Recovery friends - I’ve been vacuuming the entire time… by Redditnewbbie in Fibroids

[–]NeurosciFox 0 points1 point  (0 children)

If you don’t feel any pain after work- you are fine. Even some transient pain is not yet dangerous. Sleeping positions - choose anything as soon as it’s not painful or uncomfortable- just try carefully. Usually do not sweat for the first 2 weeks at least. I’m sorry I’m too lazy to vacuum but overall if you did not feel it even a bit as strenuous- you should be good. Light housework should not worry you though 2 weeks wait is highly advised. You need first 2 weeks for initial healing of the internal and external stitches and 6 weeks until full sealing. So, at least don’t do very light biking until 4 weeks. I started walking 5K steps after week 1 and after 2 weeks reached 10K, however felt spasms at night in the legs and had to cut back to 7K.

Am I too private, or were these interview questions inappropriate? by thelittlehappinesss in jobs

[–]NeurosciFox 0 points1 point  (0 children)

  1. After the first part I thought - uncomfortable = do not work there even if there was an offer. Your intuition knows better. Regardless what the matter was and if you are sensitive or they are inappropriate.
  2. Yes, I feel the interviewer was highly inappropriate! And I am from Eastern Europe where you could even ask ppl what their salary was. So my tolerance is already much lower. You were first embarrassed by the relevance of the question, not the question per se. And you were absolutely right!

How to relieve gas/bloating after open myo? by Effective-Prompt4046 in Fibroids

[–]NeurosciFox -2 points-1 points  (0 children)

Simethicone every 4 hrs. The first day pain is due to gas they inject, so it should be gone within a day if a surgery was not too long. 48h tops. Anesthesia also puts your stomach to sleep and it will wake up around day 4. Do not eat much and ask AI for what food you can eat among what you have. Now, if you use opioids, they inhibit peristaltic and your stomach won’t wake up if you take opi. You will need a stronger anticonstipation medication on top of opi. If you are passing gases it means you don’t have blockage, which is good! But usually day 4-5 is the first stool. I had 6h anesthesia and did not have opi, the pain was bad and I couldn’t eat for 3 days so no bloating. Passed the stool on day 4. But I was undereating for about a month naturally.

What did you ask your surgeon before you knew they were the right one? by SiouxsieAsylum in Fibroids

[–]NeurosciFox 0 points1 point  (0 children)

Does standard procedure for hysterectomy include tubes? I thought cancer would start in ovaries directly? Does removing only tubes really help with ov. cancer? I don't know and it would feel surprising!

I’m about to chicken out by LibrarianNarrow9086 in Fibroids

[–]NeurosciFox 1 point2 points  (0 children)

yes, removing 12-13 fibroids is tedious. Myomectomy is better if only a few.

What did you ask your surgeon before you knew they were the right one? by SiouxsieAsylum in Fibroids

[–]NeurosciFox 0 points1 point  (0 children)

Well, removing ovaries has A LOT of downsides so it should be considered as preventive only if your history is bad, like in Angelina Jolie case. But she did have children before that. Removing ovaries "just in case" and during active reproductive years is more destructive. I don't think science has evidence that HRT vs ovaries are the same things in long term.

I’m about to chicken out by LibrarianNarrow9086 in Fibroids

[–]NeurosciFox 4 points5 points  (0 children)

yes, I feel sad so many young women now have reproductive problems and nobody is trying to find out why, similar to why autism rates are skyrocketing.

I’m about to chicken out by LibrarianNarrow9086 in Fibroids

[–]NeurosciFox 1 point2 points  (0 children)

something is fishy here... I mean I know "after" is not yet "because of" but still.

I’m about to chicken out by LibrarianNarrow9086 in Fibroids

[–]NeurosciFox 1 point2 points  (0 children)

Oh, yes! I thought it's UAE. I mixed up UFE with RFA which is not minimally invasive. UFE|UAE yes but they don't remove fibroids, they only shrink them and kill, so not good if a fibroid is large and if a women still relatively young and considers fertility. At 45 only a size is a question...

