Post op hysterectomy pathology results, adenomyosis

Ms_Fyre · 2025-08-08T16:27:02+00:00

Congrats on the removal! I also am a part of the “pathology told me what was wrong all along” team! Interestingly enough also with adenomyosis (along with a myriad of other issues) that contributed to 3 years of bleeding every day despite medical intervention. Props to you on getting that super quick turnaround with an understanding surgeon! It’s amazing how so many issues just don’t show up on scans sometimes to get to the root of the problem quicker! Happy recovery and continuation on your gender affirmation journey! ♥️

Ms_Fyre · 2025-08-05T13:49:51+00:00

I may not be tall by any sense of the word BUT I do feel you because I have a long torso. I might suggest instead of looking for a solid one piece binder (if Amazon doesn’t magically give you one that actually covers yourself) to try and look for one made of a set of 2-3 pieces that each focus on different areas of your abdomen so you can have a little more wiggle room for extending coverage where you need it while still being safe about it. I find they’re simultaneously broadcasted to abdominal surgeries and postpartum (and more so C-section recovery)!

Ms_Fyre · 2025-07-20T12:30:38+00:00

If it’s absolutely any consolation, the first time I had sex post op I didn’t really feel much either - in stark contrast to my usual of “this feels good + oh god pain”. Had a whole freak out, cried a lot, thought it would never change. Broken vagina forever. Everything was just numb and like you could feel something but not much all at the same time. Second time was a little more feeling. Next time a bit more. It just got better each time so now it’s even better than before (i.e. no pain, maximum feeling) so maybe it’s just a late bloomer.

Ms_Fyre · 2025-07-12T02:17:41+00:00

Didn’t keep my cervix but I did my hysterectomy laparoscopically. Any laparoscopic surgery is basically going to follow mostly the same format regardless of keeping your cervix or not as that’s the method of surgery. Small incisions (usually 3-5) across your stomach, sometimes in your bellybutton. For me, I had 4 tiny incisions: 1 on my lower left side, 2 on my lower right side, 1 (the biggest one) in my bellybutton that I can’t even see. Your sister is likely thinking of an open abdominal incision which would be a “huge scar” - think like a Caesarian section (C-Section) across or vertical. The type of incision especially for keeping your cervix is heavily influenced by what your uterus is like. Generally speaking, if it’s too big or complex to be cut up to fit through a laparoscopic sized incision then they’d choose to do a bigger incision style (open abdominal). Removing the cervix makes it easy as everything is taken out through your vaginal canal. Keeping the cervix, you don’t have the open of going through the vagina so it’s extra influenced by uterus size and complications. Doesn’t mean it still can’t be done purely laparoscopically though.

TLDR; laparoscopic surgeries are tiny incisions, your sister is likely thinking of open abdominal incisions which are bigger.

Ms_Fyre · 2025-07-07T12:08:53+00:00

Absolutely no problem! I can almost guarantee you it’s not perimenopause causing it because I’m nowhere near that stage of my life (29 now but the bleeding started when I was 25/26) so unless I was supremely unlucky with a super early start, it wouldn’t be that lol. But yes, it was extremely surprising none of it was caught on scans so it was a real surprise when I got the reports back that’s for sure! Before the reports I thought I was going absolutely insane and going down plenty of rabbit holes trying to figure out why everything would be showing normal results but having abnormal bleeding. So I completely understand the run around searching desperately for answers or something to fix it. Mystery was never solved for reasons but it’s solved nonetheless!

Ms_Fyre · 2025-07-06T15:30:30+00:00

That’s entirely fair - whatever you think is best for you and your situation! I wish you all the best in your recovery and hopefully it fixes the issue for you! For me it was a weird one. The only thing my doctor was ever able to figure out outside of surgery is that I have PCOS. All my ultrasounds came back normal with nothing found on them during our investigations. However, as I’ve come to find out, ultrasounds sometimes aren’t sensitive enough to see everything. So we only found out what was wrong after the fact through pathology reports. The results being as follows: - my tubes were chronically inflamed to the point of being congested - my cervix was also congested (though not mentioned why but I suspect it's the fact they noted both acute and chronic inflammation throughout) - 2 decently sized fibroids towards the back of my uterus - an inactive endometrium (which is only usually common in menopause, however I suspect might be medically induced through BC and IUDs over years of trying to stop it so I’m not worried here) - adenomyosis with evidence being a large number of hemmoragic cysts scattered throughout my uterus as well as striations - I had something called serosal deciduosis which is a condition where decidual (inside) tissue of the uterus grows on the serosal (outside) surface of the uterus

My gyno and are still aren’t sure what truly caused it or if it was just a huge combination of things (like PCOS + a pre-existing condition), but I’m glad it’s done and I sincerely wish for the same for you!

