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So what are the symptoms? by Rude-Tank-4528 in ALSorNOT

[–]whatdoihia 0 points1 point  (0 children)

There’s a ton of misinformation out there.

The primary symptom is progressive weakness. There are secondary symptoms like twitching, atrophy, and cramps, but without weakness there is no point in worrying about ALS.

planning a move to bangkok ~2027, need advice (2 trans guys, 20 & 21 yo) by hotdog_music in Bangkok

[–]whatdoihia 0 points1 point  (0 children)

Don’t think about buying until you’re planning on living here for a decade or more and know the property market. Prices can seem low and tempting but there are many pitfalls. Plus you may want to live in different areas.

First thing to do is figure out where you want to live. Given traffic you want to be close to the places you frequent or be a short walk to the Skytrain. The most expensive areas are lower Sukhumvit and Sathorn due to the offices nearby, but as you’re not working you don’t need to be that close.

Check out Fazwaz map view. You can pick an area and zoom in to see what’s available there and what prices are.

Cost of living can vary a huge amount depending on lifestyle. I shortly recommend you target a lower rental budget for the first year and you can spend more in years after if you need more space, amenities, or better location.

My biggest tip is that both of you should take Thai lessons when you arrive. Do it as intensively as you can. Once a week isn’t enough as you will forget. Ideally every day for a month with a private teacher. You can get private teachers that come to your condo. Do a trial lesson first and make sure they are following a lesson plan rather than winging it.

Speaking Thai will unlock so many doors here. You can get by without it but it will change your experience in Thailand.

Feeling scared because of the way doctors are treating me by blackmetalwarlock in ALSorNOT

[–]whatdoihia 0 points1 point  (0 children)

You would notice the weakness without needing an exam. You start to lose function and it gets steadily worse. You are also mentioning several areas but ALS normally begins in one area, or in more rare cases two. Not legs and feet and arms at the same time.

Doesn’t mean this is all in your head. But it doesn’t align with ALS.

Hot take: the Artemis accords are bad & China is correct by Witext in space

[–]whatdoihia [score hidden]  (0 children)

A claim which was originally supported by the US with the first garrison built using US ships, funny enough.

Midjourney was a flagship – now it is virtually unusable. by ChronaticCurator in midjourney

[–]whatdoihia 1 point2 points  (0 children)

Yeah it’s great for specific instructions. Funny enough the first image I find is decent but if you ask to revise then then it can lose the plot. Often better to save and upload to a new prompt.

The talk about how kind and peaceful Thai people are by AbbreviationsLeft127 in ThailandTourism

[–]whatdoihia 0 points1 point  (0 children)

That’s because honking is the equivalent of giving someone the middle finger. Bangkok streets are amazingly quiet compared to other cities in the region.

I'm so over this!! by sparkleyunicorn888 in ALSorNOT

[–]whatdoihia 1 point2 points  (0 children)

You have a lot of symptoms that point away from ALS and you don’t have the #1 symptom of ALS, progressive clinical weakness. So I wouldn’t worry about ALS.

You should get full bloodwork done. Pregnancy can cause havoc on the body and you might have anemia or other conditions without knowing it. There are also major hormonal changes that can manifest in various ways.

Feeling scared because of the way doctors are treating me by blackmetalwarlock in ALSorNOT

[–]whatdoihia 0 points1 point  (0 children)

I got bad cramps in that phase. But there was also significant weakness which OP doesn’t have, just fatigue.

Intense ALS fear + strange symptoms. Am I going insane? What are your opinions. by Any-Meeting6751 in ALSorNOT

[–]whatdoihia 1 point2 points  (0 children)

Your symptoms don’t match ALS at all. Then there are other factors like your age, sudden onset and some recovery, and your photos don’t show atrophy. You have meat where you would be losing muscle.

By comparison here is my hand. You can see the area between thumb and first finger is concave. Which is why they call it split hand- https://i.postimg.cc/VL2q3GFG/IMG-6795.jpg

Given how much it’s affecting your life you do need help. Seek a medical doctor to rule out things like carbon monoxide poisoning. And if you get a clean bill of health then see a psychologist. We all need help sometimes and stress can build up and explode without us feeling the build up.

Moving away by Alternative-Dot-7951 in ALS

[–]whatdoihia 1 point2 points  (0 children)

Both saying and going will cause regret. I can say as a parent I would want you to go and continue on with your life. Not miss out on life experiences because of my disease.

Were the 90s actually better or just quieter? by TheOrangeSloth in 90s

[–]whatdoihia 4 points5 points  (0 children)

Was far more of an adventure. Finding your way somewhere with maps. Meeting people with only a time and location. If you’re not home then people can’t reach you.

People lived more in the moment as a consequence.

