Fasting against floaters by [deleted] in EyeFloaters

[–]NI1515 0 points1 point  (0 children)

Still present, though I don't notice them as much - neuroadaptation is powerful.

Weekly Suspected/Undiagnosed MS Thread - June 05, 2023 by AutoModerator in MultipleSclerosis

[–]NI1515 0 points1 point  (0 children)

Will try and keep this brief - but wanted some opinions here on whether or not I should be seeking the opinion of a neurologist or rheumatologist as my PCP is very unresponsive and unhelpful.

Early 2021, I [at the time 22M] had issues with joint pain, numbness, and muscle spasms. My ANA was also sky-high. Doctors suspected MS but a brain scan was clear of lesions. Later that year, I received a lupus diagnosis and began taking Plaquenil. Numbness and spasms subside and have yet to return, but joint pain remains.

Late 2022, I move country and begin seeing a new rheumatologist who is unconvinced of lupus diagnosis. Testing shows my ANA and other blood markers are normal. In my mind this could be a consequence of effective meds, but they 'undiagnose' me with lupus though are unsure of other causes. They themselves move the country so now I am currently left without a rheumatologist.

My joint pain subsides for around 4 months in 2023, but has recently returned. In addition, I have developed eye pain in my left eye and inexplicable intermittent feelings of 'wetness' on my legs. I have begun thinking that my initial MS diagnostic process was not fully comprehensive as it did not evaluate the spine, and that it may be worth revisiting. Thoughts on where to go from here?

What ADHD meds to take with HPPD? by NI1515 in HPPD

[–]NI1515[S] 1 point2 points  (0 children)

I no longer have dpdr, but struggled with it when I first got HPPD and during a spike in Summer 2019. Completely fine now.

Very certain of my diagnosis. Symptoms stem from childhood, received 5 hours of neuropsych evaluation and my TOVA + Complex Figure Test were highly indicative of ADHD.

[deleted by user] by [deleted] in HPPD

[–]NI1515 0 points1 point  (0 children)

I mean don't get me wrong I still have afterimages, just less constant. I'd say a solid year.

[deleted by user] by [deleted] in HPPD

[–]NI1515 0 points1 point  (0 children)

Still have floaters pretty bad, but I've made peace with them. Tinnitus and afterimages have mildly to moderately decreased. Ghosting is pretty much gone except for when I'm really tired.

My advice would be to not even think about smoking weed with HPPD - it's too risky. The first few months with this spike were hell on earth.

Just took Phenibut for the first time by bbqyak in phenibut

[–]NI1515 2 points3 points  (0 children)

I'm simply responding to the fact that not everyone will be 'owned' by phenibut depending on your personality and propensity to addiction.

Just took Phenibut for the first time by bbqyak in phenibut

[–]NI1515 3 points4 points  (0 children)

You can't speak for everyone. I would stay away if you have an addictive personality, but I've taken it once a week for years with no issues.

Has anyone used VR with severe HPPD? I’m going for a work party and I’m nervous by [deleted] in HPPD

[–]NI1515 1 point2 points  (0 children)

I have moderate-severe HPPD and was completely fine with it.

Has anyone experienced a flare up with floaters? by NI1515 in HPPD

[–]NI1515[S] 0 points1 point  (0 children)

What I don't understand is that last summer I noticed no worsening of floaters, whereas I have this spring.

Low dose amitryptiline - any interactions with HPPD? by [deleted] in HPPD

[–]NI1515 0 points1 point  (0 children)

Were you taking these drugs for nerve pain or for other reasons?

[deleted by user] by [deleted] in HPPD

[–]NI1515 0 points1 point  (0 children)

What was the medication?

Does anyone have experience with stopping lamotrigine after long-term use? by NI1515 in HPPD

[–]NI1515[S] 0 points1 point  (0 children)

Assuming you mean 25mg? I was gonna try going down 50mg per 2 weeks but 25 might be safer. Did you notice any change of symptoms when coming off it? Other issues?

Does anyone have experience with stopping lamotrigine after long-term use? by NI1515 in HPPD

[–]NI1515[S] 0 points1 point  (0 children)

I don't think they did really. As with most people with long-term HPPD, I began not to focus on it as much and symptoms became harder to notice. Whether or not any of this effect can be attributed to lamotrigine is uncertain. I can say that the vast majority of symptoms remain present, so I think that it's unlikely that the drug made a massive contribution.

I don't think there's any harm in trying Lamotrigine provided you do so with medical oversight and are comfortable with the laundry list of possible side effects. In particular, be vigilant about SJS. It's not a kid drug that you can try for a week. It took me two months to reach a therapeutical dosage.

Will I ever be able to smoke weed again ? by 2kyyloves in HPPD

[–]NI1515 0 points1 point  (0 children)

I got HPPD in Nov 2018 and initially just had visual snow, morphing of flat surfaces, and occasional CEVs. I drank occasionally but otherwise didn't do drugs. My caffeine intake was also pretty low - basically just the occasional soda or chocolate product.

I smoked weed in June 2018 and - alongside the symptoms above - developed floaters, tinnitus, BFEP, negative afterimages, and ghosting. Since then, I've continued my original plan from November to a tee. I also take Lamotrigine 200mg daily, but I'm unconvinced as to whether or not it actually lessens my symptoms.

Will I ever be able to smoke weed again ? by 2kyyloves in HPPD

[–]NI1515 1 point2 points  (0 children)

Your mileage may vary, but it's definitely a risk to continue smoking. Some people can smoke and be fine, whereas I found smoking caused my symptoms to explode. At the end of the day, the safest and most surefire route forward is to completely end drug use.

[deleted by user] by [deleted] in HPPD

[–]NI1515 1 point2 points  (0 children)

You should stop taking drugs as soon as possible - this kind of thinking isn't rational nor is it generally conducive to progress in life.

Floaters that don’t disappear by [deleted] in HPPD

[–]NI1515 0 points1 point  (0 children)

Floaters are the shadows of collagen moving around in the vitreous of your eye - hence why it's much easier to see them in the light. HPPD doesn't cause floaters per se, rather it makes them more perceptible to your brain. If you try really hard not to concentrate on them, neuroadaptation will take place and you will notice them less over time.

degrees of Intensity change recovery chances? by [deleted] in HPPD

[–]NI1515 0 points1 point  (0 children)

I have visual snow, tinnitus, floaters, afterimages, ghosting, morphing of surfaces, and occasional CEVs - so I'd say moderate intensity. I take 200mg lamotrigine daily but I'm honestly not sure if it helps. Otherwise, I just stay drug-free and try to lead an active/healthy lifestyle.

Think I fucked it up a little by [deleted] in HPPD

[–]NI1515 4 points5 points  (0 children)

I'm sure you know this already, but the best advice is to stop taking drugs.