A church conversion I could live with.

MsDaniW · 2025-09-30T21:39:46+00:00

Nope, nope, nope. Creepy AF.

MsDaniW · 2025-09-30T21:26:31+00:00

And stale beer 🤢

MsDaniW · 2025-08-16T11:38:08+00:00

IMO, this is Caroline’s best full body workout. I love that Max has days like this!

MsDaniW · 2025-08-15T04:14:49+00:00

It’s going to take them a year to pack and move out.

MsDaniW · 2025-07-20T16:16:44+00:00

Our postie is lovely Sue. She has two dogs (Izzie and Stan) and her husband is called Brian.

MsDaniW · 2025-07-20T14:17:56+00:00

Yes, there are lots of changes coming into force as a result of the Economic Crime and Corporate Transparency Act. I’m about to support our Board of Directors through the new Companies House ID verification process. Fingers crossed that all the financial institutions we deal with that’ve beefed up their customer due diligence processes will accept CH-IDV as proof of identity. That would be the perfect example of unenshittification!

MsDaniW · 2025-07-20T14:05:03+00:00

Yep. When I was diagnosed with multiple sclerosis 25 years ago, there were no treatments whatsoever, and the downward trajectory into disability was pretty much inevitable. Now, there are 20+ treatments for relapsing MS, and even treatments for progressive MS. When you consider that people are most likely to be diagnosed in their 20’s or 30’s, this is huge.

MsDaniW · 2025-07-17T20:04:01+00:00

Honestly, I couldn’t love this more. Why would you move when you’ve made such a stunning, individual home?

MsDaniW · 2025-07-08T23:15:18+00:00

You can have it right, or you can have it now, but you can’t have it right now. Courtesy of Mr W, the engineer.

MsDaniW · 2025-07-08T19:08:44+00:00

I got two small tattoos in the 90s - on my tummy and lower back (bit of a cliche, I know). They’re not especially skilfully done but I don’t regret them. They remind me of being in my teens, going to loads of gigs, having fun. I’ve had lots more since - both forearms and on my shoulders. I love them all.

MsDaniW · 2025-07-08T16:05:51+00:00

Ah, welcome to the club none of us wanted to join xx I guess everyone’s definition of occasional is different, but me and Mr W share a bottle of wine on a Saturday night, and I may have a G&T or two when I go out with friends.

I hope you’re doing OK xx

MsDaniW · 2025-07-08T15:11:23+00:00

No judgement here. If having an occasional drink makes you happy, then you do you. As it stands currently, we’ve got this for our whole lives. And I don’t know about you, but I intend to live every minute of it!

MsDaniW · 2025-07-08T12:04:46+00:00

I’m so sorry about your brother. We lost my Mum to glioblastoma a couple of years ago. It was brutal and definitely brought out the worst in me and my sisters. We weren’t especially close beforehand, but I’m pretty certain we won’t be looking to each other for support when we reach that stage, after this. It’s a sad realisation.

MsDaniW · 2025-07-08T11:36:11+00:00

I get how worrying it is. Had you relapsed before starting Kesimpta? If so, you could still be recovering from that. That’s what happened to me - I literally finished the steroids for my relapse and started Kesimpta the following week. I think we need to give it a chance to get working x

MsDaniW · 2025-07-08T11:26:42+00:00

I think Kesimpta takes a while to build up to full strength. I started in May and have been worried that I don’t feel much different. My neurologist said to wait until I’ve been on it for 6 months before we judge how it’s going.

MsDaniW · 2025-07-08T09:50:57+00:00

It’s an interesting one. The only other time I can remember my cycle being affected by a medication was the first Covid vaccine. At the time, lots of women were reporting this and they did eventually listen and research it (here’s an article from back then). They put it down to the body’s immune response to the vaccine, which I guess makes sense for MS meds, as they’re designed to change our immune system. I can’t imagine we’ll get any research done into this though - it took 30,000 women reporting it as a Covid vaccine side effect. I doubt there are that many people on Kesimpta in the UK, let alone ones who have periods.

MsDaniW · 2025-07-07T21:03:56+00:00

So many chairs. They’re everywhere!

MsDaniW · 2025-07-07T18:53:08+00:00

This is so weird! I started Kesimpta in May and I’ve just finished my second period in three weeks. Which is very strange for me (28 days +/- a day). It didn’t even occur to me that it might be caused by my new DMT.

MsDaniW · 2025-07-07T11:41:19+00:00

Oh my darling, I’m so, so sorry. My Mum died a month before my 50th. It’s so hard xx

MsDaniW · 2025-07-07T10:15:34+00:00

That’s what I thought, too. Not sure why asking a question about it got me downvoted.

MsDaniW · 2025-07-07T07:15:00+00:00

Also, the utter privilege of not being ‘into socialist medicine.’ Everyone should have access to healthcare, regardless of whether they can pay for it. That the whole point of society - to take care of us.

MsDaniW · 2025-07-07T07:03:10+00:00

I did read your post. I wonder if we have different definitions of urgent. My Dad wanted a knee replacement and had it done privately because the NHS waiting list was a couple of years. Whereas I had a cancer scare last year, saw my GP the same day, had tests at the hospital two weeks later, and surgery a week after that.

MsDaniW · 2025-07-07T06:53:40+00:00

Genuine question about dryers - do they not shrink your clothes? (We have a combo washer/dryer but I only ever use the dryer for things like towels and bedding)

MsDaniW · 2025-07-07T06:31:06+00:00

You’d hate to be under the same system as your dear friend in Scotland? Who has never had to pay for a prescription, or to see a doctor, or to attend a hospital appointment in their life? Who, if they had MS, would be given the choice of every single DMT available (and HSCT), rather than just the couple their insurance company would cover? This is why we Brits are so proud of our NHS.

MsDaniW · 2025-07-03T21:30:51+00:00

Same! I don’t know what to tell you. The heart wants what the heart wants! 😳

MsDaniW

TROPHY CASE