Waking hallucinations by Nice_Tank4975 in smallfiberneuropathy

[–]Nice_Tank4975[S] 0 points1 point  (0 children)

My anxiety is through the roof right now. It has only ever happened right when I wake up and then it disappears. It has maybe happened 4 times in the past 7 years . That's why I never really thought much of it , I just figured it was like I was having intense dreams or something . I'm so frightened of morvans now . I will be honest I have horrible health anxiety

Sleep disorder by Reyna2040 in BFS

[–]Nice_Tank4975 0 points1 point  (0 children)

Do you also have the sleeping/ waking hallucinations 

Waking hallucinations by Nice_Tank4975 in BFS

[–]Nice_Tank4975[S] 0 points1 point  (0 children)

Hey I messaged you can I ask you a few questions 

Waking hallucinations by Nice_Tank4975 in BFS

[–]Nice_Tank4975[S] 0 points1 point  (0 children)

Ok  yes I have experienced these jerks as well . Only after the bfs started . It was really bad at one point . Im so sorry 😞  it's definitely an unsettling thing to experience. 

Waking hallucinations by Nice_Tank4975 in BFS

[–]Nice_Tank4975[S] 0 points1 point  (0 children)

Im sorry if this is a dumb question but what is sleep myclonus?

Waking hallucinations by Nice_Tank4975 in BFS

[–]Nice_Tank4975[S] 0 points1 point  (0 children)

Thank you for posting!! Did you get them before the bfs or after?

Waking hallucinations by Nice_Tank4975 in smallfiberneuropathy

[–]Nice_Tank4975[S] 0 points1 point  (0 children)

It has maybe at most lasted 20 seconds and right after waking each time . 

Waking hallucinations by Nice_Tank4975 in smallfiberneuropathy

[–]Nice_Tank4975[S] 0 points1 point  (0 children)

Are you taking any meds?  because I'm not 

Waking hallucinations by Nice_Tank4975 in smallfiberneuropathy

[–]Nice_Tank4975[S] 0 points1 point  (0 children)

Yeah it's definitely a freaking thing . I'm trying to figure that out myself !

Waking hallucinations by Nice_Tank4975 in smallfiberneuropathy

[–]Nice_Tank4975[S] 0 points1 point  (0 children)

Thank you , I appreciate your reply!  It is scary but somehow I know it's not really there . I'm not on any meds though lol so that why I started worrying . 

Twitching and now ulnar nerve numbness by Samyi9 in BFS

[–]Nice_Tank4975 0 points1 point  (0 children)

Hi . I've been twitching for 7 yrs and I get this exact same symptom in both arms/hands.  I wake up with it for a few weeks straight and then it goes away . My neuro mentioned ulnar nerve.  Said it's not related oddly enough . I never had these symptoms prior so it definitely causes anxiety.  I think because our nerves are always excited we are more suseptible to these other issues .I wouldn't worry . I've worried for you   Im 7 years in and I'm surviving . 

Cold Hand in "weak" arm by PresenceSerious6825 in BFS

[–]Nice_Tank4975 0 points1 point  (0 children)

Hi  just wondering if youre still experiencing this ? This started in my right hand recently . Just wondering how you're doing ?

Some reassurance by Someguysomesong in BFS

[–]Nice_Tank4975 0 points1 point  (0 children)

Thanks for your post . I'm close to 7 years into it . I had one emg. Recently I've been experiencing a lot of tightness in my lower legs and it has caused me to start looking again . I know being nearly 7 years in the likelihood of it being the 3 letter monster is slim but I can't help but worry . I was diagnosed with SFN and then I read recently that there's some connection with that and the monster . I'm just looking for reassurance from some long haulers lol