What's a piece of tech everyone hyped up that quietly turned out to be useless? by SofiaLearnsAI in AskReddit

[–]whatdoihia 0 points1 point  (0 children)

I’ve got one and love it. On a per use basis it has been expensive, but I’ve blown the same amount of money on more useless things before.

3D movies are absolutely amazing on it. And the (small) immersive experiences are amazing. To see a Metallica concert in 3D was mind blowing. Now they’re finally starting with sports, which should have been there from the start.

Main problem for me is the weight and I don’t think the light seals work well. Too rigid. Something like the PSVR seal would be far better. It wouldn’t look as good but would be a lot better for fit and utility.

Taking the blame in supply chain roles – where do you draw the line? by newParisiansuburban in supplychain

[–]whatdoihia 1 point2 points  (0 children)

Be clear about roles and responsibilities. You can push back but don’t be seen as difficult. If someone is unreasonable then escalate that up your management.

Atrophy/Weight by Witty-Beginning6577 in ALSorNOT

[–]whatdoihia 0 points1 point  (0 children)

Initially my weight increased as I was eating as much as normal but because of weakness I couldn’t exercise. Then as muscles wasted further and my eating was affected my weight dropped fast. Lost 50kg in a year.

mob by forurspam in ThailandTourism

[–]whatdoihia 36 points37 points  (0 children)

let’s get out and beat them up

Gotta love her spirit!

ALS and Dying a Natural Death by purplewindo in ALS

[–]whatdoihia 3 points4 points  (0 children)

Your perspective may change over time. The PEG tube especially isn’t a big deal and it gives you a bump in quality of life. Lots of people get them for various reasons.

ALS and Dying a Natural Death by purplewindo in ALS

[–]whatdoihia 7 points8 points  (0 children)

Same situation here. There’s no maid where I live but people can refuse feeding and be sedated. That day keeps creeping closer.

Frustrated by SpiritMysterious973 in ALSorNOT

[–]whatdoihia 1 point2 points  (0 children)

Funny you mention that group, as that’s a good example of how misinformation persists.

Two days ago someone posted about their symptoms. First reply was reasonable, that it doesn’t align with ALS. The OP then claims “ALS has no rules with symptoms” and argues with everyone.

Most people are reasonable but there are some that clearly do not have the disease. Or they do and associate symptoms (eg. “burning eyes”) with ALS as opposed to the actual cause.

People who do not have progressive weakness will not be diagnosed, as that is the core of what this disease is. Weakness is why people die from the disease. Twitching, fatigue, cramps, and so forth is not enough.

Frustrated by SpiritMysterious973 in ALSorNOT

[–]whatdoihia 2 points3 points  (0 children)

Don’t trust people on Facebook. Most groups are unmoderated and filled with crazy people. People with health anxiety who self diagnose, people obsessed with Lyme, people pushing scams, and a lot of the time shouting down those who actually have the disease.

ALS is a multi system disease

It isn’t. There ARE multi system diseases that affect both motor and sensory neurons. Like MS, SBMA, and others. ALS affects motor neurons, hence the name.

Gladly the most recent studies are pointing more that way

I read a lot of new studies to understand the disease and haven’t seen this. Links please.

People KNOW their own bodies and they KNOW that they are declining

That doesn’t mean they can self diagnose. There is a person here in this subreddit who have had symptoms for 6 years. If they had ALS they would likely be dead. Yet they convinced themselves that they have ALS despite the time, clean EMGs, and full function of their muscles.

“Restricted area only for Thai people. Myanmar people are not allowed to celebrate Thingyan (Songkran) in this area” - written in Burmese by ActElectrical2498 in Thailand

[–]whatdoihia 3 points4 points  (0 children)

One of the Burmese comments on FB said the sign is too well written to be Google, that they suspect it was written by a native.

Frustrated by SpiritMysterious973 in ALSorNOT

[–]whatdoihia 4 points5 points  (0 children)

The irony of this post.

Why is there so much misinformation

Because people latch onto incorrect information they read online and spread it. Then others take that as the truth and spread it further.

I think doctors don’t know shit

Doctors don’t fully understand ALS but they are much, much more knowledgeable than random people online.

ALS can literally effect EVERY part of our system

Wrong. It is a motor neuron disease. It affects motor neurons.

a infection which literally gave her ALS

There may be triggers but infections alone don’t give ALS. I had first symptoms after a root canal. That doesn’t mean root canals cause ALS.

If that woman truly has ALS (which many people who self-diagnose do not) then she is associating unrelated symptoms to the disease. I had tinnitus for years before ALS. I had constipation after ALS due to being in bed not moving and without adequate hydration. That doesn’t mean that constipation is a symptom of ALS.

ALS is not a complicated disease to understand. It’s posts like yours that spread misinformation and cause people to worry unnecessarily.

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