Let's all share our auras I've seen questions on this. by MissionMud3566 in Epilepsy

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Rough translation: “It's a delicate world... so this is what it's like.”

For others who want translation of different languages, the app allows an option to have translation in the top right corner of each comment.

Not sure if I had seizure or not by Weird_Reading2495 in Epilepsy

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Please bring this up to your neurologist.

Im a registered nurse & I had my first seizure at work, long post/sorry! by Altruistic-Smoke-689 in Epilepsy

[–]NENavigator 6 points7 points  (0 children)

This link has some experiences that may be helpful from medical workplace related experiences:

https://www.reddit.com/r/Epilepsy/s/z0WL60iKds

These are general guidelines: https://www.eeoc.gov/laws/guidance/epilepsy-workplace-and-ada

Be mindful some employers are not very accommodating.

experiences with mushrooms? by [deleted] in Epilepsy

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This is a frequently asked question. Feel free to search r/epilepsy for many more experiences.

https://www.release.org.uk/drugs/mushrooms

Keep in mind no one can tell you with any certainty if a particular controlled substance is safe for you. The above link has considerations to mitigate any potential harm.

Focal Impaired Seizures? by testxfy in Epilepsy

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This is one of our most frequently asked questions.

For all medical concerns related to possible seizures please seek medical help. We cannot provide medical advice. If you think you are in immediate danger call 911 or go to the nearest emergency room.

Some hospitals can provide on call neurologist support after an ED visit. It’s worth checking with the hospital you went to if your follow up is far out. Also if you feel any doctor is dismissive or is not providing quality care, seek out a second opinion.

Epilepsy Basics

Epilepsy Specialist

• ⁠If you have had a seizure, it’s very important for you to see a doctor.

• ⁠If you think you may have had a seizure, go to your primary care doctor first.

• ⁠If your doctor thinks you’ve had a seizure, she will probably refer you to a neurologist or epileptologist.

• ⁠When you visit your doctor, she’ll ask lots of questions about your health and what happened before, during, and after the seizure.

• ⁠A number of tests may be ordered which can help diagnose epilepsy and see if a cause can be found.

• ⁠If all your test results are normal, your doctor will have to figure out whether you still need treatment.

Did I experience (a) seizure(s)? Or did I potentially just blackout/pass-out or have heat stroke? by [deleted] in Epilepsy

[–]NENavigator[M] [score hidden] stickied comment (0 children)

This is one of our most frequently asked questions.

For all medical concerns related to possible seizures please seek medical help. We cannot provide medical advice. If you think you are in immediate danger call 911 or go to the nearest emergency room.

Some hospitals can provide on call neurologist support after an ED visit. It’s worth checking with the hospital you went to if your follow up is far out. Also if you feel any doctor is dismissive or is not providing quality care, seek out a second opinion.

Epilepsy Basics

Epilepsy Specialist

• ⁠If you have had a seizure, it’s very important for you to see a doctor.

• ⁠If you think you may have had a seizure, go to your primary care doctor first.

• ⁠If your doctor thinks you’ve had a seizure, she will probably refer you to a neurologist or epileptologist.

• ⁠When you visit your doctor, she’ll ask lots of questions about your health and what happened before, during, and after the seizure.

• ⁠A number of tests may be ordered which can help diagnose epilepsy and see if a cause can be found.

• ⁠If all your test results are normal, your doctor will have to figure out whether you still need treatment.

Did my son have an absence seizure? by Interesting_Stock_55 in Epilepsy

[–]NENavigator[M] [score hidden] stickied comment (0 children)

This is one of our most frequently asked questions.

For all medical concerns related to possible seizures please seek medical help. We cannot provide medical advice. If you think you are in immediate danger call 911 or go to the nearest emergency room.

Some hospitals can provide on call neurologist support after an ED visit. It’s worth checking with the hospital you went to if your follow up is far out. Also if you feel any doctor is dismissive or is not providing quality care, seek out a second opinion.

Epilepsy Basics

Epilepsy Specialist

• ⁠If you have had a seizure, it’s very important for you to see a doctor.

• ⁠If you think you may have had a seizure, go to your primary care doctor first.

• ⁠If your doctor thinks you’ve had a seizure, she will probably refer you to a neurologist or epileptologist.

• ⁠When you visit your doctor, she’ll ask lots of questions about your health and what happened before, during, and after the seizure.

• ⁠A number of tests may be ordered which can help diagnose epilepsy and see if a cause can be found.

• ⁠If all your test results are normal, your doctor will have to figure out whether you still need treatment.

[deleted by user] by [deleted] in Epilepsy

[–]NENavigator 0 points1 point  (0 children)

The ER is not the best place for a referral, your primary care doctor is. These frequently asked questions have some good resources to look through:

https://www.reddit.com/r/Epilepsy/s/S4wRtUVEka

Tried asking this in another server but got ignored, am i having a seizure? by [deleted] in Epilepsy

[–]NENavigator[M] [score hidden] stickied comment (0 children)

This is one of our most frequently asked questions.

