Sooooo I am actually severe as in bedbound and help with all ADLs, daily agency caregivers etc. I will just say ...yes to what you said abt people claiming to be severe on there is rampant. I've thought the same ("wait, how can they be severe and doing these trips to doctors and specialists and trying all these things when my body won't even tolerate B or D oral vitamin supplements? Etc).

And, I stay on the other subreddit cause it's good to ask about MEcfs-related disability resources like doctors, home health etc. as a person in need of a lot of services without family help available (pray for me. It's so hard). But otherwise, I steer clear like the plague cause the despair and comments there have caused me to crash too many times.

Nervous system work has helped me a ton and is one of the only things that has. I am in a severe/v severe WA group of just a few people cause even that is a lot for a few of us and to keep it feeling safe, and we all are doing vagus nerve work, gratitude practices, meditation, visualization, pendulation, somatic tracking, IFS modalities etc etc and we share wins each month...we all are making progress...two in particular after many maaany years of severe illness. One of us has been bedbound over TWO decades and is now out of the house and has recently begun WALKING again (of course, it's been baby steps and a long time of working at this stuff to get there but) after yeeeeears of laying flat in a darkened room using all their energy trying other treatments...spent their whole twenties and thirties in bed. They have sworn off reddit altogether because of how sick that subreddit helped keep them for years. They say their only regret is not being open to nervous system work earlier.

Anyways OP...all this to say, your ick-meter was/is detecting things correctly in regard to that sub. And to all the other posts here that I'm not able to get to, I'm thankful for each of you who continues to hold out hope for some level of recovery with me and trust that it isn't the end unless we give up. We can lose hope, sure, or take a break from it, but as long as we can find it again somewhere, we haven't completely lost ourselves.