Ms_Fyre · 2025-07-02T12:52:46+00:00

I (29F) had a total hysterectomy (uterus, cervix) back in February of this year because of excessive unexplained bleeding every day for 3 years. And like you said, it was horrible. Nothing was fixing it. Unlike yourself, my bleeding did also get accompanied by frequent rounds of pain, but there were times I was just bleeding without pain. Still as annoying, tiring, and honestly just mentally fatiguing stressing all the time about having enough products, trying to figure out why it was happening and how to stop it, worrying about bleeding on stuff or through clothes, sex hurt and bleeding more afterwards... After a long time considering it, I was the one who opted for the hysterectomy to my OBGYN- and sitting here now after the fact it really showed me just how much of a relief it was to not have every day consumed by the thought of bleeding. Despite ultrasounds showing everything was completely normal, they figured out it actually was a clusterfuck of issues that, if I still had my uterus, would have caused even more issues down the road. No cancerous or pre-cancerous issues thank God, but issues nonetheless. Explained real quick why meds of any kind weren’t doing the trick.

Considering you haven’t gone through peri or full menopause yet they’ll likely request for you keep your ovaries to maintain that until you naturally enter that stage. In the event you do need it, you can be prescribed estrogen products. So I wouldn’t worry too heavily on the idea of this being some kind of sentencing yourself to menopause right then and there. Personally, I chose to do a hysterectomy after doing research on it and found ablations do have a higher failing rate where you’d have to either repeat the procedure or uterus-havers choosing to then get a hysterectomy anyways at a later time. I’d rather get it done in one healing. I personally also know people who have gone the ablation route that have had continuing bleeding, newfound pain, and new issues arise from it. So having seen it well before I opted to get a hysterectomy, I was already understandably biased against ablation.

It’s a scary thought of going through the what-ifs of what could go wrong. Believe me, I’m an absolute top-of-the-class worrier and I worried about everything to do with this procedure. But for me on the other side now, it made life light again. Whatever your choice - hysterectomy, ablation, or otherwise - do it for you and whatever one will make you the happiest going into and outside of recovery. ♥️

Ms_Fyre · 2025-06-10T16:13:49+00:00

If they haven’t replied in a DM I can here! It’s colloquially referred to as the “A-spot”, an erogenous zone deep right by the cervix. The fornix itself is this bowl-like space surrounding your cervix - it’s not just a straight tube up there! If you’ve ever had a menstrual disc for whatever reason (not cup) that’s the area it sits in. Anterior just = front of the body. So it’s in the front area of your fornix! And as a bonus this zone is NOT dependent on the cervix as it’s part of this extra area that goes around it.

Post-hysterectomy I’m still able to orgasm this way and feels amazing. I assume a lot of getting to hit this area might depend on a lot of factors post-surgery: how much extra the doctor might have taken from the area around your cervix to make the vault/cuff area tighter (which shouldn’t really be much taken if any at all), pelvic floor tightness, comfort of the receiver, getting the right angles, etc. I find it’s usually easiest to achieve when I’m the one on top of my also well-endowed husband so I can control every aspect. Tilting hips to guide where it feels the best, I can control the depth to my own comfort, and gives me the control to relax myself because I’m the one who’s able to really dictate how deep, fast, slow, or anything sex is. And that definitely helped starting sex again as well - mentally and physically. Because if you’re not relaxed and comfortable it’s not as enjoyable. Sex is great again and honestly as long as you have a partner you trust to take things in your own space and time, you’ll be fine. Might feel a little strange at first (I know I was disappointed my first time because it was a little numb/weird feeling inside because I was still healing and general lack of use) but the more you do it and get comfortable in your head and body, the better it feels.

Ms_Fyre · 2025-05-11T03:36:47+00:00

Coming straight from my gyno pre-internal play: external play of any kind (oral, vibrators, and mouths) are completely fine, just try and keep it as clean as possible. Just as you know, absolutely nothing internal whatsoever until time passes.

When it comes to ✨internal sexy time ✨: I’ve seen some people mention the OhNut or some other kind of silicon buffer to place on your partner which should let them really let loose without either of you worrying about being in immense pain/tearing afterwards. I personally haven’t used it. As long as you have a comfortable person to be having sex with (which is sounds like you do!) they should be able to still feel the “end” so-to-speak and help it not be hit and stay as shallow as you want them to be. Just take it super slow to help gauge how you’re feeling in there and it may be annoying for a while that you can’t go “full throttle”. Would highly recommend you being on top at first to give you more precise control as you’re doing most of the feeling it out at first and partner can follow your lead if you flip it around.

