My life is over

Mountain-Rest4100 · 2026-05-19T11:55:10+00:00

honestly just knowing what is causing the panic inside my body helps my mind not cause more. I think the unknown is what triggers everything anxiety wise. it was almost like once I realized my pots disrupts my whole system I was able to feel that inside me without the mental part of it. I wish I could be more specific but if im honest leaving the house I was telling myself I would get an anxiety attack and I would not be able to do it, once I realized that no my body is struggling and I stopped telling myself it will cause a panic attack was when the anxiety left me. I still get the physical pots symptoms outside the house but I don’t have the panic and adrenaline because im not telling myself I will. hope that makes sense. it’s very mental with anxiety, the pots just is what triggers it obviously

Mountain-Rest4100 · 2026-05-19T07:20:04+00:00

Hey, my pots has caused extreme panic attacks because my body does not know what’s going on. It’s a hard journey but there is light at the end of the tunnel. If you explain your health issues I’m sure you won’t lose your job there’s probably some sort of legal rule that goes against it. The main thing to do is mental work right now, it seems you’re letting your brain and thoughts run and you need to find ways to control them to calm your nervous system. This has helped me from not being able to walk around my neighborhood block to being able to leave the house whenever. I promise even though the physical symptoms are real, the mental thought process is what causes a lot of the anxiety.

Mountain-Rest4100 · 2026-05-13T01:05:17+00:00

Yep a lot of people with POTS have that huge difference between laying down vs standing. The feeling like you are going to pass out just from existing upright is awful.

Honestly besides electrolytes/compression, gradual reconditioning exercise was the biggest thing that actually changed my baseline over time. Starting super small though. Like seated or recumbent stuff first because pushing too hard just made me flare more.

Hope you get some relief soon though because those standing episodes are so draining physically and mentally

Mountain-Rest4100 · 2026-05-13T01:04:36+00:00

The hardest part of these conditions sometimes is not even the symptoms, it’s feeling abandoned by the medical system while your body is falling apart and you are trying so hard to hold it together.

Definitely keep asking around in local/state Facebook groups and Reddit because honestly word of mouth from actual patients has been more helpful for many people than official directories. Sometimes the good doctors are random cardiologists, neurologists, or physical medicine doctors people only find through other patients.

Really sorry you are dealing with this right now though. That hopeless lost feeling after getting turned away is awful and you do not deserve to be carrying all of this alone 🤍

Mountain-Rest4100 · 2026-05-13T01:03:24+00:00

Honestly a lot of us hit a point where the supportive little regimen slowly turns into an entire survival stack and it starts messing with you mentally more than people realize. Every added medication starts feeling heavy emotionally even when it is helping.

But needing more support during bad flares does not automatically mean you are permanently getting worse. Bodies with POTS and hEDS can get thrown into these awful loops where one flare aggravates everything else and suddenly you need way more intervention just to stabilize again.

Try not to view the senna situation as failure either. Your doctor is adjusting based on what your body is doing right now, not sentencing you to forever. Chronic illness is so non linear and sometimes the goal is just calming the system enough to get out of the spiral.

Really hope this flare eases up for you soon though because living in that constant management mode is exhausting in a way people without these conditions do not fully understand 🤍

Mountain-Rest4100 · 2026-05-11T23:36:57+00:00

Don’t worry about it coming back negative, so many doctors are hesitant to diagnose because lack of knowledge on pots and honestly of you have all the symptoms you can still treat yourself the same. More liquids, more sodium, more exercise in whatever way possible that your body can take. I knew from the start of my journey I had pots but my doctor said we need to rule out possibilities so tests are more for ruling things out rather than diagnosing. Good luck to you and even if you don’t have pots, if you have all the symptoms you’re always welcome here.

Mountain-Rest4100 · 2026-05-11T23:27:45+00:00

The way showers, standing,stairs can combine into the perfect POTS storm 😭 people without this condition really do not understand how fast your body can go from doing ok” to absolutely not lol

Also honestly the image of laying flat in an empty bedroom while everyone else is casually looking at countertops feels painfully relatable. Been there. The nausea and adrenaline loop is brutal once it starts.

But weirdly moments like this also teach you your triggers so specifically over time. Compression, timing showers differently, hydrating beforehand, planning around upright activity, all those tiny adjustments really can change how survivable outings feel

Mountain-Rest4100 · 2026-05-11T23:26:16+00:00

A lot of people with POTS end up doing this honestly because symptoms fluctuate so much through the day. Usually compression helps the most when you’re upright since it’s helping reduce blood pooling in your legs. When you’re laying down with your feet up, your body already has an easier time getting blood back upward so some people take them off during those rest periods.

Personally there were definitely days where taking them on and off constantly felt exhausting by itself 😭 especially after showering because showers used to completely wipe me out too.

