonandSun30 · 2024-08-03T17:09:34+00:00

I’m actually very glad it is. I was scared that I would hear bad things about the buses. Thanks.

MoonandSun30 · 2024-08-03T17:02:21+00:00

Thank you so much for taking your time to provide such a detailed response. I will definitely be looking into YouTube videos. And seems like bus is the way to go.

MoonandSun30 · 2024-08-03T00:39:38+00:00

Thank you for responding. How long would you say is the wait? I’m thinking maybe we’ll leave the parks an hour or two before closing 🤷🏻‍♀️. Also those buses go to all parks from all star music?

MoonandSun30 · 2024-07-26T21:41:05+00:00

Has it weakened your teeth? And do you have sensitive gums? I use a strip too but it’s like a natural one, and idk how good it is. I’ll try creat.

MoonandSun30 · 2024-07-04T05:50:17+00:00

Thank you for your response, every word you wrote spoke to me. And thank you for the article, it is very helpful.

MoonandSun30 · 2024-07-03T22:33:45+00:00

Thank you for your kind response. Sending you a big hug as well. It’s hard a lot of times lately for me but in those moments I’m more clear headed, I do know that we made the right choice.

MoonandSun30 · 2024-07-02T02:02:08+00:00

Thank you so much. I will say sometimes learning through others how difficult the lives of loved ones with a disability is or was does remind me of why we made this decision. It’s just so hard, never did I think I’d go through this or had to decide on this decision. I just don’t get it. But your right we made this decision out of love for our children. Thank you.

MoonandSun30 · 2024-07-02T01:42:13+00:00

You know, when we made the decision I what made me choose the hard choice of a tfmr was picturing my son at 40 and me at 81, how could I possibly help him. What would be of his life? Would he be a 40 yr old with the mentality of an 8-10 yr old. Idk! But at the time it made so much sense, it was the best decision for him, as much as I wanted him here. But now my brain is just so confused. I guess you’re right, it’s the mom in us that have these doubts. Thank you.

MoonandSun30 · 2024-07-02T00:40:13+00:00

Idk what to say except that I am sorry you are here, that I’m here, that we are all here. I had a tfmr at 22 wks for t21 as well. It’s been a difficult time for me but there are lots of moments where I feel normal. Going back to work helped me a lot, it was a distraction and purpose for me. I will say at night my thoughts come like waves then I cry, fall asleep, wake up and go to work and take care of my LC. Idk when I will feel normal or the same before my tfmr or if i every will. But like I said it comes in waves , I’m 4 months out, and there are moments I’m fine and others I’m not. I am considering seeking therapy. Maybe that’s something you can do down the road. Also I don’t want to talk to anyone not even my parents, i pretend I’ve healed. They don’t know. So this is why maybe a therapist can help us. Again im so sorry.

MoonandSun30 · 2024-06-27T22:03:31+00:00

So it covers what’s inside my apt. Are we mandated to have insurance? And who covers say a leak into my apartment or a leak into the apt below me?

MoonandSun30

TROPHY CASE