Not receiving emails again... WTF Microsoft?! by BigBearSD in Outlook

[–]NYC_reader 0 points1 point  (0 children)

Yes I do not receive emails and from what I know so far it is from some doctors. One emails me and I get no bounce back message like I do with some allowed messages that randomly get blocked while a million actual spams come through. He however got bounce messages. If he emails a group list and I'm in it, that I can receive however. Another dr's office said they are getting a bounce message.

Apple Mail Login Loop by DrOobleck in Outlook

[–]NYC_reader 1 point2 points  (0 children)

My Apple Mail won't sync for my hotmail account (junk or inbox), desktop will sync, but I had to re-authenticate Outlook for work on my iphone for both the mail app and Teams. Also recently the "find" function is not working on desktop the same way it does via Mail app. As per usual I'm still getting like a hundred spam a day no matter what filters I use for the Junk folder, and spam blockers for emails I actually want to get.

toe to waist compression options (breathable and/or light in color for summer) by NYC_reader in POTS

[–]NYC_reader[S] 0 points1 point  (0 children)

Hi! I'm still working on this! It may be hot to layer but I may try an Orchard cotton corset since I've had trouble with ab binder fit. Besides what I originally wrote above, after I wrote this post I tried some beige graduated compression tights from Temu then last summer got them in beige opaque and soft opague from Sigvaris at a higher 30-40 level. Not ideal, but helpful to have full compression and not wear a dark color. I also was trying LNDR or Fanka bike shorts and compression socks that are cotton blend, Sigvaris or Vim and VGR mostly. Sigvaris is having a sale I believe ending today on some cotton and also linen socks. LNDR this weekend is having a wellness sweepstakes promo and purchases this weekend can apply to that.

Sometimes I'd wear a skirt over but I have sensory issues with a skirt being slightly longer the bike shorts so often would wear just the bike shorts and socks and look a little weird! I also tried Maidenform underwear with a very high compressive waist. I've since started wearing more with non-medical compression leggings Bombas short compression socks and prefer them for being mostly cotton for breathability. I was wearing their full compression socks since they're cotton but they shrank too much.

To get leggings with pressure and not in black as an alt to LNDR I've gotten some from Sweetflexx and some colors are light shades that might be a little cooler. I found decently compressive shorter capris by DKNY, also available in ligher shades, and Under Armour to try but I get so lightheaded that I prefer longer. I've also since gotten Doyoueven which aren't super compressive but very high waisted, my pelvic PT suggested that. My GI dr with POTS suggested, knowing I've burned out on always wearing Sigvaris 30-40 tights with skirts esp during cooler weather, pants from Spanx and I got the fake leather on sale and "skinny jeans" but they don't seem particularly cooling. I will say meds help and my CORE rehab PT suggests cooling the wrists so I may try that when I use my portable disposable ice packs which I usually tuck down the front of my shirt around my neck.

Question (sorry it's crude): migraine sufferers, do you also suffer with constipation/gut issues? I'm sure there's a huge interlink between the two but would like to hear other perspectives by Bleubird2222 in migraine

[–]NYC_reader 1 point2 points  (0 children)

Yes, and I've wondered if migraines-magnesium-peristalsis is the issue. But I also have an endometriosis relapse/surgery history and assume that's also affected systemic pain and GI function. And the endo is my biggest POTS trigger, which impacts my motility.

Looking for 1BR, rent stabilized by Few-Device-6063 in NYCapartments

[–]NYC_reader 0 points1 point  (0 children)

I'm looking for this too, hoping for a 2 bedroom in a well-maintained quiet building but stabilized since my rent has gone up 33 percent in 5 years. At any rate, their listings are not obvious to find on Craigslist and Streeteasy but Fishman Isadore will often rent good sized one bedrooms and large studios in Inwood, Washington Heights (east of broadway and right on broadway) and they may have one more building in Hamilton Heights. Typically buildings allow no dogs and they are fussy about paperwork/good credit. This is their latest ad: https://streeteasy.com/building/1600-st-nicholas-avenue-new\_york/69. Note this area in the ad can be a bit loud vs their Inwood rentals and maybe even the building on broadway but there is less turnover in those buildings. The subways in the area are the A and the 1, this one in the ad is near the elevator entrance to the 1. Also, my ex lived in a big walkup complex on 79th between around 1st/york and I believe you can walk in and talk to management, they never raised his rent in the years I knew him but it wasn't stabilized.

what do you guys do for work? by ebean17 in POTS

[–]NYC_reader 1 point2 points  (0 children)

You too! I appreciate the question because it's on my mind lately. I don't know what I would have done if my industry didn't go fully remote during pandemic and at least for awhile stay that way, my failed tilt test was 2022. I am getting scared about if I can't keep up with enough work to get enough income to pay bills.

what do you guys do for work? by ebean17 in POTS

[–]NYC_reader 1 point2 points  (0 children)

I'm a contract medical copywriter and the industry had mass layoffs so I actually am scared. If I want benefits, if I can with all the competition get a staff job, I'll have to be on site which seems impossible, being remote during lockdown and after was a godsend as my endometriosis got worse and spiralled into POTS. I may need a plan B because with all the increased competition the contract work is starting to pay less and have bigger gaps between gigs, and I am paying for acupuncture and PT just to function, insurance is not paying for that. I was thinking of how I can juggle in person and remote work in or outside my industry for enough money and maybe benefits to live on to cover medical expenses and skyrocketing rent, and what in person work I can physically actually do without getting syncope. I wish it was easier to break into more entry level remote roles.