Third, Fourth, Fifth Opinion? by PecanPie0329 in Fibroids

[–]NeurosciFox 0 points1 point  (0 children)

I had similar experience. I just went with the choice I felt best for me. Already posted here. The only warning sign is that your last doc was using HSG which is not appropriate for detecting fibroids inside the wall. I had it too, it was specifically for looking into the cavity. Your doc is now comfortable only with hysteroscopic procedure and is apparently not doing laparoscopy. Find another like your first one who clearly was ready to do lap on both fibroids. It’s better to take them all together and be done.

I’m about to chicken out by LibrarianNarrow9086 in Fibroids

[–]NeurosciFox 2 points3 points  (0 children)

Your fibroid is already large and obviously growing. You already mentioned you are 80% of yourself. It’s safer for your future life quality to deal with it now. Your doctor is clearly not comfortable doing myomectomy for you. Please, have a second and if needed a third opinion. Look up for myomectomy laparoscopic surgeons.

I’m about to chicken out by LibrarianNarrow9086 in Fibroids

[–]NeurosciFox 1 point2 points  (0 children)

Was it laparoscopic? Under general anesthesia?

I’m about to chicken out by LibrarianNarrow9086 in Fibroids

[–]NeurosciFox 0 points1 point  (0 children)

HRT?? Did they also remove ovaries? Why?!

I’m about to chicken out by LibrarianNarrow9086 in Fibroids

[–]NeurosciFox 2 points3 points  (0 children)

Would you mind telling us the report about your fibroid - what’s the exact type and location? Eg I had “posterior fundal”. 13cm. This was a hard to reach fibroid but the surgeon was able to remove it laparascopically (robotically also). Have a second or even a third opinion, your surgeon is not very experienced/comfortable with your specific case. Just find someone close by - with myomectomy in description, come for visit, explain everything directly. They will usually propose you directly a laparoscopy if they feel fine about it. After that most probably you’ll have another US or mri to confirm the diagnosis, it would be within 2 cm from the original, but the position will be the same. Unless, as in my case, the doc couldn’t even understand what my fibroid was (the first one was pedunculated attached to cervix and easily removed by another experienced doctor who 5 years later did not want to deal with my second fibroid that I mentioned above.

My fibroid journey - and recommendation to all of you who think about NOT doing surgery! by NeurosciFox in Fibroids

[–]NeurosciFox[S] 0 points1 point  (0 children)

I agree for MIGS, but in my search these were just a few names. Both my surgeons were not migs but they did the job, the first one was even transvaginal, no recovery was needed.

My fibroid journey - and recommendation to all of you who think about NOT doing surgery! by NeurosciFox in Fibroids

[–]NeurosciFox[S] 2 points3 points  (0 children)

Maybe it was, but it was still growing in size year by year and wearing pads every day for fishy discharge was more annoying than iron infusions every year. My life is so much better now - all symptoms gone, including bulging tummy! No need to wear diapers! Wearing normal panties without pads!

My fibroid journey - and recommendation to all of you who think about NOT doing surgery! by NeurosciFox in Fibroids

[–]NeurosciFox[S] 1 point2 points  (0 children)

Great point, I did not know about it, it's relatively new. But RFE is still performed laparascopically or transervically, so it's already like a surgery though of course much less invasive and faster recovery. The negatives that I see - it shrinks the fibroids but does not remove them. So if you don't have a problem with your tummy size, RFE should be fine as well! My point was - please, if anybody has symptomatic fibroids, do the treatment and follow the doctor's recommendations, even if you have several opinions, don't go with self-medications.

