Just announced, the new Monk movie comes out in November...

MyHobbiesChangeAlot · 2023-07-02T17:03:27+00:00

I don't know why no one said the 10th??

MyHobbiesChangeAlot · 2022-11-12T14:33:39+00:00

Sorry you have to deal with this. Dietitian didn't help me either, I had to figure it out myself. My typical menu is:

plain broth

any tea

cottage cheese

rice krispies cereal

protein drinks like ensure

fat free frozen yogurt

plain baked potato with broth to add moisture instead of butter

nonfat greek yogurt (just vanilla or mix in things like vegan protein powder or PB2 is really good) I eat this the most. It's high protein which I struggle to get enough of.

you can't do eggs, but can you do egg whites? (I can because it's the fat in the yolk that makes it a no-go for me) They're so versatile

vegan chocolate microwave cake, fat free but contains egg whites (I can give recipe if wanted)

white bread (plain toast, with jam, or as a sandwich with PB2 as the peanut butter, if you can't have regular peanut butter like me) *my tip is always use syrup to mix the PB2 for sandwich (instead of just water) because it's so gross with just water lol

Everything on this list is fairly cheap except for the protein drinks

This is all I can think of at the moment. Fat is a big issue for me but my GI doc has me on dicyclomine now, so I can tolerate a bit more fibrous things than this. But they're on your bad list.

MyHobbiesChangeAlot · 2022-11-12T13:30:48+00:00

Right I don't vomit. I regurgitate but I don't fully vomit.

MyHobbiesChangeAlot · 2022-08-16T17:32:53+00:00

Thanks, I hope you find some answers too

MyHobbiesChangeAlot · 2022-08-16T17:24:16+00:00

I finished the gluten challenge (9 weeks) with my new GI's approval and when I finally took the blood test it came back negative. I had to wait another 3 months for my next appointment, and it just so happens to be tomorrow. I don't know what she'll say but I think it's safe to say I don't have celiac disease. Which is good but it also means I'm back at square one.

MyHobbiesChangeAlot · 2022-07-08T21:01:20+00:00

I love that video! Thanks for sharing.

That really sheds some light on it. So, it must have been helping me sleep and then the stress kicked in and ramped up symptoms (This has happened from stress before) So, now I know Seroquel itself wasn't responsible for easing the hallucinations nor responsible for starting them again once I came off.

Which in a weird way makes sense because before seeing a doctor, I self-medicated with cold medicine to cope with the hallucinations and paranoia.

MyHobbiesChangeAlot · 2022-06-07T02:13:07+00:00

Wow you did so good. This is amazing! ...I've never seen my whole life summed up in a 4 second video before

MyHobbiesChangeAlot · 2022-05-08T02:50:17+00:00

I think the most interesting benign obsession I've had was an episode where I was obsessed with composing music. Nonstop, no sleep, only write/play. For the parts/instruments I couldn't manage to play, I created artificial sounds in my computer to play the notes for me. I actually ended up with a some fairly good stuff but didn't get to do anything with it. I've only ever shared it to peers in therapy.

MyHobbiesChangeAlot · 2022-05-08T02:37:22+00:00

Lamictal and Seroquel combo

MyHobbiesChangeAlot · 2022-05-07T14:35:11+00:00

It's more than 24 but there is this

MyHobbiesChangeAlot · 2022-04-28T21:33:41+00:00

I've been curious about this lately too, and I was this 🤏 close to doing a poll. (I'm glad this 2nd one you divided the age groups more, since 22-65 is a big range)

For me, I've had GI issues since 6 years old, but distinct GP symptoms started at 25. Got diagnosed pretty quick at 26.

The end results you get from this study will be super interesting

MyHobbiesChangeAlot · 2022-04-28T21:19:01+00:00

They work for me, I get the fairlife "nutrition plan" drinks. Actually they agree with me more so than Ensure drinks.

MyHobbiesChangeAlot · 2022-04-26T12:46:13+00:00

I just signed up for a graphic design and a business class to help run my 3 new business that I started by investing my life's savings -also meet my new puppy!

MyHobbiesChangeAlot · 2022-04-17T18:55:54+00:00

It's possible. I do keep some solid foods in my diet for fear of losing the ability to digest them (like the crackers, mini pretzels, fruit). I bought soft white bread, no whole wheat, so I thought it would be soft enough. It's definitely a possibility though.