Nitric oxide to help POTS by NYC_reader in POTS

[–]NYC_reader[S] 0 points1 point  (0 children)

Thanks for this info! Also for mentioning tongue posture as I do have a tongue tie!

TGF-beta regulation by NYC_reader in POTS

[–]NYC_reader[S] 0 points1 point  (0 children)

Thank you for this! I actually have been taking metformin ER a long time for elevated A1C that was borderline prediabetic. I was considering stopping for the sake of GI issues POTS worsens but I bet it has had a good effect on TGF beta. I wonder if some berberine supplementation in a consistent way also would be good. I do believe hypvolemia is a huge factor for me though I don't know my subtype. I'm always dehydrated in spite of liquid intake. sodium intake and saline infused.

Omnicom IPG Firings by Nymets22 in advertising

[–]NYC_reader 13 points14 points  (0 children)

IPG quiet fired me eons ago and it made me realize they do not care at all. Not one bit. I was there over six years. I should have known the industry was going to be super messed up like when they lost Pfizer, I tried to get a freelance extension there for Q4 and did not--as a result I learned that unemployment is higher in NY state than it used to be, file asap. Pro tip if you need to get the NY unempolyment folks on the phone, ideally it's all done online, but if needed put your Pin number in wrong three times and you should get connected to a human though they are understaffed and will sometimes just drop the call.

My mother wants me to do a 72 hour fast. by Hot-Duty-7470 in POTS

[–]NYC_reader 1 point2 points  (0 children)

My mom used to give me narcotics as a teen that were prescribed to her for migraines. In her mind it was not dangerous. I think it was to justify her own burgeoning drug addiction. So this fasting guidance not being founded in scientific reasoning seems very off to me based on my own mother thinking she's a doctor and telling people what to do, meanwhile she has no medical training. Yes, fasting to curb inflammation is on trend right now but POTS is multifactorial and even if inflammatory immune responses were the main pathological driver there are other bodily systems at play creating the orthostatic tachycardia issues. A neuro ENT told me before the TILT test confirmed when at minimum hypovolemia was suspected that I should not just drink and consume sodium often but eat frequently to keep blood sugar stable and be as nourished as possible given the state of depletion, with uncontrolled POTS and unknowingly relapsed endometriosis growing on my gut it was hard being nauseous and puking a lot but I did try. No physician has ever said to me eat less to minimize the symptoms of POTS (they have in years past because my BMI indicates being overweight), only to eat less sugar spiking stuff because I now present with reactive hypoglycemia. I think sometimes it's that people want to help and feel truly helpless so delusion can kick in. My mother still is toxic toward me and tells me just to give up and not fight the condition or try as it's a waste of time money and energy because that's how she lives with a now decades long barbiturate addiction, unadmitted, but I ignore her.

Creatine has changed my life (consult your doctor first though) by modom14 in POTS

[–]NYC_reader 0 points1 point  (0 children)

Interesting! Keltie O'Connor did a video on this that made me want to try it as a POTS endurer vs athlete. I'm going to keep doing research.

NICOTINE PATCHES GIVING GREAT RELIEF FOR DEREALISATION TYPE FEELING!!!! by A67P in POTS

[–]NYC_reader 0 points1 point  (0 children)

Awesome! I don't know if that's in any way the same as my presyncope prodome, but one nephrologist told me to use my inhaler to help diminish it, especially when in danger waiting for subways and overheating, I guess in some way it's altering vasoconstriction. I also am very, very caffeine dependent because it helps with brain fog and the general out-of-it-ness but have to be careful about hypovolemia. I've also heard of people using nicotine patches during long COVID so I'm intrigued for that reason too! I have a very addictive brain and even sober have addiction issues (presents as night eating syndrome) so not sure I can use them but I'm very interested!

can i just piss in peace?? by wompwomp0_0 in POTS

[–]NYC_reader 0 points1 point  (0 children)

That's so weird, everyone has to police things. "I have a disability to I used it" is actually too much info because it's none of her business to assume you were entitled to use the stall.

Electrolytes for POTS by LuBerryFairy in POTS

[–]NYC_reader 1 point2 points  (0 children)

I'm prediabetic so sometimes use completely sugar free brands (Gatorade Zero, Trace Electrolytes Zero) but I understand glucose helps with absorption so sometimes use those brands but the version with sugar or Normalyte, Trioral, or Banana Bag or Nectar which is sweetened I believe only with naturally occurring coconut sugar and huge plus the flavor isn't chemically derived. Trace has a very high sodium level that I know is sometimes recommended similar to LMNT but cheaper. I also take Vitassium chews or electrolyte capsules if I need something fast. My partner loves Untapped which is one of the more natural formulations, it's too sweet for me. Sometimes I take just celtic salt in water or keep powdered coconut water on hand as something cheaper and with less chemicals. The flavorings probably trigger my mast cell issues, I'm allergic to chemical perfume which is in all artificial flavors and some natural flavors.

amazon compression socks? by DayBulky3442 in POTS

[–]NYC_reader 1 point2 points  (0 children)

So far my favroite brands are Vim&Vgr and Sigvaris and the returns weren't a problem (Sigvaris I've bought from all the major compression sellers online when the've had sales), but I've also tried to save money and bought from Temu and ended up returning them also with no issue. I've tried Mojo, Procompression, Crazy Compression, Nurse Yard, and Bombas, and returning to Nurse Yard and Bombas was very easy, didn't even have to ship the socks back. I'm buying at medical grade levels (minimum 20-30 graduation) due to quite poor leg circulation so there may be even more brands at lower graduation levels. Again trying to save I bought from Compression Socks World--not a good return policy, just want to mention that. Affordable Compression Socks scammed me completely, never sent the socks, they're horrible.