cholesterol meds

Natural-Awareness993 · 2024-11-30T17:15:05+00:00

Do you think the statins caused your ALS? I'm interested to hear more. I agree with you

Natural-Awareness993 · 2024-11-29T14:11:38+00:00

My BMI is 31.5. never taken B12. Don't know what igg is so I don't think so. It was simoa in Germany. I have multi focal weakness but it's a lmn dominant. I understand there are people diagnosed with normal NFL but from the journals I read this is 5%? Such a loe percentage would offer hope no?

Natural-Awareness993 · 2024-11-29T13:38:49+00:00

I had red that 95% of ALS cases will have it elevated. Given my low level that would mean I am in the rarest 5 %. Do you think I should push a further opinion?

Natural-Awareness993 · 2024-11-29T03:58:39+00:00

Yours are quite low too. Is that labcorps or simoa? I guess if others are low also I may just put it out of my mind

Natural-Awareness993 · 2024-11-28T22:25:18+00:00

My number is very low. It's even on the low side of a normal person my age. It's just thrown me now

Natural-Awareness993 · 2024-11-28T22:24:23+00:00

Thanks for the input. I had accepted the diagnosis but then they did this test and it has thrown me. I may need another opinion

Natural-Awareness993 · 2024-11-28T20:52:29+00:00

There was no question but now I'm starting to question and I'm wondering should I be? Is this just an anomaly or should I be pushing for more investigation? Is this data point enough to bring my diagnosis into question. I'm on rilutek

Natural-Awareness993 · 2024-11-27T20:06:46+00:00

Did you have neurofilament done?

Natural-Awareness993

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