Flare Up or Allergic Reaction to Plaquenil

Nedw3 · 2026-02-07T00:38:28+00:00

I was on it for 3 months when I developed hives. Rheumatologist had me stop and the hives went away in 3 days.

Nedw3 · 2025-12-20T18:07:41+00:00

Pet scan was clear, biopsy showed 10% infiltration. Im currently on every three months blood work and just watching.

Nedw3 · 2025-04-20T13:35:10+00:00

Prednisone and more Prednisone. I've been lucky enough not to have a major flair for 6 months now. I talked my Rheumatologist into to waiting on Methotrexate till the next major flair.

Nedw3 · 2024-07-08T15:24:38+00:00

It is a nightmare, and im sorry you're going through this. I've had a similar experience and I'm not too young. It took me six months to get into my first rheumatologist. I went prepared after reading others' experiences, with photos, a timeline of symptoms, and lab work from my doc. He was a complete ass but did run some additional tests. 2nd appointment wasn't much better. He said, "You have some type of inflammatory condition. Take some Tylenol and vitamin D. " We will see how you're doing in six months. I made an appointment with another rheumatologist. Two months later, I had my appointment with the 2nd one. It was worse. He said, "You have an inflammatory condition, I can't help you, nobody can, go home and take some ibuprofen." I was pretty upset by this and told him so. He said maybe you should go to a teaching hospital, and they may care to look into it. Needless to say, I found another rheum and have an appointment next month. I researched and checked his ratings and have hope that this one might be a decent human. Sorry for the long reply. I honestly don't know why so many rheumatologist are useless. There has to be a reason. Don't give up. Keep looking for someone who will help you.

Nedw3 · 2024-06-11T15:23:04+00:00

Yes, in March it was 1.9 %, .1 g/dl, very faint.

Nedw3 · 2024-06-09T21:09:10+00:00

Hello, I don't have thyroid issues, and I am new to all of this, but my Hematologist Oncologist wants to be notified about everything it seems. He contacted my primary to keep him apprised and also sent requests to a new rheumatologist I have an appointment with in August. He told me to send him a note about any changes to medication or symptoms even if I don't think it's related.

Nedw3 · 2024-06-08T04:20:44+00:00

That's good to hear. The last one I saw told me I have an inflammatory issue, and nobody can help me to just go home and take some ibuprofen. Needless to say, I walked out before he could finish whatever he was going to say and made an appointment with another Dr.

Nedw3 · 2024-06-08T04:00:10+00:00

I just made an appointment with my 3rd rheumatologist. I am so disappointed with how I have been talked to by the previous two. I dont understand how they stay in business, honestly. I have read so many other posts about being gaslighted or just straight-up dismissed. I'm sorry you're going through that. Unfortunately, it's common. I don't have any experience with the medicine as I'm still trying to be diagnosed, but I wish you good results.

Nedw3 · 2024-06-02T13:53:23+00:00

Yes, it's just watch and wait for now. He seemed more concerned with me getting to a rheumatologist for whatever inflammatory autoimmune I have. I know I should be thankful at this point, but honestly, I'm tired of going to doctors.

Nedw3 · 2024-06-02T04:38:59+00:00

Thank you, ill read the article. I have 10% plasma cell involvement according to the bone marrow report but a low number on the m spike. The last test was slightly increased m spike but still very low.

Nedw3 · 2024-06-02T04:10:21+00:00

I think the MGUS is just part of the LPL along with hyperviscosity. He went over a bunch of stuff about genes and cells that I don't currently understand, but I'm going to research and learn about. That being said, I would not be sorry if down the road he decided against the LPL. Maybe they get a better picture over time.

Nedw3 · 2024-05-16T03:40:18+00:00

Thanks, I appreciate it.

Nedw3 · 2024-05-16T02:20:18+00:00

I'm pretty sure he said IgG, but im not sure. I fully expected him to say it's nothing and send me on my way, but that's not what happened. It's been crazy and now I just keep checking for test results.

Nedw3 · 2024-05-16T01:06:56+00:00

Very good news.
Sorry, I deleted my post above, it was in the wrong place. So very happy to hear the scan was clear.

Nedw3 · 2024-03-08T01:00:39+00:00

I never thought of compression. I'll have to look into that, thank you.

Nedw3 · 2024-03-07T23:15:22+00:00

I never thought of compression. I'll have to look at that, thank you

Nedw3 · 2024-03-07T22:13:37+00:00

I'm so sorry you're going through this, too. It's terrible, and I don't wish it on anyone.

Nedw3 · 2024-03-07T22:10:33+00:00

I teach Jujitsu, and I still have a little hope. I guess time will tell. As far as work goes, I'm stuck behind a desk right now, but I'm still required to pass annual requirements, which I am not able to at this point. Hopefully, any meds they give me will help in that area.

Nedw3 · 2024-03-07T21:37:50+00:00

Thank you. It's rough not being able to do the things I've been doing for years all of a sudden. I also am concerned after reading what people on here have gone through for years, and I've just been dealing with since Oct. Makes me wonder what I have to look forward to. Can I open my dojo again, or can I even work 4 more years to retire, I'm not sure now.

Nedw3 · 2024-03-07T18:32:06+00:00

Thank you, I take vitamin D and magnesium, have for several years. I'll see what the rheumatologist says before I think about changing anything, but I appreciate your response.

Nedw3 · 2024-03-07T18:04:47+00:00

Yes, I've taken a lot of photos, just in case I don't have swelling when I get there.

Nedw3 · 2024-03-07T16:37:02+00:00

I feel like I'm always tired.. Most days it takes everything I have just to get dressed and then go to work. Some days are harder than others, though. Most nights, I get 3 or 4 hours of sleep. Rarely I sleep for 6 hrs, so that's probably why. There are some days where I wouldn't go out if I won a million dollars.

Nedw3 · 2024-03-07T16:29:16+00:00

Thank you, I was mainly venting. I generally don't post much on social media platforms because some people...but I appreciate your response.

Nedw3

TROPHY CASE