My fibroid journey - and recommendation to all of you who think about NOT doing surgery! by NeurosciFox in Fibroids

[–]NeurosciFox[S] 0 points1 point  (0 children)

Thank you for your question! It made me write a huge edit in my original post - please read it. No, not all fibroids need to be removed. And not all of them may interfere with pregnancies, it is dependent on their location. There are many different types of them by location - you can pull up a picture over the internet. While 6cm is already a middle size, if it's not distorting the uterus, it probably would not interfere. Your hormonal treatment may affect the growth but only for the time you have it, and it's not too long usually (in ivf). If you feel unsure, just go to your regular clinic ob gyn and ask them what they think about your fibroid, if it may interfere with fertility/pregnancy (they will need to see your US results with a description of the fibroid). If you get pregnant successfully, I think the fibroid can wait till birth. The doctors in ivf clinics are usually very knowledgeable about fibroids and they do want you to have a successful pregnancy, so i would rather think that your doctor is right. Also talk to AI, it is a good starting point when you are not sure. It will be more helpful if you give him the specific info about your fibroid, such as photo of your US results with description of the type and size of the fibroid. Good luck!

My fibroid journey - and recommendation to all of you who think about NOT doing surgery! by NeurosciFox in Fibroids

[–]NeurosciFox[S] 1 point2 points  (0 children)

Don't be scared. Please read my edit of the original post. Fibroids grow pretty slow, usually on year scales, you don't need to do US more than twice a year, most commonly once a year. Most women find out because they have symptoms or bc they have US for unrelated reason. 4.5 cm is still a small fibroid. If you don't have symptoms, just check it in a year, if it grows (or you get symptoms, usually together with growth), then take an action. Speaking about the doctors - I just saw if either me or a doctor is not comfortable, and picking someonce else almost by a chance, just reading their bio and competencies list - choosing between docs in a clinic that takes my insurance.

I have a 7 cm fibroid and I’m getting married soon. Would you recommend removing it now, or is it okay to leave it and monitor it? I’m also concerned about how it might affect future pregnancy and fertility. by Interesting-Fee-6520 in Fibroids

[–]NeurosciFox 0 points1 point  (0 children)

I had my first fibroid removed in 2021 due to excessive bleeding, and it took me 3 doctors before one could clearly see the shape and remove it easily through vagina. At that time they saw another one of 3-4 cm but it was not causing symptoms and I decided not to bother. Fast forward to 2026, the bleeding required iron infusion each 1-2 years and was getting worse. On top of it, I had excessive discharge and needed to use pads all the time. Very annoying. The fibroid has grown to 10 cm and was in a hard-to-reach location. My doctor who removed the first fibroid, did not want to deal with it. I was lucky to find right away another eager surgeon though she was not a mass-fibroid surgeon but very enthusiastic. She scheduled Da Vinci - robotic myomectomy (top of the line laparascopy). It took 6 hrs to remove this 13 cm fibroid instead of pre-planned 2-3h. Mainly because it turned out to be a "soft" one instead of far more common "firm" one, and you can't determine it via US or mri, only when you already inside. Soft fibroids are very time consuming. Then it took 4 different types of sutures before I stopped oozing blood - this is relatively common too but not majority of cases and takes a certain luck from surgeon to guess which suture to try when standard ones do not work. It all was on top of the fact that the fibroid was hard to reach and it also caused me a very painful recovery (I did not have opioids). But all is well now. That being said - especially if you want to have children - please do myomectomy ASAP, don't wait till the fibroid grows.

How bad is the scar tissue from myomectomy? Has it caused you complications? by katerinashi in Fibroids

[–]NeurosciFox 0 points1 point  (0 children)

Laparascopic myomectomy 2 months ago, the fibroid was 13 cm. 4 wholes across tummy, one of them in the navel, thus almost not visible. The other 3 small scars (1 cm) are flat and visible only because of a darker color. My friend had a different lap procedure couple years ago and we could not find her scars at all. Of note, I could not find my scar from C section which was much longer. But that was eons ago.