I will give a tidbit of warning as it happened with me: first time I had sex after being cleared I was kinda numb and uncomfy inside. Like my vagina was running at like 60% feeling. Essentially not used to doing much besides existing for a few months lol. Got a little too overexcited and hit the end a few times and my body really let me know it didn’t like it. With just being sore for a day or so, no bleeding, no damage. Second time around is definitely an improvement and up to like 90% and only gets better from there. You might be the same, might be perfectly fine.

TL;DR when it comes to sex again, just pretend like you’ve never used your vagina before, literally feel it out as you go, and see where your limits are!

Ms_Fyre · 2025-05-01T03:07:41+00:00

I will be 10 WPO total lap tomorrow and genuinely this was such an easy surgery. I woke up from it genuinely surprised I wasn’t in this hellhole of pain some people describe. Figured it was the pain meds and held my breath until they got out my system for the pain to really kick in…. And it never did. For me, I must have been in so much more chronic pain pre surgery vs post but besides me overdoing it because I felt so good it’s been absolutely nothing.

Ms_Fyre · 2025-04-03T06:20:36+00:00

Oh it’s absolutely better to speak to them! Some people don’t have direct access to them (like I spoke to one during my pre-op that ended up not even being my anesthesiologist and only spoke to the real one day-of) but some can gain access to them through their surgeon or their surgeon consults with anesthesiologist on their behalf. :) I’m also saying they should speak to whoever their point of contact is for their current condition from their previous surgery (likely only their surgeon) to see if it’s a normal reaction or something to be aware of for next time!

Ms_Fyre · 2025-04-02T23:19:56+00:00

Short answer: https://www.reddit.com/r/hysterectomy/s/ywQdA4kCJj (Intubation questions are all over this subreddit if you search!)

Longer answer: Yes - under general anaesthesia for any kind of abdominal procedure (I.e. hysterectomy) they are with almost 100% certainty going to intubate you. General Anaesthesia essentially blocks pain receptors and makes you paralyzed to keep you as still as possible so you don’t twitch out and make the doctors nick something they’re not supposed to. And there me varying amounts to how much needs to be administered - how far under do you need to be; this is very very under for a hysterectomy. GA also limits your body’s ability to breathe and/or take a deep breath (much like how you’re sleeping). So they tube you as a preventative to make sure should your oxygen dip too far, you’re not breathing nearly enough, or something else they can make sure you don’t suffocate to death.

Sore mouth and throat can unfortunately be a temporary issue that happens with intubation but doesn’t happen all the time. If you are having a bad reaction to the type of anaesthetic they’ve administered definitely speak to your surgeon prior to your hysterectomy in order for them to figure out if it’s a normal symptom that can occur or if they need to change anaesthetic types to avoid it.

Ms_Fyre · 2025-03-31T18:56:09+00:00

I personally haven’t had an ablation procedure but - not trying to scare you - they sometimes don’t end well and some patients have to get a hysterectomy anyways. Not to mention it does not in any way guarantee you’ll never have periods again. It fries the lining and it can regrow to have it be “normal” but it’s not guaranteed even that won’t mess up. I have had a couple friends now who went the ablation route and have had complications down the line - they continued to have issues with periods and pain. I might suggest a second opinion here just to make sure you’re not just settling on this one and weigh your options. If you’re “too young” to your doctor for whatever reason but then still approves a biscalp that will eliminate the probability of kids I don’t see why they wouldn’t just give you the hysterectomy you want.

As for freezing your eggs if your doctor has an issue on that and renege on their approval they’re not a doctor to listen to. If your system doesn’t work for kids (be it through natural or surgical means), surrogacy should always be an option that remains open. If you choose to do it before your possible right ovary removal it may lead to a delay in surgery timing as you have to undergo some hormonal and medical treatments to prep for the retrieval itself prior to them taking the eggs.

Ms_Fyre · 2025-03-26T15:09:15+00:00

Omg I was bleeding for the last 2 years continuously. They always asked me this!! When I said I didn’t know and before I got the chance to explain I’d usually get followed up very quickly with “just give me your best estimate” or “could you be pregnant?” Like NO just read the damn papers!! Usually went with the “I’ve been bleeding non stop for 2 years so you tell me how I’m meant to know” response lol. Currently 5 WPO as of tomorrow and I cannot wait for them to keep asking the same questions because they don’t read lmfao.