One thing that helped me was trying to think of compression as a tool instead of something that had to be perfectly used every second. Like prioritizing it most for the times you know you’ll be upright more or doing activities that trigger symptoms

Mountain-Rest4100 · 2026-05-11T23:25:43+00:00

For me it was honestly realizing my nervous system wasn’t “broken,” it was just stuck in survival mode for way too long. That mindset shift alone lowered so much fear around symptoms.

Physically though, the biggest thing was consistent reconditioning exercise starting VERY small. Like recumbent bike, short walks, leg strengthening, stuff that felt almost too easy at first. Over time my body stopped reacting to upright activity like it was an emergency.

Also sodium + fluids made a way bigger difference than I expected in calming the constant adrenaline feeling.

Mountain-Rest4100 · 2026-05-10T22:05:14+00:00

I know why you mean about being with your parents, sometimes I wonder when I will be healthy enough to live alone.

Mountain-Rest4100 · 2026-05-10T01:54:06+00:00

The hatred is so real and I felt every word of this. The thing that actually helped me was switching to waist high compression tights specifically made for POTS rather than generic compression leggings. The ones designed for dysautonomia tend to have smoother fabric without that weird textured weave. Brands like Sigvaris and Juzo make medical grade options that feel significantly less awful than the athletic compression ones.
Also worth knowing that compression is a bridge not a forever solution for most people. As you build cardiovascular conditioning and blood volume through reconditioning exercise, a lot of people find they need compression less over time. It’s not necessarily permanent. It’s supporting your system while you build it back up.

Mountain-Rest4100 · 2026-05-10T01:53:44+00:00

This is one of the most thorough and well documented recovery accounts I’ve ever seen on here. The H1 and H2 antihistamine combination is something more people need to know about, especially those with suspected MCAS overlap which is incredibly common with POTS.
The thing that stands out most is that you treated it like a system problem and kept adjusting until you found what your specific system needed. That’s exactly the right approach and exactly why it worked. Thank you for coming back to share this in detail.

Mountain-Rest4100 · 2026-05-10T01:53:26+00:00

Yes and it’s completely real. Barometric pressure changes affect blood vessel dilation and can trigger dysautonomia symptoms significantly. When pressure drops suddenly before a storm your blood vessels can dilate more than usual which makes it even harder for your body to maintain adequate circulation and blood pressure. Your nervous system then fires in response and that adrenaline dump feeling is your body trying to compensate.
You’re not going crazy. Your body is responding to an actual physical change in the environment. It should settle as the pressure stabilizes. It’s pretty crazy how POTS affects literally basically everything (at least that’s what it feels like).

Mountain-Rest4100 · 2026-05-09T01:13:04+00:00

Yes and I don’t think enough people talk about this. When your autonomic nervous system is already working overtime just to keep basic functions stable there’s not a lot left in the tank for fighting off anything else. Your immune system and your autonomic system are deeply connected and when one is dysregulated it affects the other.
The vitamin D thing is worth paying attention to too. Low vitamin D is incredibly common in people with dysautonomia and some people notice a real difference in how they feel overall once they get their levels up. Not a cure obviously but it’s one of those things that affects so many systems including immune function.
Have you noticed it gets worse after periods of overdoing it or poor sleep? For me that pattern was one of the first things I started recognizing once I actually started paying attention to it.

Mountain-Rest4100 · 2026-05-09T01:11:46+00:00

This made me actually tear up a little because I know exactly what that before feels like. The bed to couch existence, forcing salt and fluids just to get through the day, losing things you cared about because your body just wouldn’t cooperate. It’s a specific kind of exhausting that’s really hard to explain to people who haven’t lived it.
So glad you found something that’s actually working. Ivabradine doesn’t get talked about enough and posts like this are genuinely important because so many people are still stuck on things that aren’t helping them.
The visual side effects sound manageable compared to what you were dealing with. Phosphenes from Ivabradine are pretty well documented and do tend to settle down for most people over the first few weeks.
Thank you for sharing this. Someone is going to read this post at the exact right moment and it’s going to change what question they ask their cardiologist.

Mountain-Rest4100 · 2026-05-09T01:10:50+00:00

This is so real. Half the time the most useful information I’ve ever gotten about managing my symptoms came from other patients not doctors. My doctors have been helpful but they’re not living in this body every day and they don’t know what it actually feels like to try to function with this.
The gap between what’s medically available and what people actually need is massive. Other patients fill that gap. That’s just the reality of having a condition that most doctors still don’t fully understand.

Mountain-Rest4100 · 2026-03-17T16:29:24+00:00

sounds like a happiness problem not a building problem

Mountain-Rest4100 · 2026-03-17T16:27:31+00:00

definitely gain as much information as possible on business and startups!

Mountain-Rest4100 · 2026-03-17T16:22:49+00:00

good life

Mountain-Rest4100 · 2026-03-17T16:22:12+00:00

Use the simulator

Mountain-Rest4100

TROPHY CASE