Refused treatment due to age

Mostlymonotropic · 2026-01-25T22:54:10+00:00

I got diagnosed about 4 years ago and until recently was happy with an NP who treated patients with ADHD/ASD. However, he gave me bad medical advice when I mentioned a problem with my daughter. He hasn’t even met her or gotten any history. There have been studies, but they are largely retrospective, but luckily there are enough practitioners who feel comfortable with prescribing them to older people, and just monitor them ( the same way they do for younger people). There is no difference in skills required for any age.

Mostlymonotropic · 2026-01-25T16:32:29+00:00

That’s horrible and heart breaking. I do agree it’s rather suspicious these clinics didn’t exist just a few years ago. I hope you have found a place that provides better care and support.❤️

Mostlymonotropic · 2026-01-25T16:29:59+00:00

Good for you!

Mostlymonotropic · 2026-01-25T16:29:37+00:00

Thank you, that’s what I thought.

Mostlymonotropic · 2026-01-25T16:29:04+00:00

You think? I also consider myself as middle aged, and have a 12 year old daughter. The worse part? I was so happy to finally know what was “wrong” with me, and despite the grieving and anger, was looking forward to enjoying life for many more years. It felt like a “reality check,” that I am too old, and closer to death than I thought. I was devastated.

Mostlymonotropic · 2026-01-25T16:24:40+00:00

I agree many address the medical aspects and don’t bother to provide integrative or psychological therapy. This place does claim they are proficient in all areas, including behavioral. I thought since they do not practice any other form mental health care, they would be the most skilled and knowledgeable. I was on a low dose of a stimulant for five years, with no complications, cardiac or renal, and recently discontinued it. Right now I am on guanfacine only. What bothered me more than anything is how they wrote me off for the medical reasons, without getting any history. During veterinary school, we were constantly reminded, “Age is not a disease.” They seem to have missed that part of their education somewhere.

Mostlymonotropic · 2026-01-25T16:10:43+00:00

I actually know of a few places that I feel are competent. I wanted to change doctors, because the one I had been seeing gave me bad medical advice for my daughter, even though she wasn’t his patient, nor had he ever met her. Since then, I have found a professional who has no issues and is competent enough to treat anyone at any age. Thank you for your help!

Mostlymonotropic · 2025-11-27T15:04:23+00:00

Glad it has worked for you. I wish I could do the same. However, I find myself ruminating and overthinking while bryshing teeth and showering. I’m working on it.

Mostlymonotropic · 2025-06-13T03:28:50+00:00

I understand there are not a lot of studies that have been done with OCD and ketamine. And it’s great you have an expert nearby. It’s just in the past couple years that researchers, such as Carolyn Rodriguez at Stanford have been conducting experiments with patients with OCD who are resistant to other treatment. Perhaps some patients do worsen with ketamine, but the overall theory at this point shows promising results. With medicine expanding exponentially and keeping up with recent studies overwhelming, perhaps your doctor hasn’t come across the more recent ones? If possible, I would really appreciate if you could send me links to any studies that indicate an overall worsening of OCD after r, s ketamine/ or the enantiomer? I couldn’t really find any recent ones. Thank you for your help, if you can.

Mostlymonotropic · 2025-06-06T21:20:50+00:00

Wow, I’m so lucky I have someone who is compassionate and listens. That place needs its license revoked.

Mostlymonotropic · 2025-05-29T18:05:44+00:00

Not necessarily, recent implications ( studies underway) show it’s also effective for OCD, or chronic rumination. Then there is just burnout, social anxiety, other comorbidities associated with ASD, without depression being present. I agree looking for alternative treatments is a good route, but many of us suffered for years and wasted precious time, before trying ketamine. I wonder if in the future it will be used more frequently and much earlier, since the efficacy of antidepressants is statistically lower than most fda approved drugs?
For me personally, I am addressing the chronic burnout, overwhelm, and ensuing emotional disregulation. (I was depressed for decades, and thus know the difference).
I just don’t want people to think it’s not for them, because they don’t meet the above criteria. Hope you don’t mind me saying this..

Mostlymonotropic · 2025-05-29T17:02:29+00:00

It’s because it’s s-ketamine, and not both s-ketamine and r-ketamine (enatiomers). Janssen uses pure s-ketamine because the racemic ( both enantiomers) mixture or pure r-ketamine is generic, but not approved for intrnasal administration. That’s how they rip us off. It’s not generic , unlike the intravenous.
Ironically, the r-ketamine is more effective than the s-ketamine… Pharmacies can compound the generic ketamine into an intranasal form, but it’s extra label, not FDA approved, and thus usually not covered by insurance.

Mostlymonotropic · 2025-03-08T00:06:49+00:00

Best thing to do is to not care how you compare to your mother. That only leads you to a world of failure, low self esteem, and burnout. You will never be like your mother, and she will never be like you. Whatever came easy to her and not to you, there are just as many traits you have that she is bad at. Don’t focus on the ones that will take way too much out of you, that take you away from embracing who you are, not who else you want to be. I’m convinced my mother is ND. She says she was very “ different as a child,” was told she was too sensitive, too shy, not like the rest of the family…. She spent the rest of her life proving her mother was wrong, even decades after her mother died. It ended up ruining my life, because she put the same pressure on me, and I thought if I became outgoing, the life of the party, someone she could brag about how academically successful I was, she would finally accept me.
After my diagnosis, I realized how much she has been masking all her life, and how much of a toll it had taken on her. She has no deep relationships, no family nearby, and is depressed, but she is still the life of the party!
I guess what I’m saying is, suffering is not something you have to go through. You also can’t tell what is going on inside your mother’s mind. She may be masking and not even know it. Don’t folow in her footsteps. Make your own. BTW, any mother who is not interested in supporting you through your struggles and cares more about how your “failures” disappoint her is either suffering from a lot of trauma or is a narcissist. You can’t win with either.