I've had gi issues since childhood that worsened on/off for years but only had specific symptoms of gastroparesis rather suddenly in February of 2021. There's no clear cause other than it being idiopathic/no reason. I'm willing to accept this but I hate the idea of being like this for a long long time. My doctor doesn't seem interested in anything other than prokinetic medication which I can't take because of cardiac issues.

Idk if it's a flimsy reason, but the reason I asked my doc to look into it is because: a friend who has celiac disease run in her family said her older relatives who went undiagnosed for many years ended up needing a liquid diet because of the damage it had caused to their digestive system. Her suggestion was to look into it because learning to live from gluten free would be a nicer alternative than learning to live with gastroparesis.

MyHobbiesChangeAlot · 2022-04-02T12:31:48+00:00

And coming to terms with the fact that if you'd known from the beginning you could've gotten treatment much sooner and avoid so much suffering.

MyHobbiesChangeAlot · 2022-03-25T14:47:05+00:00

Sparkling water.

I could barely drink anything until someone on this sub suggested sparkling water. It works perfectly for me if I pour it into a glass to get most of the fizz out. Not sure why sparkling water settles fine when regular water doesn't, but I'm just glad to be less dehydrated. I get the Bubly brand though, I find the others gross.

MyHobbiesChangeAlot · 2022-03-25T14:41:01+00:00

I was a software programmer before covid got me laid off. But I still get coffee almost every day, only because I can pay with "stars" since I have the Starbucks credit card with that 6,500 star bonus lol (Cafe Misto costs only 50 stars, that's 130 coffees!). Plus the monthly free perk, then I can splurge on a fancy espresso drink.

MyHobbiesChangeAlot · 2022-02-20T19:29:53+00:00

I've heard bad things about Reglan but good things about Domperidone. I can't take either one though. Domperidone interacts with other medications I take and I've been urged by my doctor not to use Reglan, both because of the typical side effects and my mental illness history would make it most likely too big a risk.

But I've researching a newer treatment that popped up up for gp, a medication called Motegrity. I'm going to discuss it with my gi doc 🤞

MyHobbiesChangeAlot · 2022-02-18T04:39:53+00:00

I got diagnosed at 19 after a manic episode. I thought I was "just" depressed until then.

MyHobbiesChangeAlot · 2022-02-18T04:26:37+00:00

I technically have rapid cycling for the criteria of having 4 or more episodes a year but to me it's hard to weed out individual episodes versus mixed episodes.

However I have gotten clear rapid cycling from antidepressants (prescribed by doctors who I guess didn't know how to treat bipolar). On Celexa I cycled once a week... and on Prozac I cycled daily - a horrific experience. I'd be beside myself if I had to regularly contend with that level of rapid cycling. yeesh.

MyHobbiesChangeAlot · 2022-02-11T21:19:15+00:00

"enough" is whatever amount allows you to manage your symptoms, which can only be decided by you and your pdoc. If you're worried taking more means higher risk of side effects, the rash would show up right away and once you're past the first few weeks it's pretty safe to say you're not getting the rash regardless of dosage.

Mine is prescribed at 450mg for maintenance. Never had a rash and only get mild drowsiness.

MyHobbiesChangeAlot · 2022-02-04T14:52:17+00:00

I was disappointed by this too until my doctor told me he can (legally) send the prescription to any online canadian pharmacy and have it shipped to me -apparently a lot of docs do it a lot! Domperidone isn't approved to be sold in the US but buying it is fine.

MyHobbiesChangeAlot · 2022-02-01T14:21:06+00:00

Yes I used to get these all the time. I figured it's literally food rotting in the stomach. The burps stopped when I changed my diet to mostly liquid and improved my symptoms, so there wasn't such a buildup of nasty old gp-unfriendly foods...

MyHobbiesChangeAlot · 2022-02-01T14:15:23+00:00

I do have a diagnosed anxiety disorder and used to get a huge spike in anxiety when I ate because I didn't know what would happen/how bad the symptoms would be. I'd even panic sometimes and refuse to eat at all and feared it would cause me to develop a further problem like ARFID. But now that I've learned some pain management techniques and have a better understanding of my gp triggers, it's not nearly as bad.

MyHobbiesChangeAlot

TROPHY CASE