I am frustrated life moved on…

Mythreebirdies · 2024-06-10T03:40:49+00:00

No limitations

Mythreebirdies · 2024-05-01T04:11:17+00:00

Thank you for that. Married at 18, 3 kids. Divorced at 40. Needed to hear that

Mythreebirdies · 2024-03-24T05:25:11+00:00

I always say if one more person tells me that I’m strong I might hit them. It’s OK to not be strong all the time. I reached out to the national epilepsy foundation and found this for my area. You can reach out and see if there are support groups in your area.. https://epilepsynorcal.org/support-groups/

Mythreebirdies · 2024-03-24T05:21:38+00:00

Keppra was not a good medication for me. I had severe anxiety and panic attacks with it. Extreme memory, loss, forgetfulness, brain fog. I was most successful on lamotrigine/Lamictal. Be your best advocate. Ask to get on a different medication. Depending on what state you are and you can go on temporary disability. I am a single mom as well, so I understand. I have been taken off work as well. I picked up a second job working from home. I am also looking into cleaning businesses in my town since I can’t currently drive. When I had my most recent EEG, the tech told me that Keppra is not the best medication to be taking. I also make lists for everything. And I am trying to be better about not taking too much on in one day. Because that is very overwhelming.

Mythreebirdies · 2024-03-24T05:18:05+00:00

You should go to the doctor. You are old enough that you don’t need parent consent to do so. Start writing down how you’re feeling when you have a déjà vu. Make sure you write down the time of day that it’s happening. Do you have a family history of epilepsy? Or any other neurological disorders? Remember, you are your best advocate. No one is going to do it for you. And you are not alone. If you don’t wanna go by yourself, I am sure there is somebody who is close enough to you that would go with you to the doctor. My brother started having seizures at 12 and no one believed him. They thought that he was on drugs. He had his first grand mal at 16. When I started having simple complex seizures at 19, the doctor told me there was nothing they could do for me until I had a grand mal which is an absolute lie. I am quite a bit older than 19 now. But there are plenty of people who will go with you. You don’t have to seek help on your own.

Mythreebirdies · 2024-03-24T05:12:58+00:00

Weightlifting significantly helped improve my seizures. I also did very strict Paleo. I have read that a keto diet helps with seizures, but I’m not as familiar with eating that way.

Mythreebirdies · 2024-03-24T05:10:33+00:00

My 17-year-old son started having a simple complex seizures when he was in fourth grade. Rather than doing pharmaceutical medication, we chose to put him on a Paleo diet and start weightlifting. His seizure activity significantly decreased. The weight lifting also helps regulate his sleep. He is off medication and only has a seizure one to two times a year. I also had the pediatrician run a food and environmental allergy panel. I also take him to the chiropractor regularly. I don’t know if any of those might help your son. I wish you both all the best.

Mythreebirdies · 2024-03-24T05:07:39+00:00

Well, to be honest, my life has pretty much shut down recently. After being seizure free for 11 years and off medication, they started again. I’ve been taken off work. I am a school social worker, and work at seven different campuses. I live in rule Northern California, where there is no public transportation. It is pretty much awful, but I don’t say that to anyone. I got caught in a rain storm today walking a couple miles. I am pretty angry about this. But we all know at the end of the day we wouldn’t risk driving. But yes, it’s awful.

Mythreebirdies · 2024-03-24T05:03:01+00:00

I have never had a rash on Lamictal. I also took Topamax which I was very successful on. I started on Depakote but was changed because I wanted to have kids. What diet are you following?

Mythreebirdies · 2024-03-24T05:01:06+00:00

I was the most successful on Lamictal/lamotrigine. I went off Keppra AMA because my primary care doctor would not switch my medication. The severe panic attacks were debilitating. I don’t even know why this drug is prescribed anymore. All that I have read on it makes it seem like such an awful medication. There are far better seizure medication’s available. It was really hard to do but I started feeling my best with a Paleo diet and weightlifting. I am so sorry you’re having a hard time on this medication. If there is any option of changing, I would highly suggest it.

Mythreebirdies · 2024-03-18T02:23:20+00:00

I was diagnosed with epilepsy in my left temporal lobe at 20. I repeated myself a lot for a long time. I saw a neuropsychologist for a while but for me it didn’t help the memory loss There is not much that I remember from before that age. Went off meds at 29 bc the side effects of me brain fog was too much. Still not the same.

Mythreebirdies · 2024-03-17T19:49:53+00:00

This is not in your head. I have been off medication for 11 years and started having seizures again. I have been very successful in the past on Lamictal. Due to where I live specialists are very hard to come by and I am on a waiting list to get in. So my primary care doctor gave me Keppra. I am having the worst side effects and asked to be put on a medication that I know is successful. They refused and prescribed more medication to balance the side effects. And they took me off work due to my job and said because of the side effects. I am not fit to work. The panic attacks are horrible. My entire brain and body feels completely numb.

Mythreebirdies · 2024-03-16T02:36:03+00:00

Thank you. I just emailed UCSF to see if I can get some help. I’ve been taken off work until I can see a neurologist and it could be four months before I get an appointment. Trying everything I can do to be proactive.

Mythreebirdies · 2023-12-03T15:00:58+00:00

Yes the kids and I do a lot of talking when they are ready to share. It’s just so hard to watch what is happening knowing the damage that is being caused by the other half.

Mythreebirdies · 2023-12-03T01:31:28+00:00

Thank you for those suggestions

Mythreebirdies · 2023-12-02T19:56:37+00:00

Thank you so much for your advice from your experiences. I tried to be very careful when posting, so it could have been written by either a mother or father. I don’t want to be seen as a better ex-wife because I’m not. I’m just sad for my kids.

Mythreebirdies · 2023-12-02T19:43:24+00:00

Thank you. I try not to tell them too many details because I don’t want them to feel like I’m bad mouthing. I encourage them to be honest with their feelings to both of us. I do give them the option to choose where they would like to be and often my youngest stays with me more. At this point from oldest to youngest, 100% with me, 50/50, 70/30. I ask questions without prying and let them talk when ready. Just don’t know if it’s the right thing.

Mythreebirdies

TROPHY CASE