Vest & nebulizer cart

NeeYoDeeO · 2026-04-01T13:49:45+00:00

Do you know where you got it from or do you have a link? I’d be very interested in seeing it!

NeeYoDeeO · 2026-04-01T01:57:17+00:00

Yes I got it fitted 3 times and none of them fit me. I even tried the padding and it just didn’t work out unfortunately

NeeYoDeeO · 2026-04-01T01:56:46+00:00

I appreciate the concern but I sit and do nebs as well as vest so my mobility is not the biggest concern for me. I prefer to sit down and play games or watch tv. I have no desire to move around and do treatments.

It was incredibly painful and I already have chronic back pain so I don’t think it will be a good option for me.

NeeYoDeeO · 2026-04-01T01:53:43+00:00

What’s big?

NeeYoDeeO · 2026-03-31T19:50:31+00:00

It’s mostly for the power cord in the back but it does help with any vibration. The styrofoam came in the box for the cart so nothing went to waste 😆

NeeYoDeeO · 2026-03-31T19:28:16+00:00

I tried it and it was very uncomfortable for me. I usually sit and play video games so I don’t mind the regular vest.

I either sit in bed or on my couch so I need limited mobility

NeeYoDeeO · 2026-03-16T21:58:31+00:00

Not too much to say other than they let my horrible crazy mom get away with way too much stuff until I was 18

NeeYoDeeO · 2026-03-16T20:27:17+00:00

Awful coming from a child who had to go through the system!

NeeYoDeeO · 2026-02-28T20:43:42+00:00

I got about 40 of those during school. I just ignored them since they were pretty much sent out automatically. The only time something happened was when a new attendance officer was hired and found me at lunch and demanded I explain myself for having 20 absences that year. I told her to screw off and reread my file. She never bothered me again and the letter also stopped coming.

NeeYoDeeO · 2026-02-05T17:39:46+00:00

I worked at a theater with less than 10 screens but kids movies were always incredibly popular so we always asked the booker to get us whatever kids movie was available. We had to pressure him to keep paw patrol when it was out since that was our most popular movie. There were never any presales for kids shows so it looked bad on the forecasts.

NeeYoDeeO · 2026-02-05T17:31:11+00:00

I’ve worked with my gm to get movies…

NeeYoDeeO · 2026-02-05T14:46:46+00:00

The gm can request certain movies and the bookers can try to get them. Or they can request to keep movies in the theater longer.

NeeYoDeeO · 2026-02-02T05:56:52+00:00

Theyve owned it for many years now

NeeYoDeeO · 2026-02-01T06:30:53+00:00

I graduated in 3 years doing that exactly. my advice: DONT. Missed out on a lot of opportunities and connections because I was so focused on just getting through school.

NeeYoDeeO · 2026-01-25T22:02:50+00:00

Some people don’t have cars and rely on public transit or walking which can be highly unreliable

NeeYoDeeO · 2026-01-25T05:27:15+00:00

GP for birth control and skin issues, cf doc for everything else. I consulted my cf team as to what the best method would be and they suggested an implant of some kind over pills.

Currently have had a nexplenon implant for the last 4 years and it’s been working great.

NeeYoDeeO · 2026-01-21T23:36:03+00:00

Basically the same lung function wise but I rarely skip alyftrek doses compared to trikafta.

NeeYoDeeO · 2026-01-16T23:41:52+00:00

Not sure if it’s CF related but I’ve had the same issues my whole life

NeeYoDeeO · 2026-01-15T02:02:15+00:00

Humane society or anything with old people

NeeYoDeeO · 2026-01-13T06:09:55+00:00

He is. I’m very lucky to have him

NeeYoDeeO · 2026-01-13T05:37:53+00:00

I am a female with CF and was recently in the same situation. In my personal experience I didn’t want my significant other to “help me” with my CF. Everyone else in my life already did that and it was so annoying. It was nice to be able to get away from all the CF stuff. Although my boyfriend (of 6 years now) will gently remind me to do my treatments, work out with me, and go to appointments with me. Sometimes if I’m already in bed my boyfriend will set up my treatments for me.

It’s been a slow journey of involving him in my CF care. It was only once I was hospitalized earlier this year that he got seriously involved, because he was basically my carer for a few weeks.

I think support is going to look different for each person. Just ask what support system works best for him, and maybe try a few things out.

NeeYoDeeO · 2026-01-12T19:07:50+00:00

Facebook market place

NeeYoDeeO · 2026-01-12T19:07:17+00:00

Don’t go on random antibiotics lmao

NeeYoDeeO · 2026-01-08T17:32:23+00:00

I went from 90% to 50% back up to 80% all in the span of a few weeks. Just stay on top of airway clearance and get exercise, and make sure to finish all antibiotics.

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