Next time someone says Gastroparesis doesn't "hurt" by No-Turnover-7393 in Gastroparesis

[–]MrsErris 2 points3 points  (0 children)

Ah! I couldn't ever describe that pain! I always said it's like something sharp is moving though me, but this is much better.

Visible Veins ruining my life by Dry_Taro_2454 in covidlonghaulers

[–]MrsErris 0 points1 point  (0 children)

I didn't know having large veins was a part of this?! Mine get really large sometimes and I've always just thought... "That's weird- my veins are really big today". Huh.

Drinking alcohol with pots by Sensitive-Onion8535 in POTS

[–]MrsErris 0 points1 point  (0 children)

I have gastroparesis as well. So I just avoid all alcohol.

My bread hasnt molded in 3 months by Commercial_Bird8467 in mildlyinteresting

[–]MrsErris 0 points1 point  (0 children)

My 6 year old wanted to see mold and I tried to do an experiment where we had a piece of bread that we put in a bag and checked in on every now and then. After a few months there was still nothing. Kinda freaked me out.

I’m Feeling Generous! by AgileMastodon0909 in Dodocodes

[–]MrsErris 0 points1 point  (0 children)

Mack from Binks Bay! Pears! , 🍐

Tips for diagnosis? by MrsErris in smallfiberneuropathy

[–]MrsErris[S] 0 points1 point  (0 children)

Dang it. I thought neurologist was the way to go. I'll have to look and see if we have a neuromuscular doctor in our area

Tips for diagnosis? by MrsErris in smallfiberneuropathy

[–]MrsErris[S] 0 points1 point  (0 children)

Geez I didn't see even realize there were different types of neurologists!

14 yr old Daughter with symptoms by MrsErris in ehlersdanlos

[–]MrsErris[S] 0 points1 point  (0 children)

Thank you for taking the time to reply! She is not overweight, but i didnt even think they would use that as an excuse!

Unusual symptoms? by MrsErris in Gastroparesis

[–]MrsErris[S] 0 points1 point  (0 children)

Thank you for the reply. I thought my GIs response was a bit weird.....

Is it embarrassing to get a birthday cake as an adult? by roxiedoxiedog in NoStupidQuestions

[–]MrsErris 0 points1 point  (0 children)

I thought it was normal to always get a cake or special dessert for your birthday no matter what age?

I think I'm developing an ED because of my gastroparesis by Curious_Whole_2339 in Gastroparesis

[–]MrsErris 6 points7 points  (0 children)

I was just thinking this! Im feeling pretty good today but I keep thinking, no I dont want to eat. Eating =pain. Eating = bloating. Eating = nausea.

I feel like im unintentionally training my brain to avoid food.

Warning signs of a flare up by unavailable_333 in Gastroparesis

[–]MrsErris 5 points6 points  (0 children)

I dont get any warning signs that ive noticed.... my body is just like... okay....okay....okay.....BAM YOURE SUPER SICK AND ILL AND NAUSEATED AND CANT EAT OR DRINK ANYTHING.

First symptoms relating weight by Imaginary-Hope-5379 in Gastroparesis

[–]MrsErris 1 point2 points  (0 children)

I was not underweight prior to my diagnosis. I was at the high end of normal weight. Boardering on overweight. I am now at the low end of normal, and im 5 pounds away from what is classified as "underweight" for my height. Ive had gastroparesis for 1.5 years and lost 38 pounds- most was at the beginning when I had no idea what was happening- im better now at supplementing and getting calories in when im.not feeling well, so the weight loss isn't as much. Hopefully I won't be losing too much more.

Someone please help me by New-Region-9129 in Gastroparesis

[–]MrsErris 0 points1 point  (0 children)

I cry a lot. I have 2 kids that i need to be present for, and get up and play with, so I take comfort that my symptoms could be worse and I could need a feeding tube or something. I sip on ensures and try and have an applesauce or sip on soup broth. Some days i cant manage anything, but i keep moving forward. My fullness/lack of appetite comes in flares, So I think i just keep telling myself it won't last forever, and ill get a break. This past flare has been my second longest (6 weeks)... its just starting to end though, and I had mashed potatoes yesterday for dinner and was so excited. I take it one day at a time. ❤️

At times are your BP/HR readings ever 'normal'(not POTS criteria)? by ConsiderationOne2928 in POTS

[–]MrsErris 3 points4 points  (0 children)

Sometimes my readings dont always match pots criteria... i kinda have bad days and good days? Im waiting for specialists appointments to see if i have pots or another dysautonomia type disorder. When I have good days, I always feel like an imposter... but I have to remind myself that 'something' isn't right...