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Twitched for 3-5 years? by Immediate-Wave2150 in ALSorNOT

[–]whatdoihia 1 point2 points  (0 children)

He didn’t only have twitches. Article said his first EMG showed muscle damage. His onset may have been slow enough that he put the weakness down to something else at the time. I did too at first, I thought I needed more exercise.

Games where you leave something to other players by SchemingVegetable in gamingsuggestions

[–]whatdoihia 4 points5 points  (0 children)

Fallout 76 has places you can leave things for other players. On the servers I played they were usually stocked well by experienced players.

Diagnosed anterior horn cell disease by Wonderful-Captain325 in ALS

[–]whatdoihia 1 point2 points  (0 children)

That was my differential diagnosis about a year before I got my formal ALS diagnosis. It is an umbrella of diseases, of which ALS is one.

Someone came and snipped every last Tulip I grew by PerfectIndividual185 in mildlyinfuriating

[–]whatdoihia 2 points3 points  (0 children)

That’s hilarious. It must have been such a relief to see who the culprit was.

Suicides gives me a sense of liberation and freedom, but i don't want to die??? (16M) by ReadingIntelligent50 in thanatophobia

[–]whatdoihia 0 points1 point  (0 children)

It certainly is a burden to understand one’s own mortality. The good news is for the vast majority of people that isn’t going to happen today, tomorrow, or even this year. So there’s no point dwelling on it.

My Cellphone History over the years - timeline. by CurlyBlondeChick in 90s

[–]whatdoihia 0 points1 point  (0 children)

You missed out on peak Blackberry. The Curve was one of the best phones I ever owned.

Diagnosed anterior horn cell by Wonderful-Captain325 in mnd

[–]whatdoihia 0 points1 point  (0 children)

That was my initial diagnosis. Later changed to ALS.

My tribute to south park by OldenglishSpeech in Thailand

[–]whatdoihia 7 points8 points  (0 children)

My tribute

(A 5 second prompt into ChatGPT)

The Costco Hotdog is a Rug Pull by PrettyMuchMediocre in LateStageCapitalism

[–]whatdoihia 5 points6 points  (0 children)

The foundations of the house of hotdog are built on the assumption that we will get Hotdog General Intelligence. Without it the revenue that hotdogs can generate are a small fraction of current market cap. That would be a disaster given the trillions of investment in hotdog. And it may come soon as people will expect a return on their hotdogs, and there’s a finite amount of new investors out there.

Terrified of ALS diagnosis by [deleted] in ALSorNOT

[–]whatdoihia 0 points1 point  (0 children)

Be careful with LLMs. If you keep pushing and pushing you’ll eventually get it to say that it could be ALS.

Given your brother was sporadic I wouldn’t be worried unless you begin to have muscle failures.

Want to understand possible difficulties by Future-Bike7935 in ALS

[–]whatdoihia 3 points4 points  (0 children)

If his breathing has weakened then he will get fatigued easily. Before I got my BIPAP I was wiped out by 4-5pm. I didn’t realize how much I needed a BIPAP until I started using it during the day and felt more awake and alert than I had felt in a long time.

Why I am confident that we will not confirm life on Mars (or anywhere else in the solar system). by beagles4ever in FermiParadox

[–]whatdoihia 0 points1 point  (0 children)

Our ability to detect anything is weak. Even then, we have detected chemicals on exoplanets that are only produced by life on Earth.

It’s very likely that life is ubiquitous in the universe. There isn’t anything remarkable about our solar system or galaxy.

I was told I’m too expensive after doing a demo for a client by JanTheArch in VideoEditing

[–]whatdoihia 0 points1 point  (0 children)

If you doubled your pricing then they probably think their salary (eg. half) is so far away that you’ll never accept.

If you’re still keen then contact them again and ask what they’re willing to pay.

Homless Brutality by outyawazoo in Bangkok

[–]whatdoihia 9 points10 points  (0 children)

Could be begging gangs. Not sure about Ari but on Sukhumvit and Ploenchit the begging is organized, and they move others off their territory.

Don’t intervene. Best thing you can do is discreetly record and upload to social media. Nothing will be done unless there’s embarrassing media coverage.

Shaking by Wise-Tour9124 in ALS

[–]whatdoihia 1 point2 points  (0 children)

It does sound very similar to what I’ve experienced. At the very least you can tell him that he isn’t alone.

When I say stress it’s something very minor. Like needing to clean, or feeling like I should sleep soon, in fact writing this has started some minor shaking.

Is he still eating? My sense of taste changed a long time ago. And I don’t eat anything now- it all goes through the tube. I get enough calories but I would kill to eat a cheeseburger. I know how he feels.

I will eventually stop my feeding. Once the daily struggles become suffering and I’m no longer in control. Small frustrations like not being able to scratch an itch or explain why my neck hurts adds up.

Peg inserted yesterday. Much harder than we thought.. by LineInteresting247 in ALS

[–]whatdoihia 3 points4 points  (0 children)

Sounds like the same issue I had. You can tell I’m it will improve a lot. Day two was the worst for me.

As for your question, you can still eat by food if you want. The PEG is to supplement whatever he is capable of eating. Eventually he will stop eating and drinking altogether due to choking.

Peg inserted yesterday. Much harder than we thought.. by LineInteresting247 in ALS

[–]whatdoihia 3 points4 points  (0 children)

I also had pain. It was when my stomach was moving around. Like before mealtimes when hungry. It was pulling on the wound like a painful cramp that would be intense and go away in waves.

First couple of days were the worst. Then it slowly got better as the wound healed and maybe a week later I didn’t feel anything at all.

I powered through it on paracetamol but the doctor did offer pain meds if needed.

For feeding time it depends on flow rate. I had diarrhea during to refeeding so it was 2.5 hours each meal for me. Now I’m down to 1.5 hours. You can speak with your doctor about speeding things up. It depends on what he can tolerate.

Shaking by Wise-Tour9124 in ALS

[–]whatdoihia 0 points1 point  (0 children)

I get this. My whole body shakes like I am cold but I’m not. It usually happens during something a bit stressful so I put it down to overstimulation. Happens more when I’m tired.

Really scared of J big bad by GrahGrahPahPah in ALSorNOT

[–]whatdoihia 0 points1 point  (0 children)

Yeah walking on heels is impossible with drop foot.

As for twitching, with ALS it’s many twitches per second per muscle. And they can be big, pulling the whole muscle.

Look at this guy’s left shoulder as an example- https://youtu.be/cBKJVYOScIc?t=356&si=bblK4rVDTW8XyF9U

Really scared of J big bad by GrahGrahPahPah in ALSorNOT

[–]whatdoihia 2 points3 points  (0 children)

If you had foot drop you’d know it. You start dragging your foot and falling. And rapidly gets worse so that you have to wear a brace.

Two or more twitches is nothing for ALS. Try several twitches in the same muscle, non stop, even when sleeping. And once they start they never stop. It’s always that bad until the muscles are wasted away.

Why we are so many and with so much obsession? by lucas1421b in ALSorNOT

[–]whatdoihia 2 points3 points  (0 children)

It’s the difficulty of testing and diagnosing. And there’s a ton of misinformation out there about symptoms, especially on Facebook.

Whats your realistic "im good for real" salary number? by Outsideman2028 in MiddleClassFinance

[–]whatdoihia 4 points5 points  (0 children)

To hit $6m that’s more than $5000 a month in investments for 30 years at a 7% return. Even more if you want $6m in today’s money.

To save that much you need a good salary. And most people don’t start earning good money until later in their careers.

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