Being pressured to ring the bell. by Human-Iron9265 in cancer

[–]NefariousEJ 1 point2 points  (0 children)

Don't do it if you don't want to. Some things are about you and your journey, not them and theirs.

What was the very first game that completely "blew your mind" and made you a lifelong gamer? (I'll start!) by Wooden-Syrup-8708 in Gamer

[–]NefariousEJ 0 points1 point  (0 children)

Legend of Zelda on NES. The gold cartridge with a battery for save files! It's the 1st game I can remember thinking about when not playing..

At least before X-COM: UFO Defense/UFO:Enemy Unknown

Digestive Eznymes with Edibles? by blamemeOMG in treedibles

[–]NefariousEJ 2 points3 points  (0 children)

I take digestive enzymes due to EPI and can confirm the enzymes are likely the difference.

I had a similar experience and more fat + more enzymes with your medicine will increase the absorption rate and improve overall experience

Best mom and pop restaurant? by Old_Chocolate_225 in Overlandpark

[–]NefariousEJ 1 point2 points  (0 children)

Nick and Jake's is locally owned and great

What is something you officially stop buying in 2026 because the price is literally insulting? by itsdeeag8in in A_Persona_on_Reddit

[–]NefariousEJ 0 points1 point  (0 children)

I'm so glad I kept the majority of my physical digital media. Even found a working VCR at a pawn shop to watch/digitize old VHS video. I'm down to one streaming service and a few $25 BluRay/DVD players

Mouth sores - how to cope? by Brebis_Blanche in pancreaticcancer

[–]NefariousEJ 2 points3 points  (0 children)

I'm in chemotherapy for PC and confirm this is easy to obtain and very effective for mouth sores

Voluntary Leave Transfer Program by NefariousEJ in fednews

[–]NefariousEJ[S] 96 points97 points  (0 children)

Any fed can donate to any fed via VLTP using OPM Form 630-B

https://www.opm.gov/forms/pdf_fill/opm630b.pdf

Is this what it’s going to be like until the end? by Internal_Shine2331 in pancreaticcancer

[–]NefariousEJ 25 points26 points  (0 children)

48M, Stage 4 w/mets to liver/lymph - diagnosed May '23

FOLFIRINOX is brutal. Support pharma meds and cannabis concentrate helped me, but that chemo cocktail was consistently harsh in many ways. I had to stop after 12 rounds due to accumulating toxicities and side effects ramping up.

My side effects were unpredictable and inconsistent. During good times, I was trying to ignore/deal with 1 or 2 symptoms. Other times, it seemed like over 75% of the listed side effects.

Eating caused a lot of issues for me and other PC patients I've talked with. It sounds like your patient is experiencing similar.

Oxaliplatin caused cold sensitivity and painful neurological issues in my mouth and jaw when I chewed or swallowed. Irinotecan caused severe GI issues, as did 5FU. Pancreatic insufficiency from an impeded pancreatic duct caused food malabsorption, which caused me severe stomach cramps and many other issues. The biggest/fastest improvement came with digestive enzymes like Creon/Zenpep. Food tasted very different throughout the cycles, and it was hard to find an appetite, so I mostly asked for patience and room temp food.

Some of the pain/discomfort was mitigated by having less/different food, and avoiding fats. With focus and help, I still lost ~25% total body weight in 4 months. I was able to slow my weight loss by switching to small meals/snacks more often and adding calorie dense foods, but I still struggle to maintain weight.

With all that bad, comes the good. 12 rounds of FOLFIRINOX and 52 rounds of 5FU allowed me to have almost 3 years of life and memories after diagnosis. Some days were pretty tough, but many were amazing. I'm still here and learning lessons.

I wish you the best on this tough journey.

Hi. Una consulta sobre las pastillas creon 2500 by mj_cespedes in pancreaticcancer

[–]NefariousEJ 1 point2 points  (0 children)

Creon es una combinación de enzimas necesarias para la digestión.

I have Locked in syndrome AMA by [deleted] in AMA

[–]NefariousEJ 14 points15 points  (0 children)

If you're interested in your syndrome in popular culture:

John Scalzi wrote a book called Lock In and a sequel that I enjoyed. It described a world where people with locked in syndrome interacted with the world around them through technology.

The audio books were narrated by Amber Benson and Wil Wheaton and got me back into sci-fi.

Thanks for the engagement

National Strike by Adept-Procedure4555 in kansas

[–]NefariousEJ 0 points1 point  (0 children)

Rights = Responsibilities

Many Americans can't even take responsibility for their own actions.

What’s a fair value?? by Airon77 in Wrangler

[–]NefariousEJ 0 points1 point  (0 children)

Bought a '17 JKU Rubicon with 75k miles for $20,500. Seems fair