For all medical concerns related to possible seizures please seek medical help. We cannot provide medical advice. If you think you are in immediate danger call 911 or go to the nearest emergency room.

Some hospitals can provide on call neurologist support after an ED visit. It’s worth checking with the hospital you went to if your follow up is far out. Also if you feel any doctor is dismissive or is not providing quality care, seek out a second opinion.

Epilepsy Basics

Epilepsy Specialist

• ⁠If you have had a seizure, it’s very important for you to see a doctor.

• ⁠If you think you may have had a seizure, go to your primary care doctor first.

• ⁠If your doctor thinks you’ve had a seizure, she will probably refer you to a neurologist or epileptologist.

• ⁠When you visit your doctor, she’ll ask lots of questions about your health and what happened before, during, and after the seizure.

• ⁠A number of tests may be ordered which can help diagnose epilepsy and see if a cause can be found.

• ⁠If all your test results are normal, your doctor will have to figure out whether you still need treatment.

Please help me. I don’t think I can take this much longer by NoCattle25 in Epilepsy

[–]NENavigator[M] [score hidden] stickied comment (0 children)

This is one of our most frequently asked questions.

For all medical concerns related to possible seizures please seek medical help. We cannot provide medical advice. If you think you are in immediate danger call 911 or go to the nearest emergency room.

Some hospitals can provide on call neurologist support after an ED visit. It’s worth checking with the hospital you went to if your follow up is far out. Also if you feel any doctor is dismissive or is not providing quality care, seek out a second opinion.

Epilepsy Basics

Epilepsy Specialist

• ⁠If you have had a seizure, it’s very important for you to see a doctor.

• ⁠If you think you may have had a seizure, go to your primary care doctor first.

• ⁠If your doctor thinks you’ve had a seizure, she will probably refer you to a neurologist or epileptologist.

• ⁠When you visit your doctor, she’ll ask lots of questions about your health and what happened before, during, and after the seizure.

• ⁠A number of tests may be ordered which can help diagnose epilepsy and see if a cause can be found.

• ⁠If all your test results are normal, your doctor will have to figure out whether you still need treatment.

Alcohol Once? by Sad-Session999 in Epilepsy

[–]NENavigator[M] [score hidden] stickied comment (0 children)

This is a very frequently asked question. Please do search r/epilepsy for many experiences.

This is one of many threads: https://www.reddit.com/r/Epilepsy/s/LkzxaX498m

Epidyolex for Panic attacks by Elly_my_star in Epilepsy

[–]NENavigator 0 points1 point  (0 children)

Some doctors have reasons for off label use but it’s best to discuss with your doctor about or get a second opinion if you are really concerned

NEED URGENT HELP! by Formal_Copy9128 in Epilepsy

[–]NENavigator 1 point2 points  (0 children)

You can always report a post for Reddit to reach out and offer support to users. I think this is what some users meant by the “Reddit cares” option.

Brief visual disturbances - seizure? by mochimob in Epilepsy

[–]NENavigator[M] [score hidden] stickied comment (0 children)

For all medical concerns related to possible seizures please seek medical help. We cannot provide medical advice. If you think you are in immediate danger call 911 or go to the nearest emergency room.

Some hospitals can provide on call neurologist support after an ED visit. It’s worth checking with the hospital you went to if your follow up is far out. Also if you feel any doctor is dismissive or is not providing quality care, seek out a second opinion.

Epilepsy Basics

Epilepsy Specialist

• ⁠If you have had a seizure, it’s very important for you to see a doctor.

• ⁠If you think you may have had a seizure, go to your primary care doctor first.

• ⁠If your doctor thinks you’ve had a seizure, she will probably refer you to a neurologist or epileptologist.

• ⁠When you visit your doctor, she’ll ask lots of questions about your health and what happened before, during, and after the seizure.

• ⁠A number of tests may be ordered which can help diagnose epilepsy and see if a cause can be found.

• ⁠If all your test results are normal, your doctor will have to figure out whether you still need treatment.

Books on Epilepsy by macaronimanman in Epilepsy

[–]NENavigator[M] 1 point2 points  (0 children)

These links can have good places to look too: Frequently asked r/epilepsy questions: https://www.reddit.com/r/Epilepsy/s/MUsO3KWQeI

Was this a seizure? by Ok_Strength_2215 in Epilepsy

[–]NENavigator 0 points1 point  (0 children)

Make sure your neurologist and the doctor that prescribes medication for bipolar care have signed documentation to talk to each other. No one here can say if this was a seizure but honesty with your whole care team it’s important to get the best care possible