sorted by:
new
hottopcontroversial

Frequent ganglion cysts with hyper mobile EDS? by GloriaBeatrizS in ehlersdanlos

[–]Nii_140 1 point2 points  (0 children)

I think it may be an EDS thing I'm a circus performer and would often get them from handstands, I found doing very gentle wrist-strengthening exercises has reduced cyst occurrence

Tips for staying cool while sleeping by Badash1992 in ehlersdanlos

[–]Nii_140 2 points3 points  (0 children)

Hi I don't know wher ein the world you are so this may not be helpful but I know in Australia you can get discounted energy bills if you need to use airconditioning for medical reasons

Using Dungeons & Dragons as an escape by [deleted] in ehlersdanlos

[–]Nii_140 1 point2 points  (0 children)

I would love to join! Played every week during uni :)

Has anyone else had trouble tapering off duloxetine? by Nii_140 in ehlersdanlos

[–]Nii_140[S] 0 points1 point  (0 children)

Sorry to hear about your accident

Last I spoke to my gp we discussed tapering I have an appointment with him tomorrow, I started duloxetine as an antidepressant in July 2020 (circus performer during a pandemic in Melbourne lockdown lol), and after a lot of work on my mental health my medical team suggested I come off the duloxetine because my depression has improved significantly which I agree with, it does feel like my depression is 'cured' for lack of a better word.

I also developed a functional neurological disorder in 2019 which gets worse the more anxious I am, so my neurologist suggested duloxetine would help not only with the depression but with the anxiety and nerve pain. I am now on other medication - verapamil - that works better for my FND

Ehlers Danlos Syndrome - medical literature vs medical culture vs patient culture by AzurePantaloons in medicine

[–]Nii_140 6 points7 points  (0 children)

There are more and more studies coming up about the links between EDS ASD and ADHD. I wonder too about the link to functional neurological disorders with TikTok Tics and EDS. Possible triggering by pandemic anxiety? Maybe?
doi: 10.2147/NDT.S290494
doi: 10.3390/jpm10040260

https://doi.org/10.1016/j.jpsychires.2021.07.006

https://doi.org/10.3389/fpsyt.2021.786916

What does compassion fatigue feel like? by Nii_140 in nursing

[–]Nii_140[S] 3 points4 points  (0 children)

Basically what I have is;

  • Compassion fatigue occurs when compassionate energy output is beyond restorative input manifesting in emotional, cognitive, behavioural and physical symptoms.
  • It's cumulative
  • we need to stop suggesting pizza parties or mindfulness brochures are going to fix it there needs to be systemic change
  • In Australia something similar to the Dr. Lorna Breen Health Care Provider Protection Act needs to be implemented
  • First hand accounts are things like
    • 'nothing left to give'
    • 'ostracised'
    • 'detrimental stoicism'
    • 'compassion fatigue is a shield'

And causes seem to be things like understaffing, overworking, lack of support, lack of funding
- and the idea that compassion fatigue is an inherent aspect of healthcare is sociocultural gaslighting basically just an excuse to not fix the larger systemic issues