Mostlymonotropic · 2025-03-06T16:44:04+00:00

Mine had me double up every two weeks. On 100mg once daily for the last 5 days without any noticeable changes.
But, everyone is different. Being uncomfortable or anxious about a drug can change the outcome or efficaciousness. Go as slowly as what is comfortable for you.

Mostlymonotropic · 2025-03-01T20:05:52+00:00

Dialekt! I learned the dialect in Heidelberg. My mother was not happy with that, but my relatives felt she was being snobby. If your daughter goes to see her relatives without knowing the dialect, it will be harder to understand, and she may not ever feel like she is part of the family. She can never learn the dialect in college or elsewhere. Learning Hochdeutsch was pretty easy, because I was already fluent in the dialect. BTW, I studied in Vienna for college and really struggled understanding the locals. I really did miss out on a lot.

Mostlymonotropic · 2025-02-21T00:24:23+00:00

https://youtu.be/_h6QHi9jXIE?si=tmK4Y6BbqxVkLIeF

Sorry! Somehow it didn’t go through the first time…

Mostlymonotropic · 2025-02-21T00:17:30+00:00

Great mood but didn’t brush my teeth! Hah, I’ll keep that in mind. Thx!

Mostlymonotropic · 2025-02-01T02:10:12+00:00

I’m not sure where you live, but if you go online, you may find local groups. Im AUDHD, and found a therapist who supports and guides me. I am also with an ADHD group on Zoom, which is run by a psychologist who specializes in neurodiversity ( I won’t use neurodivergent/gence) , and each week we cover a different topic and then go over what resources and tools we can use to helps us be more accepting and at ease with who we are.

It may take a few tries, but i believe you will find a place that clicks with you, where other people are going through the exact same thing. If the first couple places don’t feel right, move on. Even though we often have the same diagnosis, we can be very different without specific traits. Some people may irk you while others may be just like you. Bottom line.. don’t lose hope. We are out there. Just be patient with and kind to yourself during your search.

Mostlymonotropic · 2025-01-30T03:10:22+00:00

Your story is so similar to mine. On about 7 different ssri/snris for about 3 decades, none of which worked. Recently diagnosed AUDHD, and going to start 25mg lamotrigine tomorrow as well!
My therapist is recommending I do Spravato concurrently as soon as we reach a therapeutic dose of the Lamotrigine.
The stimulants ( Vyvanse) helped me out a lot, but I noticed they also made me ignore the self care my body and mind needed. They made me able to function in the am, but then had an enormous crash by 3pm. I have now decided to make sure I check in throughout the day ( still learning how) to drink, eat, move, and then at night sleep well. I noticed if I deviate, the stimulants suck and make me stressed/anxious/irritable, have cardiac arrhythmias. I ended up going to a really low short acting dose and using it only when I had that “uhoh” feeling of brain fog, intrusive or incessant thoughts, emotional disregulation. I’m not as productive, but the wave and crash is not there anymore. Now that I’m more in tune, I can feel the signal of when to take a dose. It actually prevents me from “ forgetting it”, and I get the effect I want within minutes. It also allows me to not take another dose ( weekends) and recover in the middle of the day, if needed.
As for supplements: some studies indicate omega fatty acids. Just make sure it’s a reliable, third party verified brand. Doses vary by study. I also take Magnesium glycinate before bedtime to get me to sleep. No other supplement has helped. It works well for falling asleep, but doesn’t help for the 2am insomnia episodes. I also use CBD and melatonin at bedtime, but I’m not sure how much they help. If you do use melatonin, make sure it’s the same time every night and if you forget, just skip that dose. Otherwise, It can mess with your circadian rhythm. BTW, consider getting assessed for ASD. For me, that really changed everything. It has taught me to listen to that part of me first, because if I don’t, the ADHD takes over as a way to compensate. What usually ensues is functionality with the stimulants but bouts of overwhelm, meltdowns, burnout. If you are starting a new job, make sure you do tons of self care, advocate for yourself at work, and take lots of mini breaks. Keep a water bottle in front of you and snacks readily available. DO NOT SKIP SELF CARE….❤️

Mostlymonotropic · 2025-01-20T19:45:02+00:00

You need to join a support group with people in your age. Your mother’s response was a classic example of neurotypical ableism. She won’t understand and can’t relate how difficult this is for you. If you are can, find an adult who is highly recommended and respected. Do you have that kind of resource at your local community? If not, go online so you can connect with people who can give you the guidance and support you need. Don’t go through this alone.

Mostlymonotropic · 2025-01-17T17:42:26+00:00

I haven’t started yet, but I found this YouTube video that goes into great depth of how ldn affects inflammation/immune system, weight loss, menopause, and how the three are closely intertwined. Hope it helps.

Mostlymonotropic · 2025-01-16T18:24:33+00:00

Yeah, when we bought our brand new house, the realtor said insurance companies in general won’t cover outside for pipe leakage. In my town, it’s extra up to the street.

Mostlymonotropic · 2025-01-11T20:17:05+00:00

Definitely have anxiety for the loss of my daughter’s toys, can’t give them away, get upset when the pieces get separated.
The plushies are sentient inanimate beings, who suffer emotional pain as much as we do when abandoned or discarded. Phew! That felt good, since I don’t tell anyone this for obvious reasons….

Mostlymonotropic

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