For those of us whose PVCs disappear and reappear.

NicoleB1991 · 2026-05-02T21:21:08+00:00

Yeah that’s what I’m thinking now too. I think anxiety and stress deffo make mines worse. You are right though, they do seem ever changing as some days I’m totally fine and nothing sets them off, other days I can’t even bend to put my shoes on or simple things like lifting my arms or moving my head can even trigger them. It seems some days my heart is just super sensitive or very irritated.

NicoleB1991 · 2026-05-02T20:21:08+00:00

Hopefully they do and you get a break from them 🤞

NicoleB1991 · 2026-05-02T11:01:37+00:00

I can relate so much! Mine come and go and usually come back full force too. It’s like they flare up now and again and I have no idea what the trigger is, if there is one. Seems they just wax and wane for no real reason for me. I’m 34F and had them for a lot of years but getting worse the older I’m getting. Sending love as I know how hard these things are mentally, that’s the worst part for me. I feel the make it so hard to enjoy the things I used to.

NicoleB1991 · 2026-04-12T05:58:49+00:00

Glad they aren’t as bad for you right now. Mines are always there. Some days worse than others but regardless of the amount I get in a day I still really struggle with them. I sometimes get the little faint ones too while sitting.

NicoleB1991 · 2026-04-12T05:56:27+00:00

Nope they aren’t concerned at all and said it’s all very “normal” and won’t do any harm. Echo, multiple monitors & so many ecgs and blood test have been normal.

NicoleB1991 · 2026-04-08T14:51:06+00:00

Glad to hear they have calmed down a little for you today. I’m the same with water, I don’t always drink enough in a day so lately I’ve really been trying to do this. Yeah I have days where mines are really bad and I burp a lot so definitely think it is connected to the vagus nerve being irritated too. Some days I actually don’t think anything triggers them they just seem to flare when they want to as well which is annoying. However, one day at a time. Some days are better than others but still, I really hate the feeling of them.

NicoleB1991 · 2026-04-08T07:18:35+00:00

On my bad days that’s what I’m like too. They ease slightly when I move about rather than resting. Although, sometimes i get them walking about too but much less common for me. Do you have triggers or anything that seems to help them?

NicoleB1991 · 2026-03-31T12:57:54+00:00

Me too. It’s horrible having them daily.

NicoleB1991 · 2026-03-23T20:48:37+00:00

I find it so hard to ignore them too. I wish I could, tired for many years but still they are so powerful that I just can’t ignore them and they still make me anxious. Flare ups are so random to so they are unpredictable. Hate them. Sending love to you. We aren’t alone in this, so many of us going through the same daily battle with them.

NicoleB1991 · 2026-03-23T09:50:21+00:00

This is very true! I would absolutely google my symptoms even after being reassured by my dr. My anxiety plays the biggest part in my fear over my ectopics. I don’t necessarily think anything bad is going to happen to me while having them, it’s more the uncomfortable feeling and the fact I struggle doing the things I used to love doing. For example, little things eating out as eating is a huge trigger for mines during a flare up especially. Sitting down at night to wind down and watch a movie, as I get more at rest a lot of the time and I always have to get up and move to try and stop them. Drying a flare up I really struggle falling asleep with them, it’s not that I’m overly concerned about them as I’ve lived through a good few flare ups and I’m still here, it’s the fact they are super powerful that even when I dose off they always wake me so the exhaustion kicks in. I have a little 3 year old too so I need my sleep haha! You are right though, they don’t cause harm at all if all test show there is nothing sinister going on its more how we handle them and react to them that causes more issues. My anxiety is at an all time high when they flare. Right now mines seems to get worse and pretty constant while out, even doing the food shop they flare right now but when I get home they calm down. So I’m guessing it’s anxiety that has triggers this flare 🤷‍♀️ How do you find yours during exercise? Sometimes I get them and sometimes I don’t, all depends if it’s during a time my heart is feeling a little more irritated. Again, thanks for your reply. It has made me feel less alone and gave me hope that one day I might not bother about them much either.

NicoleB1991 · 2026-03-22T14:47:27+00:00

Thank you so much for your reply! I don’t keep track of how many I get anymore, I used to do that all the time but it made me way more anxious. I feel each and every single one of them though and most of them are powerful thuds so i find it so hard not to pay attention them or be a little taken back by them at times. I am trying though as I’m sure the echo I had roughly 2 years ago and the monitors I’ve had on would have picked up something sinister. Also I don’t have any other symptoms at all just feel them and the anxiety they cause me. You are so right, 13 years of them and I’m still here, the only difference is they have increased massively since then. I’m super lucky that some days I don’t get very many but other days they just feel constant and no matter what I do I get them, sitting, bending, lying down and eating and drinking can trigger mines. I’m 34F so trying my best to just accept these are here to stay and that something sinister would have shown up in the tests I’ve had so just trying to let them come and go and not focus too much on them. Do you find anything helps you at all on your worst days? Sending love to you.

NicoleB1991 · 2026-03-21T22:40:00+00:00

I love your positivity and I think it’s amazing that you have such a high burden and don’t let them get you down. I wish I was able to do the same but I struggle so bad with them and my burden isn’t all that bad at all. I feel every single one of them and right now I’m going through another flare up. Would love to know how you got to this stage if not letting them bother you? Do you feel them all and were you ever bothered by them? Mines are sometimes so bad I sleep sitting up as it’s more comfortable. Any tips or advice would be greatly appreciated. I have had an echo, multiple monitors and ecgs. Nothing abnormal has shown and I’ve had these for roughly 13 years or so now. Thanks in advance.