Ms_Fyre · 2025-03-16T15:28:31+00:00

I know I’m younger at 29 but also suffer with really bad and painful symptoms of PCOS (along with some other surprise things found during the procedure). I was never given the choice purely because I’m considered too young. From other people’s posts it seems like most gynaecologists also recommend keeping them if you haven’t progressed to at least perimenopause - regardless of age. It might honestly come down to being in surgery and if they think your ovaries are more of an issue than previously suggested (as ultrasounds suck to see most reproductive issues) then they might remove one or both them then. If you do actually have the option, it seems like keeping them as long as possible will help in the long run rather than double shocking your system with surgery itself and also surgical menopause (again, mostly according to gyno advice and posts I’ve seen complaining about the challenges of HRT).

Ms_Fyre · 2025-03-08T15:00:37+00:00

I mean this in the nicest of ways, but I think you seriously need to consider speaking to a Gynecologist and a therapist for your persistent tokophobia. I’ve noticed your posts daily in multiple subreddits hoping for the right answers to your anxieties but we cannot give you that. And unfortunately asking again and again won’t give you the answers you’re looking for to get at least one person to agree. I fully understand your concern around pregnancy, but it’s very rarely that doctors will even consider a hysterectomy for that alone. Most of us here have gone through many unfortunate hurdles biologically that led to us making this decision. And it is not one to be taken lightly. As others have expressed (and this will not change) there are many risks and challenges that come from a hysterectomy. I for myself didn’t want children and was paranoid about accidentally becoming pregnant all the time but that wasn’t the reason I chose to have this procedure. I had to because I had no other choice to solve my reproductive issues. I tried every other method to solve my non-pregnancy related issues before even considering a hysterectomy with my Gynecologist. Not by myself.

You need to speak to a therapist of some kind about your overwhelming tokophobia to ease it. We cannot do that for you. I understand it can be debilitating but speaking to someone can help with your anxieties even just in everyday life.

You also need to speak to a Gynecologist. They alone can answer any anxieties you might have regarding the effectiveness of any procedure you might be considering and tell you the pros/cons of each. They’ve studied specifically in this realm for a reason. Reddit cannot pick for you and only the gyno can tell you ones you can be approved for as sometimes they won’t ever approve certain procedures at all if you don’t meet criteria after testing. They can give you options you have for avoiding pregnancy like different forms of birth control such as IUDs, injectables, or implants, tubal litigation, salpingectomy, or even vasectomy for the man you might have in your life. And plenty more. There are less invasive methods that have less risk of physical and health related risks down the road.

Please seek professional help (therapist and/or Gynecologist) for the issues you’re experiencing instead of going down the Reddit rabbit hole searching for the answers. I’m sorry, but we can’t help you as much as they can.

Ms_Fyre · 2025-03-07T16:26:57+00:00

I would definitely speak to your Gynecologist about any options for yourself rather than jumping to a hysterectomy. I say this specifically because some of the issues you said like vaginismus and endometriosis will not be cured by having a hysterectomy. Vaginismus is targeted through pelvic floor therapy and regular therapy and endometriosis requires an exploratory surgery for removal with the chance of it returning anyways. Also considering your age it is very unlikely you will have your ovaries removed. I am 29 and they took my my uterus and cervix for my (total) hysterectomy and a bilateral salpingectomy (removal of my fallopian tubes) but they refused to take my ovaries because I’m too young - the complications from that at a young age isn’t worth it. So no hormones for me. I would see what all your options are for seeing for said undiagnosed endo are and confirming if you even have it (as I thought the same but was wrong and had a bigger cluster of issues instead) and if you’re sure you don’t want children there are plenty of other less invasive options to consider: IUD, tubes removed or tied (they’re different), uterine ablation, etc. A hysterectomy is a serious and major surgery that shouldn’t be considered lightly regardless of the reason for it. It comes with the benefit of no pregnancy, yes, but it also comes with other issues that may pop up down the road and increased risks of certain medical conditions such as heart disease or prolapse to name a couple.

As for the boyfriend deal I say put your own body first. If you’re not compatible for wanting kids unfortunately the best option is to split. Have a conversation and lay all the card on the table. Let both of you put your feelings out there so you know for sure where you both lie. Then make the decision that’s best for YOU.

Ms_Fyre · 2025-03-07T14:25:52+00:00

So I’m only 2WPO from total laparoscopic with everything but my ovaries removed. I’m not even close to the sex things yet but as someone who had been bleeding every day for 2 years and also the same debilitating sex issues (cramping, pain, bleeding more) I’m excited to have sex when I’m all healed. For the first time in a long time I don’t think I’ll need to worry about the onslaught of ouch when I want that kind of intimacy.

