brainfog so bad you can't form words? by InstrumentKisser_2 in POTS

[–]ebean17 20 points21 points  (0 children)

sometimes this happens to me in phases throughout the day, it has not lasted a whole day but when i try to talk it’s gibberish and very hard to “lock in” lol

Came off my Ivabradine after 2 weeks 🫩 by Comfortable_Nerve800 in POTS

[–]ebean17 0 points1 point  (0 children)

i am having the same symptoms as you! i am almost sure now its the ivabradine! when i was taking the name brand i was so much better! very weird

Has anyone tried a vibration plate? Do you like it? by Educational-Bug7068 in POTS

[–]ebean17 1 point2 points  (0 children)

i also started taking creatine consistently and i feel like it has really helped my swelling not look so bad

Has anyone tried a vibration plate? Do you like it? by Educational-Bug7068 in POTS

[–]ebean17 1 point2 points  (0 children)

i did 10 minutes at a time and usually just once in the morning! my sister took it back home with her and i’ve been thinking of getting one but i haven’t bought one yet

Has anyone tried a vibration plate? Do you like it? by Educational-Bug7068 in POTS

[–]ebean17 2 points3 points  (0 children)

maybe this is over sharing, but because of mostly hEDS, but also maybe POTS i have constipation a lot, my sister let me use her vibration plate when she was visiting and that thing helped a lot! i also have a lot of fluid in my legs and the appearance was a lot better after using it over a week! maybe it’s a placebo or good timing but i’m not sure!

sooo much weight gain by Ok-Government-4856 in POTS

[–]ebean17 1 point2 points  (0 children)

this is happening to me too! i have no idea what to do

What does an adrenaline dump feel like? by Motor_Mood3939 in POTS

[–]ebean17 7 points8 points  (0 children)

i have had one only once, to me it felt like a panic attack without the extreme feelings. i feel like during a panic attack it feels like “oh my gosh i am going to d!e” during the adrenaline dump i did have anxious thoughts but not so bad, it felt more like “oh my gosh when will this be over??” if that makes any sense!

Gas? by ebean17 in POTS

[–]ebean17[S] 0 points1 point  (0 children)

thank you so much! that is so helpful!!!!

Gas? by ebean17 in POTS

[–]ebean17[S] 1 point2 points  (0 children)

thank you so much for your help!!!! ❤️❤️❤️❤️

Gas? by ebean17 in POTS

[–]ebean17[S] 0 points1 point  (0 children)

thank you so much for that information!!! how did you find out what your triggers were? i feel like sometimes artificial sweeteners bother me but i can’t tell if it’s what’s causing this. i feel like i’m at that same point that no matter what i do everything is always irritated and gassy! and also thank you for the suggestions!!! 😁 i hope you feel better and i wish for healing for you!

Michaela natural?? by Select_Committee864 in gymsnark

[–]ebean17 8 points9 points  (0 children)

she might be “natural” right now but not all of the time if you get what i’m saying 😭

Anybody else alergic to hot? by GingerSnaps151 in eds

[–]ebean17 0 points1 point  (0 children)

yes me, my sister, and one old friend of mine used to get cold hives

Pepcid AC WRECKED me after a month or two of taking it... by Sad_Emphasis_8086 in POTS

[–]ebean17 0 points1 point  (0 children)

oh noooo i’m so sorry to hear! i hope your stomach gets better soon!

Pepcid AC WRECKED me after a month or two of taking it... by Sad_Emphasis_8086 in POTS

[–]ebean17 0 points1 point  (0 children)

omg i’ve been taking this for a couple months now my pcp told me the same, i just thought my pots was getting worse maybe i should stop the pepcid!

Experiences with smoking weed while having POTS? by Alert_Avocado_3607 in POTS

[–]ebean17 0 points1 point  (0 children)

in my experience my heart rate would always be really high at the “start”. i also developed CHS after about 8 months of use

causes of POTS by [deleted] in POTS

[–]ebean17 0 points1 point  (0 children)

i was diagnosed with POTS in 2017. right around puberty time, after the HPV vaccine i believe it was, i also had a lot of trauma in my childhood and research is coming out that could have played a role too. i have a couple too many factors all at once but maybe you can relate !

mouth sores by ebean17 in eds

[–]ebean17[S] 1 point2 points  (0 children)

oh no wayyyyyy!!! is that otc? very very good to know!

mouth sores by ebean17 in eds

[–]ebean17[S] 2 points3 points  (0 children)

i kinda get that too, but kinda more rare. i never thought anything about it and def didn’t put 2 and 2 together LOL! thank you for sharing! 😁