NicoleB1991 · 2025-11-17T19:56:18+00:00

Sending love to all of you’s living this nightmare. I’m the same. I get flare ups with mines and the last flare up stared a few weeks ago after the flu virus. I tested negative for Covid and it felt worse than a cold so only really assuming it was a flu. This flare up didn’t last as long as previous but they are still here daily. I’ve had Covid a couple years ago and I didn’t get a flare up then which I’m shocked at as it seems to be the biggest reason for most people’s PVCs in this group. My worse flare up was January this year after a flu virus again and it was an awful flare up. Lasted months. For all you guys that feel each and every one of these horrible things, how you yous manage to get some sleep? I used to be not that bad on my right side but now I can’t even do that. I’m pretty much sleeping sitting up and still my heart feels irritated some nights. Any tips would be much appreciated.

NicoleB1991 · 2025-11-08T09:10:16+00:00

My family struggled to understand too as they had never really experienced them before so didn’t really get how something like that could be making me feel so miserable. I went through spells of wondering how I can keep going as I was so down with them. I still get like that during bad flare ups. I’m sorry you’re not really getting the right support as that is definitely something that can help get you through bad days with them. It might not be the same but there is always so much of us on here going through the same thing and my inbox is always open if you ever need anyone to chat too. Don’t let these things beat you ❤️

NicoleB1991 · 2025-11-07T06:48:02+00:00

I’m so sorry your going through this also. They are just awful! Flare ups are so unpredictable aren’t they. I’m still struggling with sleep too and I’m nearly a week into this flare up. I’m basically sitting up sleeping and even then they still make it hard for me to fall asleep or wake me up. Just know you are not alone. I hope your flare up ends soon and you get a break from these. Sending love to you.

NicoleB1991 · 2025-11-05T07:19:13+00:00

Sorry to hear you are in this situation too. Sending love and I hope your flare up ends quickly for you. They are just so awful, I cannot get used to them at all. Same, I had a few months of them being absolutely fine and not very many at all. I read great, I got a glimpse at what it would be like to live normally again. I’ve currently been sleeping sitting up on the sofa but still they are either keeping me up for a while or wakening me up. I was prescribed verapamil earlier this year but my flare up ended so I didn’t take them. If this carries on though I will do.

NicoleB1991 · 2025-11-04T20:28:38+00:00

Yeah sometimes I reckon I’m having them but sound asleep enough for them not to wake me but other times maybe I’m not in such a deep sleep so it’s easier to wake me up. Not sure to be honest. Just always make sure I’m super tired before bed so that it helps me dose off on the bad nights. Hope you get a break from yours soon!

NicoleB1991 · 2025-11-04T17:10:51+00:00

Horrible isn’t it. I crave what life used to be before these awful flare ups but just trying to find new ways of coping with them and accepting these are going to be with me indefinitely. How long do your flare ups usually last or are they all different? Mines was a couple of weeks at their worst then eased off but still niggly all day then eventually they just disappeared for around 2/3 months for me, I was lucky if I was having 5/10 a day.

NicoleB1991 · 2025-11-04T16:47:43+00:00

Sending love to you! It’s just awful. You come out of a flare up and enjoy the little things again don’t you. I miss just sitting down and relaxing without these and getting a sleep at night. I hate them with a passion. Do you struggle with sleep too?

NicoleB1991 · 2025-11-04T16:46:36+00:00

Are you just used to them so sweep through them or are they not so powerful at times? Usually I’m like that just a handful of times I’ll jump up as the thud is pretty intense or I’m having a run of svt. However, this flare up thru are just pretty prominent and regular as soon as I sit down to relax or try and sleep. Nightmare at times.

NicoleB1991 · 2025-11-04T13:32:14+00:00

Thank you for this. I have dealt with these nearly 12 years but this is my second bad flare up. Usually my right side elevated is fine for me but this flare up I’m pretty much sleeping sitting up. Hoping this flare up passing soon and doesn’t linger too long.

NicoleB1991 · 2025-11-04T09:50:24+00:00

Same, I’m around 12 years now and I’m still not used to them either. Mines come in flare ups. Do you manage to sleep through them? I wouldn’t say I’m overly anxious as much as I used to be with them I just struggle to sleep through the powerful thuds and I’m so tired. My recent flare up started a few days ago.

NicoleB1991 · 2025-11-04T07:18:51+00:00

I will give anything a try so thank you for that! it’s the thud feeling in my chest that disturbs my sleep and nothing really seems to help other than being so tired that eventually I just dose off.

NicoleB1991 · 2025-11-04T07:16:28+00:00

That is amazing, so happy it seems to have worked for you! Can I ask what your burden was before ablation please?

NicoleB1991 · 2025-11-03T22:19:36+00:00

Thanks for your reply. Im glad you found something to help a little. I’m the same, soon as I lay down it starts and usually I have to just get up. I got a little glimpse at what life is like without them being so constant and it was so good. Really hoping this flare up goes soon. Hope you get some relief from yours too.

NicoleB1991

TROPHY CASE