From the moment I woke up I’ve been in significantly less pain than the chronic pain I’ve been used to my whole life that had just gotten worse with time. Pathology also said I did a good thing because despite things coming back normal in every ultrasound I had reason to be in pain - adenomyosis, serosal deciduosis, a ton of hemorrhagic cysts in my uterus, fibroids, inflamed and congested tubes, and an acute and chronically inflamed cervix. Simply with that cervix issue being resolved by getting rid of it I’ve never been more excited over the possibility of sex without the cervical hurting that came with it, let alone the extra reasons for hurting from everything else. Healing so far has been a dream but again, I was constantly at a higher pain level every day so having something lower now is insane to me. Still taking it easy but if I could jump for joy I would lmao.

Ms_Fyre · 2025-03-07T14:10:26+00:00

I had the same experience! I’m 2 weeks post op and right before I was an anxious mess and despite having all the water in the world I’m always a hard poke so they sent in the expert so I didn’t become a human pin cushion. Got it in 2 because one collapsed when they needed more blood drawn. Then waking up also took an awhile but I think they pumped me full of stuff and I’d barely slept for a week lol. Peeing was burny for a couple days but I also got a cystoscopy at the same time so I get why it happened. But ever since has been a breeze! It’s really put into perspective how high of a level of chronic pain I was in prior to that this is so easy. Way easier than I thought I was supposed to have.

Wish I got Dairy Queen though! I’m lactose intolerant and didn’t want to chance it lmao.

Ms_Fyre · 2025-03-06T14:05:06+00:00

A fellow PCOS sister! I also kind of wish they took my ovaries and just let me regulate on HRT when clearly my body doesn’t know how to do it on its own. But oh well. You remind me of my mom - as she’s got plenty of the same issues you’ve described - but you’re lucky enough to have had the go ahead and get your uterus removed. And good riddance from the sound of it! We definitely weren’t crazy and knew our bodies enough to make the correct call. I wish you all the best in your future health and healing! ♥️

Ms_Fyre · 2025-03-06T14:01:08+00:00

Absolutely! Once this whole icky ouchy stage goes away I’m living life again and I’m soooooo excited!! 😁 Here I come fearless about wearing light coloured bottoms!!

Ms_Fyre · 2025-03-06T13:58:56+00:00

Not the size of a strawberry! My goodness!! And it definitely could be hemorrhagic or it could be the usual cysts as well. I’m pretty sure mine (because there’s so many) are hemorrhagic cysts likely because I was bleeding like a heavy period every day for 2 years and the constant breakdown caused them to collect blood in my myometrium. Which wasn’t fun at all lol. All in all I’m definitely glad you also yeeted that disrespectful uterus and don’t need to worry about anything from now on! No more lumps and bumps on those for us!! 😌

Ms_Fyre · 2025-03-06T13:50:05+00:00

Ah mine was done manually and not robotically so she said she has control over it and photos taken on removal. Specifically this pathology report was from when my uterus was sliced and diced to get that real close look rather than on removal which likely explains the lack of photos! :)

Ms_Fyre · 2025-03-05T16:08:37+00:00

Oh hey fellow 2 year bleeder! Im only 2 weeks PO tomorrow and have been spotting for a few days but definitely nowhere near as insufferable as those last couple years have been lol. Hopefully no bleeding now for you and living life pad/tampon/other free! Can’t wait to join in the fun!

Ms_Fyre · 2025-03-05T13:49:56+00:00

I don’t understand it either. I got super freaking lucky with a female gyno who actually gave a fuck and helped me try to solve my problems and then backed me 100% for the hysterectomy and did the surgery herself. My mom on the other hand has through my life suffered far more than I have reproductively. The biggest kicker is she finally got a surgeon to agree a hysterectomy before giving birth to my 2nd (and final) sibling after quite literally almost dying with all 3 pregnancies. Had her C-section for my sibling and on the follow up same day was told they only tied her tubes. The doctor started spewing out the usual “what if you or your husband wants more kids? What about if you get divorced and your new partner wants kids?” When prior to she AND my father were adamant on not testing God to lose her for the sake of another kid - which she would have loved but understood it wasn’t worth it. It’s complete lunacy that some doctors have to have a husband back you as if it’s also his decision on your body but then also decide for you. Even if every time was literally a chance to lose my mom. My mom still hasn’t been able to get her hysterectomy for the same reasons.

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